Assembling the evidence: patient‐focused outcomes research

Coulter, Angela

doi:10.1046/j.1365-2532.1994.1140263.x

Cited by 86 publications

(114 citation statements)

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“…Patient safety policies and discourses promote safety initiatives that enable patients (and their families) to be active partners in healthcare,1 for example, by detecting and reporting possible safety events 2. This kind of patient involvement respects and empowers patients as people—rather than as dehumanised by products of the ‘medical gaze’3—and may improve the quality and outcomes of healthcare 1.…”

Section: Introductionmentioning

confidence: 99%

“…This kind of patient involvement respects and empowers patients as people—rather than as dehumanised by products of the ‘medical gaze’3—and may improve the quality and outcomes of healthcare 1. Research has explored factors that influence the willingness4 5 and motivation6 of patients to participate in safety initiatives.…”

Section: Introductionmentioning

confidence: 99%

“…Davis et al 8 earlier identified patient-related and illness-related factors associated with patient involvement in health safety 2. Coulter and Ellins1 had highlighted the importance of health literacy to patients obtaining and understanding basic health information. More widely, however, safety experts have yet to identify and agree explicitly on key personal attributes of safe patients.…”

Section: Introductionmentioning

confidence: 99%

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What attributes of patients affect their involvement in safety? A key opinion leaders’ perspective

Buetow

Davis

Callaghan³

et al. 2013

BMJ Open

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ObjectiveLittle is known about which attributes the patients need when they wish to maximise their capability to partner safely in healthcare. We aimed to identify these attributes from the perspective of key opinion leaders.DesignDelphi study involving indirect group interaction through a structured two-round survey.SettingInternational electronic survey.Participants11 (65%) of the 17 invited internationally recognised experts on patient safety completed the study.Outcome measures50 patient attributes were rated by the Delphi panel for their ability to contribute maximally to safe health care.ResultsThe panellists agreed that 13 attributes are important for patients who want to maximise the role of safe partners. These domains relate to: autonomy, awareness, conscientiousness, knowledge, rationality, responsiveness and vigilance; for example, important attributes of autonomy include the ability to speak up, freedom to act and ability to act independently. Spanning seven domains, the attributes emphasise intellectual attributes and, to a lesser extent, moral attributes.ConclusionsWhereas current safety discourses emphasise attributes of professionals, this study identified the patient attributes which key opinion leaders believe can maximise the capability of patients to partner safely in healthcare. Further research is needed that asks patients about the attributes they believe are most important.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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What attributes of patients affect their involvement in safety? A key opinion leaders’ perspective

Buetow

Davis

Callaghan³

et al. 2013

BMJ Open

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“…The difficulties may be perceived to be too overwhelming, and carry additional resource implications 2 36. Undoubtedly, it can be difficult to gather the ‘right’ group together.…”

Section: Regionalmentioning

confidence: 99%

Engaging children and parents in service design and delivery

Russell

Passant

Kitt

2014

Archives of Disease in Childhood

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The involvement of all user groups, including children, young people (CYP) and their parents, encourages people to take responsibility for healthier lifestyle behaviours, improves treatment compliance and leads to more appropriate use of healthcare resources. Initiatives to engage CYP in the UK are gathering momentum, but significant improvements are still needed. There is a national drive from the department of health (DH) and NHS England, strategic clinical networks, operational delivery networks (including newborn networks), charities, parent groups and a number of other bodies to embed CYP involvement in service design and delivery. User engagement and patient choice, is underpinned by the NHS outcomes framework, and a myriad of other DH and NHS England policies and practice frameworks. It is now everybody's business.

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“…In the UK, data from the Department of Health suggest that an estimated 850 000 cases of unintentional medical injuries occur every year,1 at least half of which are thought to be avoidable 2. The direct cost for such events comes close to £2 billion and expenditure on medical negligence claims amounts to approximately £400 million annually 1.…”

Section: Introductionmentioning

confidence: 99%

Why are patients not more involved in their own safety? A questionnaire-based survey in a multi-ethnic North London hospital population

Yoong

Assassi

Ahmedani

et al. 2019

Postgraduate Medical Journal

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PurposeActive patient participation in safety pathways has demonstrated benefits in reducing preventable errors, especially in relation to hand hygiene and surgical site marking. The authors sought to examine patient participation in a range of safety-related behaviours as well as factors that influence this, such as gender, education, age and language.DesignA 20-point questionnaire was employed in a London teaching hospital to explore safety-related behaviours, particularly assessing patient’s willingness to challenge healthcare professionals and engagement in taking an active role in their own care while in hospital. Data was also collected on participant demographic details including gender, age, ethnicity, English language proficiency and education status.Results85% of the 175 patients surveyed would consider bringing a list of their medications to hospital, but only 60% would bring a list of previous surgeries. Only 45% would actively engage in the WHO Safer Surgery Checklist and over three quarters (80%) would not challenge doctors and nurses regarding hand hygiene, believing that they would cause offence. Female patients who had tertiary education, were fluent in English and less than 60 years of age were statistically more likely to feel responsible for their own safety and take an active role in safety-related behaviour while in hospital (p<0.05).ConclusionsMany patients are not engaged in safety-related behaviour and do not challenge healthcare professionals on safety issues. Older male patients who were not tertiary educated or fluent in English need to be empowered to take an active role in such behaviour. Further research is required to investigate how to achieve this.

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Assembling the evidence: patient‐focused outcomes research

Cited by 86 publications

References 0 publications

What attributes of patients affect their involvement in safety? A key opinion leaders’ perspective

What attributes of patients affect their involvement in safety? A key opinion leaders’ perspective

Engaging children and parents in service design and delivery

Why are patients not more involved in their own safety? A questionnaire-based survey in a multi-ethnic North London hospital population

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