An examination of how adolescent–caregiver dyad illness representations relate to adolescents' reported diabetes self‐management

Gaston, Anca; Cottrell, David; Fullen, Tim

doi:10.1111/j.1365-2214.2011.01269.x

Cited by 26 publications

(40 citation statements)

References 32 publications

(88 reference statements)

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“…[37] Research shows that in children and adolescents, carer beliefs have notable effects on treatment adherence and outcomes. [31,40] Parental beliefs might also shape the illness representations of their children, while the extent of the match between the illness representations of parents and of adolescents might influence adolescents' self-management. [41] In Germany, it is possible for children and adolescents in rehabilitation to be accompanied by a family member.…”

Section: Discussionmentioning

confidence: 99%

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Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

Höhn

Metzner

Waldeck³

et al. 2020

Preprint

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Background:In recent decades, the prevalence of chronic diseases in children and adolescents has increased significantly. Contextual factors play a central role in the self-regulation of chronic diseases. They influence illness and treatment representations, disease management, and health outcomes. While previous studies have investigated the influence of contextual factors on children's beliefs about their illness, little is known about subjective contextual factors of treatment representations of children and adolescents with chronic diseases, especially in the context of rehabilitation. Therefore, the aim of this qualitative analysis was to examine the contextual factors reported by chronically ill adolescents in relation to their treatment representations. Furthermore, we aimed to assign the identified themes to classifications of environmental and personal contextual factors in the context of the ICF.Methods:Between July and September 2018, semi-structured interviews were conducted with N=13 adolescent rehabilitants to explore their rehab-related treatment representations and associated contextual factors. The interviews started with an open narrative question about expectations and beliefs about rehabilitation, followed by further detailed questions. The interviews were recorded on audio tape, transcribed, and analysed using thematic content analysis. Results:Participants raised six themes associated with their rehab-related treatment representations that were interpreted as contextual factors: the living situation before rehabilitation, characterised by school and family problems, few social contacts, and intensive media consumption; the idea of rehabilitation, which mostly came from various people in the adolescent’s social environment; previous solution attempts; rehab pre-experiences; information that the adolescents received from the clinic or sought themselves; and the assumed attitudes of their parents concerning the presumed necessity of rehabilitation and expectations regarding the process and its outcome. All the themes could be assigned to the classification of environmental and personal factors in the context of the ICF for children and youth.Conclusions:Although contextual factors have an important impact on self-regulation, little attention is paid to their investigation. Personal and environmental factors probably influence patients’ treatment representations in terms of expectations and concerns as well as emotions regarding the treatment. Considering contextual factors could lead to the more appropriate allocation of medical care and the better customisation of treatment.

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Section: Discussionmentioning

confidence: 99%

“…[21] The importance of the social environment for children's and adolescents' self-regulation is accounted for by the fact that dyadic illness representations are increasingly investigated. [31][32][33] However, to our knowledge regarding treatment representations those dyadic examinations are still pending.…”

Section: Introductionmentioning

confidence: 99%

Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

Höhn

Metzner

Waldeck³

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…More positive cognitive illness representations are associated with better self-management in adults (Hagger & Orbell, 2003; Halm, Mora, & Leventhal, 2006; Horne & Weinman, 2002) including better perception and presumably better management of symptoms (Ohm & Aaronson, 2006), as well as better medication adherence or self-management (Horne & Weinman, 2002). However, the limited number of studies in adolescents did not evaluate cognitive illness representations of asthma (Bucks et al, 2009; Gaston, Cottrell, & Fullen, 2011; Zugelj et al, 2010). Emotional illness representations (depression, anxiety, anger) have been associated with the self-management behaviors of chronically ill adolescents with hypertension (Zugelj et al, 2010), but they have not been studied in adolescents with asthma as illness representations.…”

Section: Review Of the Literaturementioning

confidence: 99%

Factors Associated with Asthma Self-Management in African American Adolescents

Crowder

Hanna

Carpenter

et al. 2015

Journal of Pediatric Nursing

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“…for diabetes, see Law ; Gaston et al . ; Olsen et al . ) also congruence and dissimilarities in adolescent and parental perceptions about asthma and asthma management have not been systematically addressed.…”

Section: Introductionmentioning

confidence: 99%

Adolescent and parental perceptions about asthma and asthma management: a dyadic qualitative analysis

Heyduck

Bengel

Farin

et al. 2015

Child

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An examination of how adolescent–caregiver dyad illness representations relate to adolescents' reported diabetes self‐management

Abstract: This study emphasizes the important role of significant others illness representations in adolescent self-management of diabetes.

Cited by 26 publications

References 32 publications

Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

Contextual factors of self-regulation in adolescent medical rehabilitation patients—a qualitative study

Factors Associated with Asthma Self-Management in African American Adolescents

Adolescent and parental perceptions about asthma and asthma management: a dyadic qualitative analysis

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