Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results

Ravens‐Sieberer, Ulrike; Bullinger, Monika

doi:10.1023/a:1008853819715

Cited by 833 publications

(660 citation statements)

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“…However, the findings from this review indicate that even mild physical and functional deficits can result in recurring experiences of difficulties in adaptive behaviour and keeping up with peers [13,38,26] [9,21]. Following stroke, children and young people were reported to be impaired on adaptive behaviour, indicating ongoing functional concerns in the areas of self-care, play, school and leisure and frequently required more assistance and time with activities of daily living, practical tasks, mobility, school and social domains [33,45,19,22,40,32,26,50]. Evidence indicated long-term functional limitations into young adulthood, in terms of financial independence and independent living [47].…”

Section: Functional and Neurological Disability Outcomementioning

confidence: 99%

“…Health-related QoL (HRQoL) has been described as "A psychological construct which describes the physical, mental, social, psychological and functional aspects of well-being and function from a patient perspective" [19]. However, studies exploring the impact on a child's QOL following a stroke have been limited and there has been a call for further research in this area [12,20,3].…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial outcome and quality of life following childhood stroke – A systematic review

O’Keeffe

Stark

Murphy

et al. 2017

Developmental Neurorehabilitation

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Objectives. The aim of this paper was to critically review the recent literature on psychosocial and behavioural outcome following childhood stroke, to assess whether quality of life is affected and to investigate the factors related to psychosocial outcome.Methods. Literature searches were conducted and identified 36 relevant papers from the period 1908-2016.Results. The systematic review found that many children experience difficulties in a wide range of psychosocial domains. Quality of life can also be significantly reduced. Inconsistent findings regarding the correlates of outcome are likely due to methodological limitations. These issues include small and heterogeneous samples, lack of control groups and measurement difficulties.Conclusions. This systematic review strongly indicates that childhood stroke can affect a myriad of psychosocial domains and a child's quality of life.Methodological issues, particularly around heterogeneous samples and measures, limit the conclusions that can be drawn regarding the predictors of outcome.

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Section: Functional and Neurological Disability Outcomementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Psychosocial outcome and quality of life following childhood stroke – A systematic review

O’Keeffe

Stark

Murphy

et al. 2017

Developmental Neurorehabilitation

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“…It was assessed in children using the revised German KINDL questionnaire [40], which exhibits three age versions. The KINDL is a well validated measure of HRQoL [40,41]. We applied the KINDL-Kiddy (age 4-7 years) and the KINDL-Kid (8-12 years) with both parental and self-appraisals.…”

Section: Secondary Outcome Measuresmentioning

confidence: 99%

Brief hypnotherapeutic–behavioral intervention for functional abdominal pain and irritable bowel syndrome in childhood: a randomized controlled trial

et al. 2013

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Functional abdominal pain and irritable bowel syndrome are two prevalent disorders in childhood which are associated with recurrent or chronic abdominal pain, disabilities in daily functioning, and reduced quality of life. This study aimed to evaluate a brief hypnotherapeuticbehavioral intervention program in a prospective randomized controlled design. Thirty-eight children, 6 to 12 years of age, and their parents were randomly assigned to a standardized hypnotherapeutic-behavioral treatment (n=20) or to a waiting list condition (n=18). Both groups were reassessed 3 months after beginning. Primary outcome variables were child-completed pain measures and pain-related disability. Secondary outcome variables were parent-completed measures of their children's pain and pain-related disability. Health-related quality of life from both perspectives also served as a secondary outcome. In the treatment group, 11 of 20 children (55.0 %) showed clinical remission (>80 % improvement), whereas only one child (5.6 %) in the waiting list condition was classified as responder. Children in the treatment group reported a significantly greater reduction of pain scores and pain-related disability than children of the waiting list condition. Parental ratings also showed a greater reduction of children's abdominal pain and pain-related disability. Health-related quality of life did not increase significantly. Conclusions: Hypnotherapeutic and behavioral interventions are effective in treating children with long-standing AP. Treatment success of this brief program should be further evaluated against active interventions with a longer follow-up.

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“…The questionnaire measures the HRQL of children and adolescents and was developed because of its great relevance to the theme "quality of life of children and adolescents", and due to a lack of appropriate measurements 13 . The KINDL is comprised of five questionnaires, three of them used for children and adolescents (i) aged between 4-7 (Kiddy-KINDL), (ii) 8-11 (Kid-KINDL) and (iii) 12-16 (Kiddo-KINDL); two of them are directed to parents/guardians of children aged 4-7 and 8-16.…”

Section: Introductionmentioning

confidence: 99%

Adaptação cultural e validação do Questionário KINDL no Brasil para adolescentes entre 12 e 16 anos

Teixeira

Novais

Pinto

et al. 2012

Rev. bras. epidemiol.

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Objective: Obtain a Portuguese version of the Kiddo-KINDL questionnaire that is semantic and culturally equivalent to the original version. Methods: For the adaptation, the methodology of direct and inverse translation was used. The questionnaire was applied to groups from three schools in Uberlândia, MG -Brazil, and comprised of 378 children and adolescents aged between 12 and 16. 16% of the students were randomly selected to repeat the test. In the statistical analysis, the following aspects were appraised and analyzed such as: lost data, floor and ceiling effect, internal consistence of the item and reliability of the internal consistence of the scales. Results:The percentage of lost data in the scales was low varying between 1.6% to 2.57%, which indicates good acceptability of the questionnaire. The rates of floor and ceiling effect were lower than 12% suggesting that the instrument is sensitive to detect differences in quality of life related to the health of the children and adolescents ranked within the extreme ends. The Kiddo-KINDL as a whole has shown high reliability (Alpha Cronbach = 0.79). Conclusion: The Kiddo-KINDL is a reliable tool to be used with children and adolescents in Brazil, and has provided important data of multidimensional nature. Keywords ResumoObjetivo: Obter uma versão em português do questionário Kiddo-KINDL que seja semântica e culturalmente equivalente à versão original. Métodos: Para a adaptação, utilizou-se a metodologia de tradução direta e inversa. O questionário foi aplicado nas salas de aula em três escolas de Uberlândia, MG, em 378 crianças/adolescentes com idade entre 12 e 16 anos completos, dentre os quais 16% foram selecionados aleatoriamente para fazer o reteste. Na análise estatística foram avaliados os dados perdidos, efeito piso e teto, consistência interna do item e confiabilidade da consistência interna das escalas. Resultados: A porcentagem de dados perdidos nas escalas foi baixa, variando de 1,6% a 2,57%, indicando uma boa aceitabilidade do questionário. As taxas de efeito piso e teto encontradas sugerem a possibilidade de o instrumento ser sensível para detectar diferenças na qualidade de vida relacionada à saúde entre as crianças/ adolescentes situadas nos extremos. A confiabilidade do Kiddo-KINDL mostrou-se adequada em geral, exceto na escala bem--estar físico. Conclusão: O Kiddo-KINDL é um instrumento confiável para ser utilizado em crianças e adolescentes no Brasil, fornecendo dados importantes de natureza multidimensional. Palavras

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Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results

Cited by 833 publications

References 4 publications

Psychosocial outcome and quality of life following childhood stroke – A systematic review

Psychosocial outcome and quality of life following childhood stroke – A systematic review

Brief hypnotherapeutic–behavioral intervention for functional abdominal pain and irritable bowel syndrome in childhood: a randomized controlled trial

Adaptação cultural e validação do Questionário KINDL no Brasil para adolescentes entre 12 e 16 anos

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