Agreement between parent and child report of quality of life in children with attention‐deficit/hyperactivity disorder

Klassen, Anne F.; Miller, Anton R.; Fine, Stuart

doi:10.1111/j.1365-2214.2006.00609.x

Cited by 129 publications

(151 citation statements)

References 40 publications

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“…When the HRQOL of ADHD children was assessed using the CHQ-PF50, the ES in psychosocial and family-related HRQOL domains were mostly smaller in a study with a non-clinical sample [25] compared to other investigations that used clinical samples [21][22][23][24]. This pattern may be explained through the bias that is associated with utilizing clinical samples (see below).…”

Section: Parent Ratingsmentioning

confidence: 99%

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Health-related quality of life among children with mental disorders: a systematic review

2012

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PURPOSE: To systematically review studies about the quality of life (QOL) of children with various mental disorders relative to healthy controls and to describe limitations in these studies. METH-ODS: Relevant articles were searched using different databases, by checking reference lists and contacting experts. We included articles that either compared children with mental disorders to healthy controls/norm values or made such a comparison possible. RESULTS: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected. The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. CONCLUSIONS: Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps. Results: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected.The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. Conclusions:Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps.

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Section: Parent Ratingsmentioning

confidence: 99%

“…In addition, some of the psychosocial subscales not directly associated with the diagnostic criteria of the particular mental disorder were also compromised (e.g., ADHD: large ES in 'self-esteem' [21][22][23][24]) -a pattern that possibly emerged due to comorbid disorders [8; 21].…”

Section: Parent Ratingsmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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“…For example, children who survived cancer reported higher QoL than healthy children (De Clercq, De Fruyt, Koot, & Benoit, 2004), and children with ADHD rated their QoL significantly higher than their parents did (Klassen, Miller, & Fine, 2006). However, the subjectivity of the evaluation is intrinsic to the concept.…”

Section: Can We Rely On Children's Reports Of Their Qol?mentioning

confidence: 99%

Quality of life in children with OCD before and after treatment

Weidle

Ivarsson

Thomsen

et al. 2014

Eur Child Adolesc Psychiatry

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Barn og ungdom med tvangslidelse (OCD): Komorbiditet og livskvalitet.OCD er kjennetegnet av ubehagelige tvangstanker og tidskrevende tvangshandlinger og forekommer hos 0,5 -3 % av barnebefolkningen. Ubehandlet får lidelsen et kronisk forløp hos 40 -75 %. Hovedmålsettingen for avhandlingen var å belyse to viktige aspekter av OCD: Samtidig forkommende andre tilstander (komorbiditet) og livskvalitet. Komorbiditet i form av autistiske trekk ble undersøkt hos barn og unge med OCD og sammenliknet med en kontrollgruppe fra den generelle befolkningen. Utvalget er hentet fra en svensk OCD klinikk (Göteborg), kontrollgruppen ble rekruttert i en middels stor by fra samme geografiske området. Autistiske symptomer forekom hos omtrent en femtedel av barn og unge med OCD og var dermed mye hyppigere enn i den generelle befolkningen. Allikevel hadde flertallet ikke slike symptomer som tyder på at kombinasjonen av autistiske symptomer og OCD forekommer i en undergruppe, men er ikke et generelt trekk ved OCD. l den internasjonalt pågående debatten om det er empirisk grunnlag for å betrakte tilstander som OCD, Tourettes syndrom, spiseforstyrrelser og autismespekterforstyrrelser som deler av et såkalt Obsessive-Compulsive Spectrum (OCSD) støtter våre resultater ikke klassifikasjon av autismespekterforstyrrelser som del av dette spektrum. At en undergruppe av barn med OCD har autistiske trekk må dog tas i betraktning når man skal skreddersy individuell tilpasset behandling for barn med OCD.Å utforske livskvalitet hos barn og unge med OCD er relevant, fordi det finnes et stort antall studier av livskvalitet hos voksne med OCD, men veldig få undersøkelser hos barn. Livskvalitet ble undersøkt hos barn og unge med OCD som deltok i NordLOTS studien (Nordic Longterm OCD treatment study) og sammenliknet med livskvalitet av skoleelever i Sør-Trøndelag. NordLOTS-studien er en nordisk multisenterstudie hvor enheter som behandler OCD hos barn og ungdom har anvendt samme prosedyre for utredning, behandling og evaluering. Studien har inkludert 135 barn og ungdom i alder 7-17 år med OCD. Pasientene ble behandlet med kognitiv atferdsterapi (KAT) med eksponering i en "standartdose" på 14 timer og ble deretter evaluert. Livskvalitet og sosial kompetanse var betydelig redusert hos barn og ungdom med OCD sammenlignet med den generelle befolkningen. Hos barn med komorbide lidelser beskrev foreldrene lavere livskvalitet enn hos de med bare OCD. Etter behandlingen rapporterte de som hadde effekt av behandlingen en livskvalitet i samme nivå som i den generelle befolkningen, mens de som ikke hadde effekt beskrev ingen forbedring av livskvaliteten. Basert på våre funn anbefales å anvende livskvalitets evaluering i klinikk og forskning for å få med et mål for barns og foreldrenes subjektive opplevelse i vurderingen og dermed en mer helhetlig forståelse av OCD hos barn og unge. Ovennevnte avhandling er funnet verdig til å forsvares offentlig for graden philosophiae doctor (ph.d.). Disputas finner sted i Auditoriet, Medisinsk Teknisk Forskningssenter, fredag 9...

