Assessing emergency responses of people with mental handicaps: AN ASSESSMENT INSTRUMENT

Tymchuk, Alexander J.

doi:10.1111/j.1468-3156.1990.tb00598.x

Cited by 10 publications

(5 citation statements)

References 10 publications

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“…A consistent research finding is that many parents labelled with intellectual disability can learn, apply new knowledge and maintain new skills (Budd & Greenspan 1985;Tymchuk 1990aTymchuk , 1990bTymchuk & Feldman 1991;Feldman 1994). Maurice Feldman in Canada, Alexander Tymchuk in the USA, and Susan McGaw in England pioneered the use of applied behavioral methods in teaching skills to parents labelled with intellectual disability.…”

Section: Teaching and Supporting Parents Labelled With Intellectual Dmentioning

confidence: 98%

“…Subsequent research used more systematic methods including standardized measures and behavioral checklists (e.g. Feldman et al 1985Feldman et al , 1986Keltner 1992Keltner , 1994McConnell et al 2003;Tymchuk 1990aTymchuk , 1990b. This body of research demonstrates that few generalizations can be made about the parenting abilities of parents labelled with intellectual disability.…”

Section: Capacity Of Parents Labelled With Intellectual Disability Tomentioning

confidence: 99%

“…1985, 1986; Keltner 1992, 1994; McConnell et al. 2003; Tymchuk 1990a, 1990b). This body of research demonstrates that few generalizations can be made about the parenting abilities of parents labelled with intellectual disability.…”

Section: Introductionmentioning

confidence: 99%

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Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities

2008

Research Intellect Disabil

129

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Background On August 5th, 2006, the third meeting of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) Special Interest Research Group (SIRG) on Parents and Parenting with Intellectual Disabilities was convened in Maastricht, The Netherlands, coinciding with the 2nd International Congress of IASSID‐Europe. The SIRG Parents and Parenting with Intellectual Disabilities membership includes scholars from a number of countries including the United States, Canada, England, Germany, The Netherlands, Sweden, Denmark, Iceland, Japan, Australia and New Zealand. These scholars come from a range of academic and professional disciplines, including sociology, psychology, education, nursing, social work and occupational therapy. Method This position paper developed by the Parenting SIRG brings into sharp relief the UN Convention on the Rights of Persons with Disabilities adopted by the General Assembly in December 2006. The convention affirms the right of persons with disabilities to marry and found a family (Article 23, (1)(a)). Further, states parties are bound to ‘take effective action and appropriate measures to eliminate discrimination against persons with disabilities in all matters relating to marriage, family, parenthood and relationships…’ (Article 23 (1)), and ‘…render appropriate assistance to persons with disabilities in the performance of their child‐rearing responsibilities’ (Article 23 (2)). Results This position paper synthesizes messages from research about the challenges that parents labelled with intellectual disability face, and how they can be assisted in their parenting role.

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Section: Teaching and Supporting Parents Labelled With Intellectual Dmentioning

confidence: 98%

Section: Capacity Of Parents Labelled With Intellectual Disability Tomentioning

confidence: 99%

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Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities

2008

Research Intellect Disabil

129

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“…Early research employed review of welfare records and professional (third-party) observation and opinion (e.g., Ainsworth, Wagner, & Strauss, 1945;Berry & Shapiro, 1975;Floor, Baxter, Rosen, & Zisfein, 1975;Mattinson, 1970;Mickelson, 1947;Scally, 1973). Subsequent research used more systematic methods including standardized measures and behavioral checklists (e.g., Feldman, Case, Towns, & Betel, 1985;Feldman, Towns, Betel, Case, Rincover, & Rubino, 1986;Keltner, 1992Keltner, , 1994Tymchuk, 1990aTymchuk, , 1990bUnger & Howes, 1988). This body of research demonstrates that few generalizations can be made about the parenting abilities of parents with intellectual disabilities.…”

