An exploration of how young people and parents use online support in the context of living with cystic fibrosis

Kirk, Susan; Milnes, Linda

doi:10.1111/hex.12352

Cited by 62 publications

(96 citation statements)

References 54 publications

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“…The study design was based on an online ethnographical, or netnographical, approach previously used by Kirk and Milnes . Netnography applies ethnographic approaches to online behaviour, drawing on publicly accessible online social interactions in the same way that an ethnographer observes human behaviour in the field …”

Section: Methodsmentioning

confidence: 99%

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How a moderated online discussion forum facilitates support for young people with eating disorders

Kendal

Kirk

Elvey

et al. 2016

Health Expectations

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IntroductionYoung people with eating disorders are at risk of harm to their social, emotional and physical development and life chances. Although they can be reluctant to seek help, they may access social media for information, advice or support. The relationship between social media and youth well‐being is an emotive subject, but not clearly understood. This qualitative study aimed to explore how young people used a youth‐orientated, moderated, online, eating disorders discussion forum, run by an eating disorders charity.MethodsWe applied a netnographic approach involving downloading and thematically analysing over 400 messages posted August–November 2012.ResultsData analysis generated five themes: Taking on the role of mentor; the online discussion forum as a safe space; Friendship within the online forum; Flexible help; and Peer support for recovery and relapse prevention. Forum moderation may have influenced the forum culture.DiscussionOur findings are consistent with literature about youth preferences for mental health self‐care support. A young person's decision to use this discussion forum can be construed as pro‐active self‐care. A moderated online discussion forum can make a positive contribution to support for youth with eating disorders, countering negative media perceptions of online groups.ConclusionThis study adds to knowledge about how young people access support via social media. Online discussion forums can be safe and acceptable spaces for youth to access help. Further research could provide insights into the impact of forum moderation.

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Section: Methodsmentioning

confidence: 99%

“…We used a thematic analysis method suitable for qualitative data that enables rich and detailed interpretation . We were mindful that we only had access to constructed identities of the individuals who were commenting, and there was also the unknown impact of forum moderation; both factors are common in netnographic studies …”

Section: Methodsmentioning

confidence: 99%

How a moderated online discussion forum facilitates support for young people with eating disorders

Kendal

Kirk

Elvey

et al. 2016

Health Expectations

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“…This justifies the long time that hospitalized adolescents spend online, 22 which shows the importance of the use of technologies and access to social networking websites to have fun and occupation. 23 Many teenagers, especially those with chronic diseases, use the internet not just to look for information about their condition or find people with a similar diagnosis, but also to keep informed about their social lives and their relationships with friends. 5 When admitted to a hospital, they need to seek normality and participate in activities common to their daily life, even if they are under treatment.…”

Section: Discussionmentioning

confidence: 99%

Use of social networking websites as a care instrument for hospitalized adolescents

et al. 2017

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Objective: This study aimed to understand how social networking websites are used by adolescents and their importance during the hospitalization process. Method: A descriptive and qualitative study was supported by the virtual ethnographic method and resorted to the symbolic interactionism as theoretical framework. Eleven hospitalized adolescents were interviewed. Results:Three categories were identified based on the analysis of interviews and posts: Being able to use social networking websites during hospitalization; Using the Facebook ® chat to keep connected to friends; Seeking support from friends through social networking websites. Final considerations: Facebook ® was the social networking website that adolescents used the most, standing out as an important form of entertainment during hospitalization that facilitates communication and social support.Healthcare professionals should value the use of social networking websites by hospitalized adolescents and encourage access to these tools, providing hospital resources to expand and facilitate this access.Keywords: Adolescent; Hospitalization; Nursing; Social Networking. resumenObjetivo: Este estudio buscó comprender cómo las redes sociales virtuales son utilizadas por adolescentes y su importancia durante el proceso de hospitalización. Método: Estudio cualitativo y descriptivo apoyado en el método de etnografia virtual, utilizando el interacionismo simbólico como referencial teórico. Se realizaron entrevistas con 11 adolescentes hospitalizados.Resultados: A partir del análisis de las entrevistas y de las entradas, identificamos tres categorías: Pudiendo utilizar Facebook ® durante la hospitalización; Utilizando el chat de Facebook ® para mantenerse conectado con los amigos y Buscando el apoyo de los amigos a través de de las redes sociales virtuales. Consideraciones finales: Facebook ® fue la red social más utilizada por los adolescentes, configurándose como una importante forma de entretenimiento durante la hospitalización, facilitando la comunicación y soporte social para los adolescentes. Los profesionales de la salud deben considerar como importante el uso de las redes sociales en línea por los adolescentes hospitalizados, estimulando el acceso y buscando proporcionar recursos para ampliar y facilitar el acceso.

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“…However, it is useful to make a distinction between using social media data to answer a specific health-related question and undertaking research ‘on’ social media. We will draw on a case example of a study that explored how young people and parents used online support in the context of living with cystic fibrosis 5. Exploring how the participants engaged with online support was best met by undertaking virtual observation.…”

Section: Key Considerations When Undertaking Social Media Researchmentioning

confidence: 99%

Social media: the relevance for research

Smith

Milnes

2016

Evid Based Nurs

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An exploration of how young people and parents use online support in the context of living with cystic fibrosis

Cited by 62 publications

References 54 publications

How a moderated online discussion forum facilitates support for young people with eating disorders

How a moderated online discussion forum facilitates support for young people with eating disorders

Use of social networking websites as a care instrument for hospitalized adolescents

Social media: the relevance for research

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