Perceptions about family-centred care among adult patients with chronic diseases at a general outpatient clinic in Nigeria

Yakubu, Kenneth; Malan, Zelra; Colon-Gonzalez, Maria C; Mash, Robert

doi:10.4102/phcfm.v10i1.1739

Cited by 7 publications

(7 citation statements)

References 31 publications

(42 reference statements)

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“…Caregivers and HCWs felt that FCCM strengthened relationships and health information sharing for families, and between family members and HCWs. This finding is similar to a finding in an exploratory, qualitative study among adult patients with chronic diseases in an out-patient department in Nigeria where participants perceived FCCM to foster ‘family ties and to build relationships which includes the doctor as an integral part of the family’ [ 13 ]. Improved family relationships and family-HCW interactions could improve adherence to HIV treatment, retention in HIV care and clinical outcomes for HIV-positive children [ 7 , 8 , 14 ].…”

Section: Discussionsupporting

confidence: 84%

‘There are no more secrets’: acceptability of a family-centered model of care for HIV positive children in Eswatini

Khumalo

Katirayi

Ashburn

et al. 2020

BMC Health Serv Res

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Background HIV-positive children have lagged adults on retention in HIV care and viral suppression. To address this gap, Eswatini’s Ministry of Health started a pilot family-centered HIV care model (FCCM) targeting HIV-positive children under 20 years old and their families. Methods We conducted semi-structured in-depth interviews with 25 caregivers and 17 healthcare workers (HCWs) to assess acceptability of FCCM in four pilot FCCM health facilities in Hhohho region of Eswatini. Thematic analysis with inductive and deductive codes was used to identify salient themes. Results Caregivers and HCWs reported FCCM benefits including strengthening the family bond, encouragement for family members to disclose their HIV status and supporting each other in taking antiretroviral drugs. Caregivers reported that they spent fewer days in clinic, experienced shorter waiting times, and received better counseling services in FCCM compared to the standard-of-care services. FCCM implementation challenges included difficulty for families to attend clinic visits together (e.g., due to scheduling conflicts with weekend Teen Support Club meetings and weekday FCCM appointments). Both HCWs and caregivers mentioned difficulty in sharing sensitive health information in the presence of other family members. HCWs also had challenges with supporting caregivers to disclose HIV status to children and managing the larger group during clinic visits. Conclusions FCCM for HIV-positive children was acceptable to both caregivers and HCWs, and they supported scaling-up FCCM implementation nationally. However, special considerations should be made to address the challenges experienced by participants in attending clinic visits together as a family in order to achieve the full benefits of FCCM for HIV positive children.

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Section: Discussionsupporting

confidence: 84%

‘There are no more secrets’: acceptability of a family-centered model of care for HIV positive children in Eswatini

Khumalo

Katirayi

Ashburn

et al. 2020

BMC Health Serv Res

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“…Most of the articles that met the inclusion criteria for this literature review were done in acute care paediatric settings. This is because little has been documented on involving PGs in adult acute care hospital settings although the practice has been adopted in adult acute care settings in various countries for a long time now ( Khosravan et al, 2014 ; Söderbäck & Christensson, 2008 ; Solum et al, 2012 ; Yakubu et al, 2018 ). More studies should be done in adult acute care hospital settings on this topic to ascertain the facts on PG involvement in adult settings.…”

Section: Implications For Practicementioning

confidence: 99%

“…The presence of PGs and their involvement in caring for acutely ill adult inpatients is a common practice in African countries ( Aziato & Adejumo, 2014 ; Phiri et al, 2017 ; Söderbäck & Christensson, 2008 ; Yakubu et al, 2018 ), the Middle East ( Mobeireek et al, 2008 ), and Asia ( Ito et al, 2010 ). In Europe, the presence of PGs in acute care hospitals is becoming more evident with the increase in the burden of chronic disease and increased life expectancy ( Ambrosi et al, 2017 ; Caporaso et al, 2016 ).…”

