An evaluation of involving family caregivers in the self-care of heart failure patients on hospital readmission: Randomised controlled trial (the FAMILY study)

Deek, Hiba; Chang, Sungwon; Newton, Phillip J.; Noureddine, Samar; Inglis, Sally C.; Arab, Ghina Al; Kabbani, Samer; Chalak, W; Timani, Nadim; Macdonald, P.; Davidson, Patricia M.

doi:10.1016/j.ijnurstu.2017.07.015

Cited by 55 publications

(55 citation statements)

References 40 publications

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“…A retrospective chart review of HF presentations at one governmental hospital presented the readmission rates at 30, 60, and 90 days to be 15%, 22%, and 28%, respectively (Deek, Skouri, & Noureddine, 2016). Interventions conducted to improve HF outcomes included an educational family intervention on self‐care and symptom management (Deek et al, 2017) through a multisite randomized controlled trial. Readmission and mortality were significantly reduced, and self‐care, poor at baseline, was significantly improved 30 days following the intervention (Deek et al, 2017; Deek, Chang, et al, 2016).…”

Section: Heart Failure In Lebanonmentioning

confidence: 99%

The Lebanese Heart Failure Snapshot: A National Presentation of Acute Heart Failure Admissions

Deek

Newton

Kabbani

et al. 2020

J of Nursing Scholarship

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Purpose The purpose of this prospective evaluation is to document in‐hospital management and discharge trends of patients presented for acute heart failure. Design A prospective evaluation of the patients presented for heart failure exacerbation at eight sites over 1 month using the method of the New South Wales Heart Failure Snapshot. Methods Trained personnel situated at each of the study sites recruited eligible patients to the study and collected data on their sociodemographic characteristics, clinical presentation, self‐care, frailty, and depression. Findings Eight sites, out of the 27 contacted, agreed to participate in this study. A total of 137 admissions were reported in the 1‐month time window. Mean age was 72 (SD = 13) years and the majority were female (52%). More than half (n = 60%) had heart failure reduced ejection fraction with a mean ejection fraction of 41%. The mean Charlson Comorbidity Index score was four with hypertension (80%) and diabetes (56%) being the most frequent. The majority were frail (86%), self‐care mean scores were low; self‐care maintenance (29), self‐care management (48) and self‐care confidence (42). The mean depression score was 14 indicating major depression. In reference to international guidelines recommendations, hospital administered medications and discharge medications were suboptimal. Some items of the discharge education recommended by the international guidelines were provided to 84% of the patients but none of the patients received the complete items of the discharge education. Conclusions The snapshot revealed that patients admitted for acute heart failure were frail with high levels of illiteracy and low self‐care scores. Despite these findings, these patients were not provided with complete discharge education in reference to the international guidelines. Additionally, when provided, discharge education was inconsistent across the study sites. This study highlights the need for enlisting complete education as part of the discharge process, in addition to abidance to the guidelines in prescribing medication. The study draws major implications for nursing practice, research and policy. Clinical Relevance Literacy among patients with heart failure is low and should be addressed in educational intervention to improve outcomes. Discharge education is under practiced across the country and should be implemented in accordance with the international guidelines.

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Section: Heart Failure In Lebanonmentioning

confidence: 99%

The Lebanese Heart Failure Snapshot: A National Presentation of Acute Heart Failure Admissions

Deek

Newton

Kabbani

et al. 2020

J of Nursing Scholarship

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“…Family-centred care has been acknowledged internationally, as an essential part of the chronic care model. 14 , 15 , 16 , 17 , 18 , 19 Arguments in favour of FCC have centred on its benefits which include equity in health care delivery, patient safety and improved quality of care. 3 , 20 Other described benefits include reduction of medical costs for both the patient and health care facility, improvement of patient satisfaction and adherence to clinical management plans.…”

Section: Introductionmentioning

confidence: 99%

Perceptions about family-centred care among adult patients with chronic diseases at a general outpatient clinic in Nigeria

Yakubu

Malan

Colon-Gonzalez

et al. 2018

Afr. j. prim. health care fam. med.

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BackgroundFew studies in Africa have described patients’ perceptions about family-centred care (FCC).AimThe aim of this study was to explore perceptions of FCC among patients with chronic diseases.SettingThe study was conducted at a general outpatient clinic (GOPC) in Jos, north-central Nigeria.MethodsWe used a mixed-methods phenomenological study design and conducted structured and semi-structured interviews with 21 adult patients with chronic diseases at a general outpatient clinic in north-central Nigeria.ResultsPatients described FCC using progressive levels of family engagement including the doctor inquiring about history of similar disease in the family, information sharing with family members and fostering of family ties. They described current family involvement in their care as either inquiring about their health, accompanying them to the clinic or offering material or social support and health advice. Also, patients considered the value of FCC based on how it meets information needs of the family, influences individual health behaviour and addresses family dynamics. Those who were literate and older than 50 years of age favoured FCC during history taking. Those who were literate, aged lesser than 50 years and had poor disease control showed preference for FCC during treatment decision-making.ConclusionThe acceptability of FCC is a complex synthesis of age, socio-economic status, literacy and disease outcomes. Patients older than 50 years, with good treatment outcomes, and those without formal education may need further education and counselling on this approach to care.

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“…Many stereotypes, misconceptions and monocultural viewpoints persist in the understanding of family caregivers (Deek et al., ). Data also demonstrate that caregiving can be an isolating and marginalizing experience (Pindus et al., ).…”

mentioning

confidence: 99%

Family caregivers: Important but often poorly understood

Davidson

Abshire

Paull

et al. 2018

Journal of Clinical Nursing

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An evaluation of involving family caregivers in the self-care of heart failure patients on hospital readmission: Randomised controlled trial (the FAMILY study)

Cited by 55 publications

References 40 publications

The Lebanese Heart Failure Snapshot: A National Presentation of Acute Heart Failure Admissions

The Lebanese Heart Failure Snapshot: A National Presentation of Acute Heart Failure Admissions

Perceptions about family-centred care among adult patients with chronic diseases at a general outpatient clinic in Nigeria

Family caregivers: Important but often poorly understood

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