Agreement between People with Aphasia and Their Proxies on Health-Related Quality of Life after Stroke, Using the Greek SAQOL-39g

Ignatiou, Maria; Christaki, Vasiliki; Chelas, Evripidis Nicolaos; Efstratiadou, Evangelia Antonia; Hilari, Katerina

doi:10.4236/psych.2012.39104

Cited by 14 publications

(15 citation statements)

References 27 publications

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“…We did not find a significant difference between the SAQOL-39-TR total scale scores and those of subtests of proxies of individuals with aphasia. These results are in parallel to the results of some research [23,27,28]. However, it differs from results of a research [26], which suggests that psychological conditions of proxies of individuals with aphasia have impact on the agreement between the individual with aphasia and his/her proxy.…”

Section: The Correlation Between Saqol 39-tr Scale Scores Of Proxies Of Individuals With Aphasia and Caregiversupporting

confidence: 73%

“…However, further research is needed on that variable. Ignatiou, et al examined the agreement of the health-related quality of life reports of proxies and those of individuals with aphasia by adapting the SAQOL-39 scale for Greece, it is known as SAQOL-39g [28]. Results of this study were in parallel to those of Hilari, et al [23].…”

Section: Introductionmentioning

confidence: 69%

“…Based on their Caregiver Well-Being Scale's Basic Needs subtest scores of proxies, proxies were divided al. [28]. When the larger groups of participants included in the study, the impact of the variables may be more clearly analyzed.…”

Section: The Correlation Between Saqol 39-tr Scale Scores Of Proxies Of Individuals With Aphasia and Caregivermentioning

confidence: 99%

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2021

Int Arch Nurs Health Care

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Health-related quality of life measures are increasingly used to evaluate after stroke conditions. However, after-stroke people with severe aphasia may not able to self-report on such scales due to the severity of their communication impairment and their proxies report on behalf of them. This research aims to determine the level of agreement between people with aphasia and their proxies on the Turkish Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39-TR). For this purpose, 32 people with aphasia (whose auditory comprehension is good according to Aphasia Language Evaluation Test (ADD)) and their proxies in total 64 people were asked to report onSAQOL-39-TR.Results show that proxy and self-agreement on theSAQOL-39-TR for the total of the scale is excellent (ICC = 0.8); for physical (ICC = 0.7), communication (ICC = 0.6), psycho-social (ICC = 0.6), and energy (ICC = 0.6) subtests, fair to a good degree of agreement is observed. No correlation between the SAQOL-39-TR, and subtests scores, age and gender variables were found for people with aphasia. However, there is a positive correlation between ADD's (Aphasia Language Evaluation Test) auditory comprehension score and communication subtest score of SAQOL-39-TR (r = 0.4; p < 0.05).The study reveals that there is a correlation between Proxies' Caregiver Well-Being Scale scores and SAQOL-39-TR scores (r = 0.446, p < 0.05); communication subtest scores (r = 0.504, p < 0.01); and psycho-social subtest scores (r = 0.483, p < 0.01).

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Section: The Correlation Between Saqol 39-tr Scale Scores Of Proxies Of Individuals With Aphasia and Caregiversupporting

confidence: 73%

Section: Introductionmentioning

confidence: 69%

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2021

Int Arch Nurs Health Care

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“…In a study performed using Greek SAQOL-39 generic version, reports by proxies rater who has regular contact with the patient is capable of providing information similar to that provided by the patient. 17 Therefore, family members or caregivers were encouraged to participate and support in the interview for the subjects with severe aphasia who are incapable of participating in the interview.…”

