Agreement and differences regarding family functioning between patients with acquired brain injury and their partners

Cox, Vincent CM; Mulder, Marijn; Nijland, Rinske; Schepers, Vera P. M.; Wegen, Erwin E. H. van; Heugten, Caroline van; Kwakkel, Gert; Visser‐Meily, Johanna M. A.

doi:10.1080/02699052.2020.1725978

Cited by 9 publications

(17 citation statements)

References 42 publications

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“…37 However, results of a recent study among pwABI and their partners during inpatient and outpatient rehabilitation were highly comparable to our results. 38 Secondly, no clear cutoff score exists for the ALCOS-12. We pragmatically based our cutoff score of 46 on the mean score of 46.3 found in a Dutch community study.…”

Section: Study Limitationsmentioning

confidence: 99%

Self-Efficacy Predicts Personal and Family Adjustment Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others: A Dyadic Approach

Scholten

Visser-Meily

Stolwijk-Swüste

et al. 2020

Archives of Physical Medicine and Rehabilitation

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To investigate whether the combination of self-efficacy levels of individuals with spinal cord injury (SCI) or acquired brain injury (ABI) and their significant others, measured shortly after the start of inpatient rehabilitation, predict their personal and family adjustment 6 months after inpatient discharge. Design: Prospective longitudinal study. Setting: Twelve Dutch rehabilitation centers. Participants: Volunteer sample consisting of dyads (NZ157) of adults with SCI or ABI who were admitted to inpatient rehabilitation and their adult significant others. Interventions: Not applicable. Main Outcome Measures: Self-efficacy (General Competence Scale) and personal and family adjustment (Hospital Anxiety and Depression Scale and McMaster Family Assessment Device General Functioning). Results: In 20 dyads, both individuals with SCI or ABI and their significant others showed low self-efficacy at baseline. In 67 dyads, both showed high self-efficacy. In the low-self-efficacy dyads, 61% of the individuals with SCI or ABI and 50% of the significant others showed symptoms of anxiety 6 months after discharge, vs 23% and 30%, respectively, in the high-self-efficacy dyads. In the low-self-efficacy dyads, 56% of individuals with SCI or ABI and 50% of the significant others reported symptoms of depression, vs 20% and 27%, respectively, in the high-self-efficacy dyads. Problematic family functioning was reported by 53% of the individuals with SCI or ABI and 42% of the significant others in the low-selfefficacy dyads, vs 4% and 12%, respectively, in the high-self-efficacy dyads. Multivariate analysis of variance analyses showed that the combination of levels of self-efficacy of individuals with SCI or ABI and their significant others at the start of inpatient rehabilitation predict personal (VZ0.12; F 6,302 Z2.8; PZ.010) and family adjustment (VZ0.19; F 6,252 Z4.3; P<.001) 6 months after discharge. Conclusions: Low-self-efficacy dyads appear to be more at risk for personal and family adjustment problems after discharge. Screening for selfefficacy may help healthcare professionals to identify and support families at risk for long-term adjustment problems.

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Section: Study Limitationsmentioning

confidence: 99%

Self-Efficacy Predicts Personal and Family Adjustment Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others: A Dyadic Approach

Scholten

Visser-Meily

Stolwijk-Swüste

et al. 2020

Archives of Physical Medicine and Rehabilitation

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“…A mean item score is calculated ranging from 1 to 4, based on 12 items. Perceptions of family functioning can differ and therefore the FAD-GF is administered to both patients and caregivers [ 48 ].…”