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“…The study of interinformant agreement and factors affecting it remain an important issue in examining children and adolescents. While there are many publications about parent-child agreement on children's quality of life in physical illnesses such as epilepsy [27], asthma [5], cystic fibrosis [11], cancer [20,24,28,29,32], juvenile idiopathic arthritis [2], oral, oro-facial problems [12], there are less in psychiatric illnesses [attention-deficit/ hyperactivity: 3,16] and in general population [6,26,31]. There are only a few that compare ill population to a healthy one in the same study [5,20,28] but their methodology varies greatly, thus making comparison and generalizability difficult.…”

Section: Introductionmentioning

confidence: 99%

“…In this study, however, psychiatric diagnosis was based only on symptom checklist and thus conclusions regarding specific illnesses are not justified. Klassen et al [16] investigated children with attention deficit/hyperactivity disorder and found that parents reported significantly worse QoL for four life domains (behavior, mental health, self esteem, and family cohesion) but better QoL for physical functioning while no difference was found between raters in domains like general health, family activities, and social life. No studies were found about QoL agreement in depressed child populations.…”

Section: Introductionmentioning

confidence: 99%

Assessing quality of life: mother–child agreement in depressed and non-depressed Hungarian

Kiss

Kapornai

Baji

et al. 2009

Eur Child Adolesc Psychiatry

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Purpose: An important question in child psychiatry is the agreement between parents and children. We studied mother–child concordance about the quality of life of children (QoL). We hypothesized that mothers of depressed children rate lower QoL than children for themselves while mothers of non-depressed children rate better QoL; that inter-informant agreement is higher in the non-depressed sample; and finally that agreement increases with age of the child. Methods: QoL of depressed children (N = 248, mean age 11.45 years, SD 2.02) were compared to that of non-depressed children (N = 1695, mean age 10.34 years, SD 2.19). QoL was examined by a 7 item questionnaire (ILK). Results: Mothers of depressed children rated lower QoL than their children while mothers of nondepressed children rated higher QoL than their children. Agreement was low in both samples but higher in the controls. Inter-informant agreement was only influenced by depression. Conclusions: Our results show that mothers relate more serious negative effects to childhood depression than their children and rate less problems for their non-depressed children compared to self-reports. Mother–child agreement is negatively influenced by depression which further stresses the importance of obtaining reports from the child and at least one parent in order to understand the subjective experiences caused by the illness

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Agreement between parent and child report of quality of life in children with attention‐deficit/hyperactivity disorder

Abstract: Although self-report is an important means of eliciting QOL data, in children with ADHD, given the discrepancies in this study between parent and child report, measuring both perspectives seems appropriate.

Cited by 129 publications

References 40 publications

Health-related quality of life among children with mental disorders: a systematic review

Health-related quality of life among children with mental disorders: a systematic review

Quality of life in children with OCD before and after treatment

Assessing quality of life: mother–child agreement in depressed and non-depressed Hungarian

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