Section: Capacity Of Parents With Intellectual Disabilities To Raise Their Childrenmentioning

confidence: 99%

Conclusion: Taking Stock and Looking to the Future

Llewellyn¹,

Traustadttir²,

McConnell³

et al. 2010

Parents With Intellectual Disabilities

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May 1927 was a particularly dark time in history for persons with intellectual disabilities. That year in the United States of America, Justice Oliver Wendell Homes, Jr. infamously declared that "three generations of imbeciles are enough" as he handed down the United States Supreme Court majority decision upholding the compulsory sterilization of Carrie Buck (and, by extension, "the mentally retarded") "for the protection and health of the state" (Buck v. Bell, 274 US 200). This determination was based on an assumption that the very existence of people with intellectual disabilities was a threat to the human species. At that time, over eight decades ago, people with intellectual disabilities were segregated from society and in many places they were sterilized to prevent them from having children. Times have changed for the better in many places around the globe, but not in all.As this book was nearing completion in July 2009, the United States of America became the latest nation to formally endorse the UN Convention on the Rights of Persons with Disabilities (United Nations, 2006). As signatories to this landmark convention, states recognize the rights of persons with disabilities across all areas of life, and are held to uphold and make progress toward the many articles in the Convention. The Article of particular relevance to the topic of this book is Article 23, which states the right to marry and found a family. To enforce this right, the Convention goes on to require that nationstates are obligated to root out discrimination against parents with disabilities and to render appropriate assistance to disabled persons, including those with intellectual disabilities, in the parenting role.It remains to be seen whether the nations of the world act on their obligations under the UN Convention. Turning words into actions -rhetoric into realitywill be the real test of our humanity. The challenge is great. As many of the contributors to this book attest, when parents with intellectual disabilities talk about their own lives, they tell stories of discrimination against them found across and within all systems in society and particularly in the social care and welfare sector. Their stories also reflect that services are ill-equipped to accommodate the support needs of parents or those of their children. Other contributions

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“…These and other more recent studies have demonstrated positive gains across a range of parenting skills. These include basic childcare such as bathing, changing nappies/diapers, and cleaning baby bottles (e.g., Feldman et al., 1992); home safety and emergencies (e.g., Tymchuk, 1990; Tymchuk, Andron, & Hagelstein, 1992; Tymchuk, Hamada, Andron, & Anderson, 1990); recognizing and responding in a timely and appropriate way to symptoms of childhood illness (Llewellyn, McConnell, Honey, Mayes, & Russo, 2003a); parent–child interaction and play (e.g., Feldman, Case, Rincover, Towns, & Betel, 1989; Feldman et al., 1986; Keltner, Finn, & Shearer, 1995); decision‐making (e.g., Tymchuk, Andron, & Rahbar, 1988); and responding to common problematic parenting and social situations (e.g., Fantuzzo, Wray, Hall, Goins, & Azar, 1986).…”

Section: Introductionmentioning

confidence: 99%

“Healthy Start.” A National Strategy for Parents With Intellectual Disabilities and Their Children

McConnell

Matthews

Llewellyn

et al. 2008

Policy Practice Intel Disabi

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Parents with intellectual disabilities, like all other parents, need support with child rearing. Often this support comes from family and friends, but in the case of parents with intellectual disabilities, they are more likely to have to rely on the service system. Research from a number of countries demonstrates that there is limited system capacity to support these parents. There are few appropriate services, and practitioners are generally ill-equipped to meet the parents' particular learning and support needs. In response, the Australian government has funded a capacity-building model known as Healthy Start: A national strategy for children of parents with intellectual disabilities, as part of its Stronger Families and Communities Strategy. This paper presents this model for building systems capacity that, in brief, addresses on the one hand, practitioner commitment, knowledge, and skills, and on the other, the parent education and community development resources needed to support parents with intellectual disability and promote a healthy start to life for their young children. The model involves the development of local leaders and practitioner networks in addition to dissemination of knowledge and innovation to support evidence-based practice. Innovative, cross-disciplinary, and inter-sectoral practitioner networks are at the heart of this capacity-building model. These networks bridge the gap between research knowledge and practitioner knowledge as a basis for planning and coordinating local service development.

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Assessing emergency responses of people with mental handicaps: AN ASSESSMENT INSTRUMENT

Cited by 10 publications

References 10 publications

Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities

Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities

Conclusion: Taking Stock and Looking to the Future

“Healthy Start.” A National Strategy for Parents With Intellectual Disabilities and Their Children

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