Adolescent and parental perceptions about asthma and asthma management: a dyadic qualitative analysis

Heyduck, Katja; Bengel, Jürgen; Farin, Erik; Glattacker, Manuela

doi:10.1111/cch.12277

Cited by 29 publications

(30 citation statements)

References 32 publications

(34 reference statements)

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“…Adolescents also needed help with transition to self‐care, balancing restrictions with safety, social isolation and loneliness. Families supported this through effective negotiation and communication, fostering positive views about self‐management and treatment …”

Section: Resultsmentioning

confidence: 99%

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Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Vazquez‐Ortiz

Angier

Blümchen

et al. 2020

Allergy

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Background: Adolescence represents a vulnerable time for individuals with asthma and allergic conditions. They suffer an unexpected degree of morbidity. This systematic review aimed to understand the challenges faced by adolescents and young adults with these conditions. Methods: A systematic literature search was undertaken across eight databases. References were checked by two reviewers for inclusion. Study data were extracted, and their quality was assessed in duplicate. A narrative meta-synthesis was undertaken. Results: A total of 108 papers describing 106 studies were retrieved, most focused on asthma. Five themes were identified across studies: (a) Health-related quality of life-impairment was associated with poor disease control, psychosocial issues, adolescent-onset allergic disease and female sex; (b) Psychological factors-asthma and food allergy were associated with anxiety and depression, atopic dermatitis was associated with suicidal ideation, and that parental emotional support may be protective; (c) Adherence-suboptimal adherence was associated with older age, barriers to medication usage, poor symptom perception and failure to take responsibility, and positive factors were routines, simpler treatment regimes, better knowledge and perceptions about medications; (d) Self-management-facilitated by education, knowledge and a positive attitude; and (e) Supportive relationships-families could modify barriers to adherence and foster positive views about self-management, adolescents suggested that their peers should be more involved in supporting them, and adolescents also wished to have support from nonjudgemental healthcare professionals. Conclusions: We have some understanding of the challenges faced by adolescents with asthma, less so for other allergic conditions. This knowledge will be used to support guidelines for managing adolescents.

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Section: Resultsmentioning

confidence: 99%

“…Asthma, allergy and the risk of anaphylaxis have been shown to affect not only the young person but also all family members 84,94,95,102,103 ( Table 7). However, adolescents often do not report asthma symptoms to caregivers.…”

Section: Familiesmentioning

confidence: 99%

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Vazquez‐Ortiz

Angier

Blümchen

et al. 2020

Allergy

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“…The physiological aspects of being a child with asthma involve fear of exacerbations, anxiety and tiredness following asthma symptoms (66). Further, adolescents' and parents' perceptions of asthma and asthma management reflect a wide variety of beliefs, affecting disease-related behavior and emotional perceptions (67).…”

Section: Living With Asthma In Childhood and Adolescencementioning

confidence: 99%

Experiences of living with asthma – a focus group study with adolescents and parents of children with asthma

et al. 2013

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“…The representation of people with ESKD is a relatively unexplored area compared with other diseases such as diabetes and cancer (Parfeni et al 2013). Qualitative research has been conducted into the IP of patients with chronic conditions such as diabetes (Yilmaz-Aslan et al 2014) and hepatitis C (Safo et al 2015) asthma (Heyduck et al 2015). The findings of the aforementioned studies demonstrate the suitability of IP as a framework for understanding people's knowledge and beliefs around chronic conditions.…”

Section: Literature Reviewmentioning

confidence: 99%

Exploring the nature of illness perceptions in people with end‐stage kidney disease

Rees

Chilcot

Donnellan

et al. 2017

Journal of Renal Care

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SUMMARY Background Diagnosis and treatment for End‐Stage Kidney Disease (ESKD) results in vast lifestyle changes. Despite the high prevalence of depression in people with ESKD, the psychosocial impacts of ESKD are still often overlooked. Illness perceptions enable people to make sense of their illness and are closely associated with depression. Due to the high levels of depression within ESKD, this study sought to understand the nature of illness perceptions in people with ESKD. Methodology In this qualitative study, eleven participants were identified through hospital and online patient support groups. Semi‐structured interviews were audio‐taped, transcribed and analysed using grounded theory techniques. Results Three themes emerged from the data: Renal Conflicts, Forced Adjustment and Coping. The main dimensions of illness perception discussed by participants were Consequences, Control, Timeline and Identity. Conclusion The results of this study have practical implications for informing practitioners about the psychosocial effects of ESKD diagnosis and treatment.

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Adolescent and parental perceptions about asthma and asthma management: a dyadic qualitative analysis

Cited by 29 publications

References 32 publications

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Experiences of living with asthma – a focus group study with adolescents and parents of children with asthma

Exploring the nature of illness perceptions in people with end‐stage kidney disease

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