What do parents need to enhance participation of their school‐aged child with a physical disability? A cross‐sectional study in the <scp>N</scp>etherlands

Piškur, Barbara; Beurskens, Anna; Jongmans, Marian J.; Smeets, Rob

doi:10.1111/cch.12145

Cited by 27 publications

(23 citation statements)

References 36 publications

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“…Less emphasis is placed on environmental factors from the child's perspective. Environmental factors profoundly influence participation in children with CP . It is noteworthy that Indian HCPs acknowledge the role of environmental factors, so future studies should focus their interventions on modifying the environment as opposed (or in addition) to changing the child.…”

Section: Discussionmentioning

confidence: 99%

“…In resource‐rich countries, studies using the ICF framework have examined issues like the role of environmental factors in the home, school, and the community, and leisure participation in children, young people, and adolescents with CP. Parents’ and children's perspectives, QoL, satisfaction with services, transition to adulthood, sexual and intimate relations, and self‐efficacy have also been explored . Given the importance of environmental factors in these studies, it is important to explore environmental factors in low‐resource countries and across different cultures, as substantial variation could be expected.…”

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confidence: 99%

“…Most studies exploring the role of environmental factors in CP originate in resource-rich countries (the USA, Canada, the UK, Australia, and Sweden), 10,11 and have found that environmental factors influence the child's activity and participation in various areas of life. 6,[12][13][14][15][16][17][18][19][20][21][22][23][24][25] In resource-rich countries, studies using the ICF framework have examined issues like the role of environmental factors in the home, school, and the community, and leisure participation in children, young people, and adolescents with CP. Parents' and children's perspectives, QoL, satisfaction with services, transition to adulthood, sexual and intimate relations, and self-efficacy have also been explored.…”

mentioning

confidence: 99%

“…Parents' and children's perspectives, QoL, satisfaction with services, transition to adulthood, sexual and intimate relations, and self-efficacy have also been explored. 6,[12][13][14][15][16][17][18][19][20][21][22][23][24][25] Given the importance of environmental factors in these studies, it is important to explore environmental factors in low-resource countries and across different cultures, as substantial variation could be expected.…”

mentioning

confidence: 99%

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Treatment and re/habilitation of children with cerebral palsy in India: a scoping review

Jindal

MacDermid

Rosenbaum

et al. 2019

Develop Med Child Neuro

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Aim To describe the nature and extent of the literature addressing the medical and its re/habilitative management of cerebral palsy (CP) in India. Method Online worldwide scholarly databases, research hosting directories, Indian publishing houses, and grey literature were used to identify papers published between 2005 and 2016. We retrieved 144 English language papers that described the medical and rehabilitative management of Indian children with CP. Results Quantitative, qualitative, and mixed research designs are published by a variety of health care professionals in India. Intervention (45%) and observational studies (30%) predominate. Outcomes were categorized using the World Health Organization's International Classification of Functioning, Disability and Health framework, with body structure and function most reported and activity/participation least reported; 57% described its re/habilitation interventions and 43% were medical interventions. Interpretation There is a substantial body of CP research in India that focuses on interventions to reduce impairments, with minimal attention given to activities and participation, environmental, and personal factors. Twenty‐six per cent of studies are published in what appear to be ‘predatory journals’. This paper serves as an alert about the presence of ‘predatory journals’ in medicine that may introduce publication bias, which can distort results reported in those studies individually, or from conclusions drawn in reviews that contain those studies. What this paper adds Cerebral palsy research in India focuses on interventions to reduce impairment. Activities, participation, and environmental factors are minimally addressed. Quantitative studies are more common than qualitative studies. Many Indian studies are published in journals that are not indexed in worldwide databases of scholarly journals.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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Treatment and re/habilitation of children with cerebral palsy in India: a scoping review

Jindal

MacDermid

Rosenbaum

et al. 2019

Develop Med Child Neuro

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“…Children with disabilities need early and consistent rehabilitation services so that they can be able to reach their maximum capabilities in life 5 . Rehabilitation of children with disabilities should thus consider family centred service as a way to increase participation of children with disabilities 6 . This can only be achieved if the child attends scheduled rehabilitation therapy sessions in addition to also meeting the needs and expectations of primary caregivers 7 ; a feat that is equally challenging in resource constrained settings such as Zimbabwe.…”

Section: Introductionmentioning

confidence: 99%

Factors contributing to defaulting scheduled therapy sessions by caregivers of children with congenital disabilities

Nota¹,

Chikwanha²,

January³

et al. 2015

Mal. Med. J

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Background Defaulting scheduled rehabilitation therapy may result in increased adverse outcomes such as permanent disability and increased healthcare costs. Concomitantly, there is evidence to suggest that early and continued rehabilitation of children with congenital disabilities can improve outcomes significantly. This study was conducted to determine factors contributing to caregivers' defaulting scheduled rehabilitation therapy sessions. Methods A descriptive cross sectional study was carried out at Chitungwiza Central Hospital, a tertiary facility offering in and outpatient rehabilitation services in Zimbabwe. Caregivers of children who had congenital disabilities (N=40) and who had a history of defaulting treatment but were available during the data collection period responded to an interviewer administered questionnaire. Data were analysed for means and frequencies using STATA 13. ResultsFactors that contributed to caregivers defaulting scheduled therapy included economic constraints (52%), child related factors (43%), caregiver related factors (42%), service centred factors (30%) and psychosocial factors(58%). Majority of the caregivers (98%) were motivated to attend therapy by observable improvements in their children. Other motivators were incentives given in the rehabilitation department (45%), availability of rehabilitation personnel to provide the required services (48%) and psychosocial support from fellow caregivers, families and the rehabilitation staff (68%). Although all the caregivers could not distinguish occupational therapy from physiotherapy services they all reported that therapy was important. Conclusions A combination of psychosocial, economic, child centred and service centred factors contributed to caregivers defaulting scheduled therapy. Interventions that may potentially improve caregiver attendance to scheduled therapy include community outreach services, efficient rehabilitation service provision at the hospitals, and facilitation of income generating programmes for caregivers.

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Disability, Social Participation and the Role of the School

Finnvold

2021

Integrating Students With Disabilities in Schools

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What do parents need to enhance participation of their school‐aged child with a physical disability? A cross‐sectional study in the Netherlands

Cited by 27 publications

References 36 publications

Treatment and re/habilitation of children with cerebral palsy in India: a scoping review

Treatment and re/habilitation of children with cerebral palsy in India: a scoping review

Factors contributing to defaulting scheduled therapy sessions by caregivers of children with congenital disabilities

Disability, Social Participation and the Role of the School

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