Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

Abstract

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Open Issues in Intelligent Personal Health Record – An Updated Status Report for 2012

“…In various countries, one-third to two-thirds of people with a chronic condition are not given a home self-care plan by their healthcare providers [136,137], although such a plan is a critical component to improving or maintaining their health [11,106]. Most patients want detailed self-care information covering a wide range of issues [65,106,110]. When patients receive pamphlets about their health issues from their healthcare providers, the healthcare information provided on these pamphlets is often overly simplified and lacking in details, thereby limiting the usefulness of these pamphlets [71].…”

Development and validation of an individualized survivorship care plan (ISCP) for women with endometrial cancer during the transition of the end of active treatment to the cancer survivorship

“…Studies suggest that WEC do not feel prepared for the post-treatment and cancer survivorship phase (Jones et al, 2012;Nicolaije et al, 2012). Many of these survivors' needs (physical, informational, psychological and social) go unmet (Beesley et al, 2008;Nicolaije et al, 2012;Steele & Fitch, 2008).…”

“…Many of these survivors' needs (physical, informational, psychological and social) go unmet (Beesley et al, 2008;Nicolaije et al, 2012;Steele & Fitch, 2008). Physical needs and long-lasting and late side effects are reported (Abbott-Anderson & Kwekkeboom, 2012;Jones et al, 2012;Vaz et al, 2011;Vollrath, Zenger, Singer, Einenkel & Hinz, 2013).…”

“…Several studies documented the need at the end of active treatment for information on prevention and risks of recurrence, the possibility of secondary cancers and other health problems associated with the treatments and the illness, long-lasting and late side effects, physical and psychological treatment, and psychological and social resources (Brennan, Butow, Spillane, & Boyle, 2010;Greimel, Lahousen, Dorfer, Lambauer, & Lang, 2011;Nicolaije et al, 2012;Papadakos et al, 2012). Moreover, gynecological cancer survivors describe the difficulty of accessing information and resources, as well as the difficulty of communicating with their healthcare professionals (Jones et al, 2012;Nicolaije et al, 2012).…”

“…Moreover, gynecological cancer survivors describe the difficulty of accessing information and resources, as well as the difficulty of communicating with their healthcare professionals (Jones et al, 2012;Nicolaije et al, 2012).…”