An Educational Booklet Diminishes Anxiety in Parents Whose Children Receive Total Parenteral Nutrition

Laine, Laura; Shulman, Robert J.; Bartholomew, Kay; Gardner, Pat; Reed, Theresa; Cole, Sally

doi:10.1001/archpedi.1989.02150150136033

Cited by 8 publications

(11 citation statements)

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“…43,44 Another study showed that informational leaflets significantly decreased anxiety, facilitated patient-staff interactions, and increased satisfaction with patient care better than verbal instruction alone. 45 Although it has been demonstrated clearly that information handouts can be effective educational tools, an important issue is the best way of sharing them with parents. Should handouts be left in waiting rooms, given to parents without additional instruction, or carefully discussed during the office visit?…”

Section: Information Handoutsmentioning

confidence: 99%

Brief Approaches to Educating Patients and Parents in Primary Care

et al. 1998

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ABSTRACT. Purpose. Pediatricians are encouraged by the American Academy of Pediatrics and Bright Futures guidelines to use well-child care as an opportunity to promote learning and development, encourage positive parenting practices, help children acquire behavioral self-control, and enhance the well-being of children and their families. Such counseling can consume considerable provider time. In an era of dwindling resources for health care, there is pressure to deliver services as efficiently and effectively as possible. Thus, the purpose of this article is to view methods for patient and parent education that are not only effective but also brief.Design. Review of 114 articles on issues relevant to patient education.Results and Conclusions. Parents appear to respond best to information that focuses on their specific area of concern. Media, such as advertising campaigns or office posters, can be helpful for broadening parents' range of interests. In response, verbal suggestions are effective for conveying brief, concrete information when parents are not stressed. Written information should be added for addressing more complex issues. Modeling and roleplaying appear especially useful when confronted with problematic parenting or child behavior. These approaches, if selected wisely and applied well, offer families needed assistance that has proven effectiveness in improving children's and families' health and well-being. Pediatrics 1998;101(6). URL: http://www.pediatrics. org/cgi/content/full/101/6/e10; patient education, anticipatory guidance, in-office counseling.

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Section: Information Handoutsmentioning

confidence: 99%

Brief Approaches to Educating Patients and Parents in Primary Care

et al. 1998

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“…Furthermore, nongeneticists are less likely than geneticists to see a need for extensive counseling [Geller and Holtzman, 1995] [Laher et al, 1983] to enhance patient and practitioner understanding. There is evidence that written information can improve patient knowledge [Baker et al, 1991] and satisfaction [Culbertson et al, 1988;Harvey and Plumridge, 1991], and allay anxiety [Laine et al, 1989]. Provision of written materials has been especially recommended for genetic information [Task Force on Genetic Testing, 1996], which is complex, and can lead to social discrimination [Billings et al, 1992;Duster, 1990;Natowicz et al, 1992;Nelkin and Tancredi, 1989;Reilly, 1985] and unanticipated positive and negative psychological impacts [Axworthy et al, 1996;Huggins et al, 1992;Thelin et al, 1985] , 1996].…”

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confidence: 99%

Educational material about genetic tests: Does it provide key information for patients and practitioners?

1997

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Genetic testing for common conditions will be used increasingly in primary care, but resources for patient counseling are decreasing. It is also necessary that primary care practitioners be better equipped to do basic genetic counseling. Therefore, the quality of informational materials for practitioners and patients is important. It was unknown how often key elements recommended by policy groups were actually included in such material. It was our aim to determine the content of printed informational material for practitioners and patients on genetic testing. We performed (1) a telephone survey of organizations in the United States that developed genetic tests or services and (2) a content analysis of pamphlets obtained from these organizations to determine the presence of 10 critical elements necessary to evaluate the appropriateness and performance of the tests. Almost 95% (169/178) of organizations responded to our survey; 131/169 (78%) reported using informational materials. We analyzed 115 pamphlets collected from 125/131 (95%) organizations. Elements least frequently included in the pamphlets were risks and benefits, patient rights, and intended use or purpose of the test. Most frequently included were descriptions of the conditions detected by the test, and the appropriate patients for testing. Nearly one half of the pamphlets included some statement about the accuracy of the test, but most of these did not specify whether their statements referred to sensitivity, specificity, or predictive value. Overall, pamphlets tended to contain information that would aid in determining a patient's eligibility for a genetic test, but did not contain sufficient information about the tests themselves. Our results suggest that several critical elements need to be added to enhance informed choices by patients and physicians.

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“…The initial anxiety level in both groups was estimated to be 45 on the STAI-S[1,4,31-38]. Based on previous research[21], we hypothesized that parents in the story group would return to a “normal” level of anxiety following treatment (i.e., 36 or 37)[29], while those in the comparison group would remain more anxious (i.e., 39 or 40)[29].…”

Section: Sample Sizementioning

confidence: 99%

“…Children’s illness and injury cause parental anxiety[1,2]; major sources of parental anxiety are uncertainty about the condition and its management[3,4]. Providing information about the illness and processes of care has been linked with reduced anxiety and uncertainty as well as greater satisfaction with medical services and more appropriate healthcare utilization[2,4].…”

Section: Introductionmentioning

confidence: 99%

“…Providing information about the illness and processes of care has been linked with reduced anxiety and uncertainty as well as greater satisfaction with medical services and more appropriate healthcare utilization[2,4]. Standard written instructions have been found lacking[5], while alternative formats (such as video presentations, illustrations, or cartoons) have been found to be more effective.…”

Section: Introductionmentioning

confidence: 99%

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A Randomized Controlled Trial of Storytelling as a Communication Tool

et al. 2013

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IntroductionStories may be an effective tool to communicate with patients because of their ability to engage the reader. Our objective was to evaluate the effectiveness of story booklets compared to standard information sheets for parents of children attending the emergency department (ED) with a child with croup.MethodsParents were randomized to receive story booklets (n=208) or standard information sheets (n=205) during their ED visit. The primary outcome was change in anxiety between triage to ED discharge as measured by the State-Trait Anxiety Inventory. Follow-up telephone interviews were conducted at 1 and 3 days after discharge, then every other day until 9 days (or until resolution of symptoms), and at 1 year. Secondary outcomes included: expected future anxiety, event impact, parental knowledge, satisfaction, decision regret, healthcare utilization, time to symptom resolution.ResultsThere was no significant difference in the primary outcome of change in parental anxiety between recruitment and ED discharge (change of 5 points for the story group vs. 6 points for the comparison group, p=0.78). The story group showed significantly greater decision regret regarding their decision to go to the ED (p<0.001): 6.7% of the story group vs. 1.5% of the comparison group strongly disagreed with the statement “I would go for the same choice if I had to do it over again”. The story group reported shorter time to resolution of symptoms (mean 3.7 days story group vs. 4.0 days comparison group, median 3 days both groups; log rank test, p=0.04). No other outcomes were different between study groups.ConclusionsStories about parent experiences managing a child with croup did not reduce parental anxiety. The story group showed significantly greater decision regret and quicker time to resolution of symptoms. Further research is needed to better understand whether stories can be effective in improving patient-important outcomes.Trial RegistrationCurrent Controlled Trials, ISRCTN39642997 (http://www.controlled-trials.com/ISRCTN39642997)

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An Educational Booklet Diminishes Anxiety in Parents Whose Children Receive Total Parenteral Nutrition

Cited by 8 publications

References 10 publications

Brief Approaches to Educating Patients and Parents in Primary Care

Brief Approaches to Educating Patients and Parents in Primary Care

Educational material about genetic tests: Does it provide key information for patients and practitioners?

A Randomized Controlled Trial of Storytelling as a Communication Tool

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