An international validation study of the EORTC QLQ-INFO25 questionnaire: An instrument to assess the information given to cancer patients

Arrarás, Juan Ignacio; Greimel, Eva; Sezer, Orhan; Chie, Wei‐Chu; Bergenmar, Mia; Costantini, Anna; Young, Teresa; Vlasic, Karin Kuljanic; Velikova, Galina

doi:10.1016/j.ejca.2010.06.118

Cited by 174 publications

(246 citation statements)

References 33 publications

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“…Moreover, issues related to aftercare were mentioned most frequently as topics that endometrial cancer survivors wanted to receive more information about. The means of the EORTC QLQ-INFO25 scores of the endometrial cancer survivors in the current study sample were lower for all of the subscales compared to two validation studies who included cancer survivors with diverse tumor types [23,24].Survivors who were not satisfied with the received information, indicated that they received less information on all information provision subscales, and found the information less helpful than satisfied survivors. Moreover, unsatisfied survivors indicated that they wanted to receive more information than satisfied survivors.…”

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confidence: 73%

“…After linear transformation, all scales and items range in scores from 0 to 100, with higher scores indicating better perceived information provision. The questionnaire has been internationally validated, and internal consistency for all scales is good (a > 0.70), as is test-retest reliability (intraclass correlations > 0.70) [23]. A recent study also showed that the scale structure of the EORTC QLQ-INFO25 is valid [24].…”

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confidence: 99%

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Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

Nicolaije

Husson

Ezendam

et al. 2012

Patient Education and Counseling

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General rightsCopyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.-Users may download and print one copy of any publication from the public portal for the purpose of private study or research -You may not further distribute the material or use it for any profit-making activity or commercial gain -You may freely distribute the URL identifying the publication in the public portal Take down policyIf you believe that this document breaches copyright, please contact us providing details, and we will remove access to the work immediately and investigate your claim. IntroductionEndometrial cancer is the most frequent gynecological cancer in industrialized countries, with an incidence of 15-25 per 100,000 women per year [1,2]. An ageing population with more diagnoses of endometrial cancer, increased risk factors, such as obesity, diabetes, and a lower parity, and more aggressive treatments in advanced disease all have resulted in increasing numbers of endometrial cancer survivors. In 2005, there were about 17,000 endometrial cancer survivors in The Netherlands, and this number is expected to increase to 25,000 in 2015 [3].Patient information is an essential factor in the support for cancer survivors across the whole cancer trajectory. Appropriate information given to cancer survivors about their diagnosis, treatment, possible long-term and late effects and referral services can result in better informed decision making, lower levels of distress, and improved satisfaction with care and sense of control [4][5][6][7]. Cancer survivors who are satisfied with the information they received have a better health related quality of life, and lower levels of depression and anxiety [8]. Studies suggest that most cancer patients want as much information as possible [7,9,10]. However, the information needs of cancer patients differ by gender, age, cultural background, educational level, cancer type, stage of disease (at diagnosis, treatment and follow-up), and coping style [11,12]. Understanding factors associated with information provision might help health care providers to provide more patient-centered information by giving adequate information to those who need it, at the right time [13]. Results: Seventy-seven percent responded (n = 742). Most patients indicated receiving quite a bit information about their disease and medical tests. However, most patients were not (54%) or a little (24%) informed about the cause of their disease, and possible side effects (36%; 27%). Especially information about additional help, rehabilitation, psychological assistance, and expected results on social and sexual life was lacking. Five percent was not or a little (36%) satisfied. Four percent found the information not or a little (35%) helpful. Fifteen percent preferred more information. Younger age, more recent diagnosis, ...

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confidence: 73%

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confidence: 99%

Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

Nicolaije

Husson

Ezendam

et al. 2012

Patient Education and Counseling

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“…This catalog serves as a guideline for recommendations on contents of information for melanoma patients [250][251][252].…”

Section: Weichenthalmentioning

confidence: 99%

Malignant Melanoma S3‐Guideline “Diagnosis, Therapy and Follow‐up of Melanoma”

Pflugfelder

Kochs

Blum

et al. 2013

J Deutsche Derma Gesell

180

148

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“…Because the questionnaire has not previously been used in HCPs, we conducted a confirmatory factor analysis which results confirmed the four scale dimensions of the EORTC QLQ-INFO25. 3 The model w 2 was significant (Po0.0001) and further diagnostic indices indicated an adequate model fit (a comparative fit index of 0.92 and a square error of approximation of 0.06). Cronbach's alpha values for the subscales (range 0.72-0.83), were acceptable.…”

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confidence: 99%

“…Because no measure regarding patient information addressing HCPs is available, we administered the EORTC QLQ-INFO25, a 25 item cancer-specific questionnaire. 3 HCPs were asked to respond to the questions as a typical patient of their centre being one year after HSCT would have done. The EORTC QLQ-INFO25 includes four subscales: information about disease, medical tests, treatment, other services and eight single items (Table 2).…”

mentioning

confidence: 99%

Patient information in stem cell transplantation from the perspective of health care professionals: A survey from the Nurses Group of the European Group for Blood and Marrow Transplantation

Kirsch

Crombez

Calza

et al. 2011

Bone Marrow Transplant

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An international validation study of the EORTC QLQ-INFO25 questionnaire: An instrument to assess the information given to cancer patients

Cited by 174 publications

References 33 publications

Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

Malignant Melanoma S3‐Guideline “Diagnosis, Therapy and Follow‐up of Melanoma”

Patient information in stem cell transplantation from the perspective of health care professionals: A survey from the Nurses Group of the European Group for Blood and Marrow Transplantation

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