An Exploratory Study of the Development and Pilot Testing of an Interactive Visual Tool of Neuropsychological Test Results in Memory Clinics

Gruters, Angélique A A; Ramakers, Inez H.G.B.; Stiekema, Annemarie; Verhey, Frans R.J.; Kessels, Roy P. C.; Vugt, Marjolein E. de

doi:10.3233/jad-201128

Cited by 3 publications

(1 citation statement)

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“…Although we did not measure stigma, some components can be conceived as “stigma-neutralising”( 48 ). For example during diagnosis, use of cognitive assessments to explain assets and reasons for reported concerns to “separate brain from mind” ( 48 ) resonates with a recent qualitative study of neuropsychological-informed communication during diagnostic disclosure ( 52 ). All families received the diagnostic procedure with personalised written information, but this was not enough.…”

Section: Introductionmentioning

confidence: 90%

The memory clinic and psychosocial intervention: Translating past promise into current practices

Moniz–Cook

Mountain

2023

Front. Rehabil. Sci.

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Disproportionate negative effects since the pandemic have amplified the already limited post-diagnostic support for older people with dementia. This paper summarizes an exploratory randomized controlled study of a proactive family-based intervention compared with “usual” post-diagnostic dementia care. Memory clinic practitioners collaborated with the family doctor (GP) to coordinate this. At 12-month follow-up, positive effects on mood, behavior, carer coping and maintenance of care at home were found. Current approaches to deliver post-diagnostic support in primary care may require rethinking since (i) GP workloads have increased with low numbers of GPs per head of population in parts of England; and (ii) unlike many other long-term conditions, ongoing stigma, fear and uncertainty associated with dementia adds to the huge complexity of timely care provision. There is a case for return to a “one-stop facility”, with a single pathway of continuing multidisciplinary coordinated care for older people with dementia and families. Future longitudinal research could compare structured post-diagnostic psychosocial intervention coordinated by skilled practitioners in a single locality memory service “hub”, against other approaches such support organized mostly within primary care. Dementia-specific instruments for outcome measurement are available for use in routine practice, and should be included in such comparative studies.

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Section: Introductionmentioning

confidence: 90%