Section: Methodsmentioning

confidence: 99%

Community Integration and Quality of Life in Aphasia after Stroke

Lee

Choi

et al. 2015

Yonsei Med J

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PurposeTo examine community integration and contributing factors in people with aphasia (PWA) following stroke and to investigate the relationship between community integration and quality of life (QOL).Materials and MethodsThirty PWA and 42 age-and education-matched control subjects were involved. Main variables were as follows: socioeconomic status, mobility, and activity of daily living (ADL) (Modified Barthel Index), language function [Frenchay Aphasia Screening Test (FAST)], depression [Geriatric Depression Scale (GDS)], Community Integration Questionnaire (CIQ) and Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39). Differences between aphasia and control groups and factors affecting community integration and QOL were analyzed.ResultsHome and social integration and productive activity were significantly decreased in the aphasia group compared to the control group; 8.5 and 18.3 points in total CIQ score, respectively. Amount of time spent outside the home and frequency of social contact were also significantly reduced in the aphasia group. Total mean score on the SAQOL-39 was 2.75±0.80 points and was significantly correlated with economic status, gait performance, ADL, depressive mood, and social domain score on the CIQ. Depression score measured by GDS was the single most important factor for the prediction of QOL, but the FAST score was significantly correlated only with the communication domain of the SAQOL-39.ConclusionCommunity activities of PWA were very limited, and depression was highly associated with decreased community integration and QOL. Enhancing social participation and reducing emotional distress should be emphasized for rehabilitation of PWA.

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“…Hence, caution is needed when proxies contribute to QoL assessments. Nonetheless, when patient reports cannot be obtained, proxies can be helpful [ 67 ]. In the current study, the findings indicated that QoL did not significantly change in three participants because of the treatment.…”

Section: Discussionmentioning

confidence: 99%

The Effectiveness of Transcranial Magnetic Stimulation (TMS) Paradigms as Treatment Options for Recovery of Language Deficits in Chronic Poststroke Aphasia

Georgiou

Kambanaros

2022

Behavioural Neurology

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Background. In an effort to boost aphasia recovery, modern rehabilitation, in addition to speech and language therapy (SALT), is increasingly incorporating noninvasive methods of brain stimulation. The present study is aimed at investigating the effectiveness of two paradigms of neuronavigated repetitive transcranial magnetic stimulation (rTMS): (i) 1 Hz rTMS and (ii) continuous theta burst stimulation (cTBS) each as a standalone treatment for chronic aphasia poststroke. Methods. A single subject experimental design (SSED) trial was carried out in which six people with aphasia (PWA) were recruited, following a single left hemispheric stroke more than six months prior to the study. Three individuals were treated with 1 Hz rTMS, and the remaining three were treated with cTBS. In all cases, TMS was applied over the right pars triangularis (pTr). Language assessment, with standardized and functional measures, and cognitive evaluations were carried out at four time points: twice prior to treatment (baseline), one day immediately posttreatment, and at follow-up two months after treatment was terminated. Quality of life (QoL) was also assessed at baseline and two months posttreatment. In addition, one of the participants with severe global aphasia was followed up again one and two years posttherapy. Results. For all participants, both rTMS paradigms (1 Hz rTMS and cTBS) generated trends towards improvement in several language skills (i.e., verbal receptive language, expressive language, and naming and reading) one day after treatment and/or two months after therapy. Rated QoL remained stable in three individuals, but for the other three, the communication scores of the QoL were reduced, while two of them also showed a decline in the psychological scores. The participant that was treated with cTBS and followed for up to two years showed that the significant improvement she had initially exhibited in comprehension and reading skills two months after TMS (1st follow-up) was sustained for at least up to two years. Conclusion. From the current findings, it is suggested that inhibitory TMS over the right pTr has the potential to drive neuroplastic changes as a standalone treatment that facilitates language recovery in poststroke aphasia.

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Agreement between People with Aphasia and Their Proxies on Health-Related Quality of Life after Stroke, Using the Greek SAQOL-39g

Cited by 14 publications

References 27 publications

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Community Integration and Quality of Life in Aphasia after Stroke

The Effectiveness of Transcranial Magnetic Stimulation (TMS) Paradigms as Treatment Options for Recovery of Language Deficits in Chronic Poststroke Aphasia

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