Section: Methodsmentioning

confidence: 99%

Can telerehabilitation services combined with caregiver-mediated exercises improve early supported discharge services poststroke? A study protocol for a multicentre, observer-blinded, randomized controlled trial

et al. 2022

Self Cite

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Background Recovery of walking ability is an important goal for patients poststroke, and a basic level of mobility is critical for an early discharge home. Caregiver-mediated exercises could be a resource-efficient strategy to augment exercise therapy and improve mobility in the first months poststroke. A combination of telerehabilitation and face-to-face support, blended care, may empower patient-caregiver dyads and smoothen the transition from professional support to self-management. The Armed4Stroke study aims to investigate the effects of a caregiver-mediated exercise program using a blended care approach in addition to usual care, on recovery of mobility in the first 6 months poststroke. Methods A multicentre, observer-blinded randomized clinical trial in which 74 patient-caregiver dyads will be enrolled in the first 3 months poststroke. Dyads are randomly allocated to a caregiver-mediated exercises intervention or to a control group. The primary endpoint is the self-reported mobility domain of the Stroke Impact Scale. Secondary endpoints include care transition preparedness and psychological functioning of dyads, length of inpatient stay, gait-related measures and extended ADL of patients, and caregiver burden. Outcomes are assessed at enrolment, end of treatment and 6 months follow-up. Results During 8 weeks, caregivers are trained to become an exercise coach using a blended care approach. Dyads will receive a tailor-made, progressive training program containing task-specific exercises focusing on gait, balance, physical activity and outdoor activities. Dyads are asked to perform the training program a minimum of 5 times a week for 30 min per session, supported by a web-based telerehabilitation system with instruction videos and a messaging environment to communicate with their physiotherapist. Conclusions We hypothesize that the Armed4Stroke program will increase self-reported mobility and independence in ADL, facilitating an early discharge poststroke. In addition, we hypothesize that active involvement of caregivers and providing support using blended care, will improve the care transition when professional support tapers off. Therefore, the Armed4Stroke program may complement early supported discharge services. Trial registration Netherlands Trial Register, NL7422. Registered 11 December 2018.

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“…It is possible to determine the functioning of an entire family using average FAD scores for all family members aged ≥12 years (Alonso FAMILY FUNCTIONING IN KIDNEY TRANSPLANTATION et al, 2008). Alternatively, the FAD can be used individually to examine differences within a family, regardless of whether the family members live together or not (Cox et al, 2020;Staccini et al, 2015). Several previous studies have used this approach (Cox et al, 2020;Pedersen et al, 2019).…”

Section: Study Variablesmentioning

confidence: 99%

Family functioning before kidney transplantation from living-related donors: Perspectives of donors and recipients in Japan.

Kamba,

Kobayashi,

Akaho

et al. 2024

Families, Systems, & Health

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In Japan, approximately 90% of kidney transplantations involve living donors who are relatives. Selection of a living donor from potential family member donors could affect the entire family. However, reports focusing on preliving-related kidney transplant (LRKT) family functioning are lacking. Family functioning comprises ways that family members communicate and cooperate with each other. The Family Assessment Device (FAD) was used to measure family functioning from the perspective of donors and recipients just prior to LRKT. Method: A total of 122 donor-recipient pairs (244 participants in total) who planned to have LRKT were recruited consecutively from July 2020 to July 2021 and included in the analysis. Results: There was no significant difference in FAD scores between donors and recipients, with approximately 20% of both groups reporting poor family functioning. Differences in family functioning according to types of relatives were shown in recipients. The rate of poor family functioning was significantly lower in the spouse group than in the parent-to-child group (recipient: 6.6%, 29.3%; donor: 8.2%, 34.1%, respectively). However, agreement regarding good or poor family functioning assessment was high in the parent-to-child pairs and low in the spouse pairs. Discussion: Most LRKT donors and recipients reported good family functioning; however, some perceived poor family functioning. Evaluations by donors did not always align with that of recipients, especially among spouse pairs. It is important to treat them as independent entities. Preoperative assessment to connect them with appropriate support can enhance recovery after LRKT.

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Agreement and differences regarding family functioning between patients with acquired brain injury and their partners

Cited by 9 publications

References 42 publications

Self-Efficacy Predicts Personal and Family Adjustment Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others: A Dyadic Approach

Self-Efficacy Predicts Personal and Family Adjustment Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others: A Dyadic Approach

Can telerehabilitation services combined with caregiver-mediated exercises improve early supported discharge services poststroke? A study protocol for a multicentre, observer-blinded, randomized controlled trial

Family functioning before kidney transplantation from living-related donors: Perspectives of donors and recipients in Japan.

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