Anxiety and depression in adolescents with CF and their caregivers

Besier, Tanja; Goldbeck, Lutz

doi:10.1016/j.jcf.2011.06.012

Cited by 54 publications

(42 citation statements)

References 41 publications

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“…The highest values were perceived on the dimension satisfaction with the family, which is consistent with results of other investigations of families with other chronic conditions (e.g. [7,31]). This indicates that they feel comfortable with the support they have from their partner or friends, but feel restricted in developing their personal interests.…”

Section: Discussionsupporting

confidence: 90%

“…The lowest quartile ( Q .25 ), which splits off the lowest 25% of the data, was selected by the authors as the cut-off for being at risk of impaired or poor PQoL. This cut-off was chosen arbitrarily based on existing literature which suggests that about 20 to 30% of parents who have children with chronic conditions require psychosocial support or treatment (e.g., the international TIDES study [30,31]. …”

Section: Methodsmentioning

confidence: 99%

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Quality of life among parents of children with phenylketonuria (PKU)

Fidika

Salewski

Goldbeck

2013

Health and Quality of Life Outcomes

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BackgroundParents of children with chronic conditions are known to be at risk of impairment in their quality of life (QoL). Studies considering other chronic conditions proposed diverse factors to have an impact on the parent’s QoL. So far, there has been little research on parents who have a child with phenylketonuria (PKU). This study was designed to evaluate the parental quality of life (PQoL) of parents of children and adolescents who have PKU and identify possible predictors of PQoL.MethodsIn this cross-sectional study 89 parents completed self-report measures of PQoL, family stress, social support, and parental coping. To determine the impact of these potential predictors on PQoL, regression and mediation analyses were performed.ResultsMost parents coped well with their children’s metabolic disorder. Family stress (β = −0.42; p < 0.001) and perceived social support (β = 0.33; p = 0.001) were proven to be the most powerful predictors, accounting together for 45% of the variance of PQoL. Social support mediated the association between family stress and PQoL.ConclusionsThe current study indicates that parents of younger children are an especially vulnerable group. Members of health-care teams should be able to identify and empower vulnerable parents to seek and maintain social support.

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Section: Discussionsupporting

confidence: 90%

Section: Methodsmentioning

confidence: 99%

Quality of life among parents of children with phenylketonuria (PKU)

Fidika

Salewski

Goldbeck

2013

Health and Quality of Life Outcomes

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“…Depression, in particular, is linked to worse health outcomes, including quality of life and lung function [106,113,114]. The mechanism of this relationship is likely multifactorial, including decreased adherence and self-management, which are affected negatively by depression [115].…”

Section: Psychological Functioningmentioning

confidence: 99%

Socioeconomic status and health outcomes: cystic fibrosis as a model

Oates

Schechter

2016

Expert Review of Respiratory Medicine

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CF disease progression and outcomes are influenced by a number of nongenetic factors, such as material well-being, educational attainment, living and working conditions, physical environment and exposures, family environment, social support, health behaviors, and health care. This review discusses pathways by which financial, educational, and social resources are translated into health advantages in CF. Expert commentary: To achieve equitable CF outcomes, the contribution of nongenetic factors must be emphasized, highlighting the mechanisms through which the social and physical environments influence disease variability.

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“…Association of depression and anxiety with declining health outcomes of CF has been a major focus in recent years. Several cross-sectional studies have consistently shown that CF patients with anxiety, depression, or both exhibit worsened lung function, nutritional status, and overall quality of life [102][103][104][105]. Specifically, those afflicted with chronic lung conditions and some form of a psychiatric disorder tend to show patterns of worse symptoms and greater functional impairment than those without [106].…”

Section: Cf-related Mental Impairmentsmentioning

confidence: 99%