Section: Introductionmentioning

confidence: 99%

Family Involvement in Caring for Inpatients in Acute Care Hospital Settings: A Systematic Review of Literature

Gwaza

Msiska

2022

SAGE Open Nursing

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Family members, also known as patients’ guardians (PG) are involved in caring for inpatients in acute care hospital settings. The practice is adopted from Family Centred Care (FCC) approach. This literature review aimed to provide an overview of key findings in literature on the practice of involving PGs in acute care hospital settings We used a systematic literature search to select original research articles or systematic reviews published in English between 2008 and 2019 that discussed PGs in acute care hospital settings. Studies that discussed PGs in long-term care hospital or in-home settings were excluded from this literature review. Literature was sought from CINAHL, MEDLINE, and PsycINFO. CASP and JBI checklist was used to appraise the full-text articles for inclusion in the literature review. Twenty-six articles were included. Findings show that there is limited literature on this topic although healthcare institutions involve PGs in their routine inpatient care. Three themes emerged from the review; the FCC approach, roles of PGs in acute care hospitals, and implications of involving PGs in acute care hospitals. PGs offer any care that is left undone by nurses in acute care hospitals to ensure that their patients’ needs are met. However, their involvement is not consistent with FCC principles. This leads to physical, psychosocial, and economic implications for PGs. We recommend that nurse practitioners should consistently implement FCC principles to enable PGs to offer meaningful care to their inpatients.

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“…It is important to note that SDM does not stand alone, but is one of the principles of person or patient-centeredness. 19,20 No studies on the preferences of patients for SDM have been conducted in South Africa. As there is a large variation in preference between countries and regions, one cannot assume that the South African patients' preference will be similar to recent findings in other countries.…”

Section: Introductionmentioning

confidence: 99%

“…It is important to note that SDM does not stand alone, but is one of the principles of person or patient-centeredness. 19 , 20 …”

Section: Introductionmentioning

confidence: 99%

Do socio-economically disadvantaged patients prefer shared decision-making?

Eales

Smith

2021

South African Family Practice

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Background: Shared decision-making is the process where patients and clinicians work together to make healthcare choices. When given a choice, most patients want to participate in decision-making about their treatment. There is a perception amongst clinicians that socio-economically disadvantaged patients do not want to participate in shared decision-making. This study investigated if patients visiting the Family Medicine Outpatient Clinic at Kalafong Hospital in Gauteng, South Africa, would prefer shared decision-making.Methods: Cross-sectional survey was performed using the Control Preference Scale. Patients visiting the Family Medicine Outpatient Clinic at Kalafong Hospital were purposively selected (n = 150) between February 2016 and May 2016.Results: The patients had a median age of 52 years and 53% did not finish grade 12 at school. Their median income was R3200.00 (South African Rand [ZAR]; less than $200.00) per month. Nearly half (46%) of the patients surveyed had an active preference for shared decision-making during a consultation. No demographic or disease factors had a statistically significant association with this preference.Conclusion: The perception that socio-economically disadvantaged patients do not want to actively participate in shared decision-making is incorrect according to this study. As it is not possible to predict which patients prefer an active approach to shared decision-making, it is recommended that clinicians should enquire whether they would prefer shared decision during consultations. Clinicians should also be equipped to practice this technique and an environment needs to be created that facilitates the process.

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Perceptions about family-centred care among adult patients with chronic diseases at a general outpatient clinic in Nigeria

Cited by 7 publications

References 31 publications

‘There are no more secrets’: acceptability of a family-centered model of care for HIV positive children in Eswatini

‘There are no more secrets’: acceptability of a family-centered model of care for HIV positive children in Eswatini

Family Involvement in Caring for Inpatients in Acute Care Hospital Settings: A Systematic Review of Literature

Do socio-economically disadvantaged patients prefer shared decision-making?

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