Are All Consumer-Operated Programs Empowering Self-Help Agencies?

Segal, Steven; Silverman, Carol; Temkin, Tanya

doi:10.1080/15332985.2012.718731

Cited by 13 publications

(11 citation statements)

References 20 publications

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“…A pattern of consistently involving members in decision making was more apparent in peer-controlled organizations, suggesting that this organizational form conforms to evidence that less hierarchical, more lateral peer support programs decrease stigma and increase empowerment and inclusion compared with programs with more hierarchical structures (6,8). The data also suggest that peer-controlled organizations viewed themselves as alternatives to the traditional mental health system and provided more choices for community members in accessing supports independently.…”

Section: Discussionsupporting

confidence: 62%

“…These organizations build social support, a protective factor for health. The organizational structure itself contributes to community building and stigma reduction by encouraging inclusive membership rather than passive acceptance of services (8,9). Members are encouraged to build alliances and actively engage in activities and supports that uniquely help them obtain the greatest benefit from use of mental health services (5).…”

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confidence: 99%

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Leadership and Characteristics of Nonprofit Mental Health Peer-Run Organizations Nationwide

Ostrow¹,

Hayes²

2015

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Objective Mental health peer-run organizations are nonprofits providing venues for support and advocacy among people diagnosed as having mental disorders. It has been proposed that consumer involvement is essential to their operations. This study reported organizational characteristics of peer-run organizations nationwide and how these organizations differ by degree of consumer control. Methods Data were from the 2012 National Survey of Peer-Run Organizations. The analyses described the characteristics of the organizations (N = 380) on five domains of nonprofit research, comparing results for organizations grouped by degree of involvement by consumers in the board of directors. Results Peer-run organizations provided a range of supports and educational and advocacy activities and varied in their capacity and resources. Some variation was explained by the degree of consumer control. Conclusions These organizations seemed to be operating consistently with evidence on peer-run models. The reach of peer-run organizations, and the need for in-depth research, continues to grow.

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Section: Discussionsupporting

confidence: 62%

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confidence: 99%

Leadership and Characteristics of Nonprofit Mental Health Peer-Run Organizations Nationwide

Ostrow¹,

Hayes²

2015

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“…); to provide opportunities for consumers to participate in decisions about their care (Segal & Silverman ); and to share power between staff and consumers (Segal et al . ), when compared with other community mental health organizations. Further, consumers of consumer‐run self‐help agencies experienced a greater reduction in self‐stigma than consumers of services without consumer leadership (Segal et al .…”

Section: Resultsmentioning

confidence: 99%

Consumers in mental health service leadership: A systematic review

Scholz

Gordon

Happell

2016

Int J Mental Health Nurs

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Contemporary mental health policies call for greater involvement of mental health service consumers in all aspects and at all levels of service planning, delivery, and evaluation. The extent to which consumers are part of the decision‐making function of mental health organizations varies. This systematic review synthesizes empirical and review studies published in peer‐reviewed academic journals relating to consumers in leadership roles within mental health organizations. The Cochrane Library, Medline, and PsycINFO were searched for articles specifically analysing and discussing consumers’ mental health service leadership. Each article was critically appraised against the inclusion criteria, with 36 articles included in the final review. The findings of the review highlight current understandings of organizational resources and structures in consumer‐led organizations, determinants of leadership involvement, and how consumer leadership interacts with traditional mental health service provision. It appears that organizations might still be negotiating the balance between consumer leadership and traditional structures and systems. The majority of included studies represent research about consumer‐run organizations, with consumer leadership in mainstream mental health organizations being less represented in the literature. Advocates of consumer leadership should focus more on emphasizing how such leadership itself can be a valuable resource for organizations and how this can be better articulated. This review highlights the current gaps in understandings of consumer leadership in mental health, including a need for more research exploring the benefits of consumer leadership for other consumers of services.

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“…CROs are uniquely empowering because they are driven by mental health care consumers rather than by professionals (13,30). By providing opportunities for meaningful contribution and helping participants feel valued, CROs can encourage both continued engagement and recovery (31).…”

Section: An Overview Of Consumer-run Organizations (Cros)mentioning

confidence: 99%

Determinants of Engagement in Mental Health Consumer–Run Organizations

Brown¹,

Townley²

2015

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Objective Mental health consumer-run organizations (CROs) are a low-cost, evidence-based strategy for promoting recovery. To increase CRO utilization, characteristics that promote engagement need to be identified and encouraged. The study examined individual and organizational characteristics that predict three types of engagement in CROs—attendance, leadership involvement, and socially supportive involvement. Methods Surveys were administered to 250 CRO members attending 20 CROs. Leaders of each CRO reported organizational characteristics through a separate questionnaire. Multilevel regression models examined relationships between predictors and indicators of CRO engagement. Results Perceived sense of community was the only characteristic that predicted attendance as well as leadership involvement and socially supportive involvement. Perceived organizational empowerment, shared leadership, peer counseling, and several demographic characteristics also predicted some measures of engagement. Conclusions CROs that can effectively promote sense of community, organizational empowerment, shared leadership, and peer counseling may be better able to engage participants. The discussion considers several strategies to enhance these characteristics, such as collectively establishing values and practicing shared decision making.

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Are All Consumer-Operated Programs Empowering Self-Help Agencies?

Abstract: The literature on consumer-operated-service programs (CQSPs) distinguishes two organizational types based on theit· leadership

Cited by 13 publications

References 20 publications

Leadership and Characteristics of Nonprofit Mental Health Peer-Run Organizations Nationwide

Leadership and Characteristics of Nonprofit Mental Health Peer-Run Organizations Nationwide

Consumers in mental health service leadership: A systematic review

Determinants of Engagement in Mental Health Consumer–Run Organizations

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