Determinants of Engagement in Mental Health Consumer–Run Organizations

Brown, Louis D.; Townley, Greg

doi:10.1176/appi.ps.201400150

Cited by 20 publications

(26 citation statements)

References 49 publications

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“…Previous research has provided some important insights about consumerrun organisations. 12,28 From a co-creation of value perspective, greater consumer leadership within other mental health organisations may represent a significantly different value experience than consumer leadership within consumer-run organisations. Because the participants in the current study came from a range of organisations, encompassing government, community sector, private and consumer-run organisations, the findings reflect the activities that consumer leaders are involved in within the broader mental health context.…”

Section: Discussionmentioning

confidence: 99%

“…Although the goal of mental health policies is to improve mental health service delivery within government, private and community sectors, 4 far more research attention has been given to consumer leadership within consumer-run organisations [12][13][14] than to the ways in which consumer leadership forms a part of other private or public sector specialist mental health services. The research exploring consumer-run mental health organisations represents important insights in mental health consumer leadership.…”

Section: Introductionmentioning

confidence: 99%

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How do consumer leaders co-create value in mental health organisations?

Scholz

Bocking

Happell

2017

Aust. Health Review

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Objectives Contemporary mental health policies call for consumers to be involved in decision-making processes within mental health organisations. Some organisations have embraced leadership roles for consumers, but research suggests consumers remain disempowered within mental health services. Drawing on a service-dominant logic, which emphasises the co-creation of value of services, the present study provides an overview of consumer leadership within mental health organisations in the Australian Capital Territory. Methods Mental health organisations subscribing to the local peak body mailing list were invited to complete a survey about consumer leadership. Survey data were summarised using descriptive statistics and interpreted through the lens of service-dominant logic. Results Ways in which organisations may create opportunities for consumers to co-create value within their mental health services included soliciting feedback, involving consumer leaders in service design, having consumer leaders involved in hiring decisions and employing consumer leaders as staff or on boards. Strategies that organisations used to develop consumer leaders included induction, workshops and training in a variety of organisational processes and skills. Conclusions The findings of the present study extend the application of a service-dominant logic framework to consumer leadership within mental health organisations through consideration of the diverse opportunities that organisations can provide for consumer co-creation of service offerings. What is known about the topic? Policy calls for consumer involvement in all levels of mental health service planning, implementation and delivery. The extent to which service organisations have included consumer leaders varies, but research suggests that this inclusion can be tokenistic or that organisations choose to work with consumers who are less likely to challenge the status quo. Service literature has explored the way consumers can co-create value of their own health care, but is yet to explore consumers’ co-creation of value at a systemic level. What does the paper add? This paper outlines ways in which mental health organisations report involving consumers in leadership positions, including having consumers on boards, having consumers on recruitment panels and providing leadership training for consumers. These initiatives are considered in terms of the potential value co-created within mental health services by consumers in leadership, suggesting that consumer leaders are a resource to mental health organisations in terms of the value brought to service offerings. What are the implications for practitioners? Research suggests that medical professionals have been resistant to increased consumer leadership within mental health services. The findings of the present study emphasise the value that can be brought to service organisations by consumer leaders, suggesting that mental health practitioners may reconsider their approach and attitudes towards consumer leadership in the sector.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

How do consumer leaders co-create value in mental health organisations?

Scholz

Bocking

Happell

2017

Aust. Health Review

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“…Included texts originate in many different disciplines, reflecting a lack of disciplinary dominance over this field of research. However, a number of authors are represented in several texts, which is especially noteworthy with regard to Nelson who is the co-author of six texts Nelson et al 2006aNelson et al , b, 2007Nelson et al , 2008Nelson and Lomotey 2006) and Brown who is represented as author or co-author of eight texts (Brown 2009a, b;Brown et al 2007aBrown et al , b, 2008aBrown et al , b, 2010Brown and Townley 2015). The frequent representation of US authors from community psychiatry studies potentially creates bias to issues central within that context and field.…”

Section: Categorization and The Synthesizing Processmentioning

confidence: 99%

“…Alternative organizational forms have been developed in MHSUOs, involving high levels of volunteers, processes for democratic decision making and service user-exclusive groups (Boyce et al 2010;Kleintjes et al 2013b;Tanenbaum 2012). These aspects are described as unique features of MHSUOs and can be analyzed as constituting a counter-discourse that challenges the values and assumptions of hegemonic organizational models (Boyce et al 2010;Brown et al 2008a;Brown and Townley 2015;Kleintjes et al 2013b;Nelson et al 2006a). Grassroots activity in popular spaces, independent of traditional mental health service systems, is an important part of MHSUOs and vital for the development of alternative organizational models (Baumann 2014;Brown et al 2007a).…”

Section: Processes Of Organizational Professionalizationmentioning

confidence: 99%

Participatory Spaces of Mental Health Service User Organizations in the Post-deinstitutional Era: Mapping Roles and Challenges

2017

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By applying the concept of participatory spaces, this article maps and analyzes current research on mental health service user organizations (MHSUOs). We have analyzed research literature from 2006 to 2016 to examine how the role of and challenges facing MHSUOs are formulated in the post-deinstitutional era. The current situation is marked by MHSUOs parallel presence in invited, claimed and popular spaces for participation. The postdeinstitutional era is characterized by a shift in focus from gaining access to such participatory spaces, to critically examining the political opportunities available in these. We further argue that the dominance of psychiatry-specific spaces could prevent MHSUOs from fully exploring their potential for participation in broader social issues.

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“…). Within mental health literature, in addition to being seen as foundational to recovery on a personal level, consumer empowerment has been widely understood as a fundamental rationale for consumer leadership at a systems level in mental health services (Brown & Townley ).…”

Section: Introductionmentioning

confidence: 99%

‘They can't empower us’: The role of allies in the consumer movement

Juntanamalaga

Scholz

Roper

et al. 2019

Int J Mental Health Nurs

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Goals of the mental health consumer movement include redressing inequality and increasing consumer leadership across the mental health sector. A means of achieving these goals is empowerment of consumers at systemic levels of the mental health sector. There have been calls for research to focus on alliesthose who use their power to support and advocate for the goals of the consumer movement. This study aimed to examine the role of allies in consumer empowerment. Semi-structured interviews were conducted with 15 individuals (including three consumers, nine allies, and three participants each identifying as both consumer and ally). Findings suggest that allies cannot directly empower consumers but should support opportunities for consumer leadership within the sector. We discuss how allies might do this and avoid paternalism in their allyship.

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Determinants of Engagement in Mental Health Consumer–Run Organizations

Cited by 20 publications

References 49 publications

How do consumer leaders co-create value in mental health organisations?

How do consumer leaders co-create value in mental health organisations?

Participatory Spaces of Mental Health Service User Organizations in the Post-deinstitutional Era: Mapping Roles and Challenges

‘They can't empower us’: The role of allies in the consumer movement

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