Addendum to the Acknowledgements: How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities

Joglekar, Sagar; Sastry, Nishanth; Coulson, Neil; Taylor, Stephanie J C; Patel, Anita; Duschinsky, Robbie; Anand, Amrutha; Evans, Matt Jameson; Griffiths, Chris; Sheikh, Aziz; Panzarasa, Pietro; Simoni, Anna De

doi:10.2196/11564

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“…22 23 Building on: (a) current evidence on digital social interventions; (b) our previous work on the Asthma+Lung UK (ALUK) OHC and (c) patient and public involvement (PPI) activities, we hypothesise that engagement with OHCs promoted by primary care clinicians can enhance the self-management of asthma and ultimately reduce the burden on healthcare systems and providers. [24][25][26][27] As part of a larger research programme, 28 our aim is to design, implement and evaluate an intervention, delivered by primary care clinicians, based on a structured consultation for adults with asthma to encourage engagement with the ALUK OHC.…”

Section: Open Accessmentioning

confidence: 99%

Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol

et al. 2023

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IntroductionIn the UK, approximately 4.3 million adults have asthma, with one-third experiencing poor asthma control, affecting their quality of life, and increasing their healthcare use. Interventions promoting emotional/behavioural self-management can improve asthma control and reduce comorbidities and mortality. Integration of online peer support into primary care services to foster self-management is a novel strategy. We aim to co-design and evaluate an intervention for primary care clinicians to promote engagement with an asthma online health community (OHC). Our protocol describes a ‘survey leading to a trial’ design as part of a mixed-methods, non-randomised feasibility study to test the feasibility and acceptability of the intervention.Methods and analysisAdults on the asthma registers of six London general practices (~3000 patients) will be invited to an online survey, via text messages. The survey will collect data on attitudes towards seeking online peer support, asthma control, anxiety, depression, quality of life, information on the network of people providing support with asthma and demographics. Regression analyses of the survey data will identify correlates/predictors of attitudes/receptiveness towards online peer support. Patients with troublesome asthma, who (in the survey) expressed interest in online peer support, will be invited to receive the intervention, aiming to reach a recruitment target of 50 patients. Intervention will involve a one-off, face-to-face consultation with a practice clinician to introduce online peer support, sign patients up to an established asthma OHC, and encourage OHC engagement. Outcome measures will be collected at baseline and 3 months post intervention and analysed with primary care and OHC engagement data. Recruitment, intervention uptake, retention, collection of outcomes, and OHC engagement will be assessed. Interviews with clinicians and patients will explore experiences of the intervention.Ethics and disseminationEthical approval was obtained from a National Health Service Research Ethics Committee (reference: 22/NE/0182). Written consent will be obtained before intervention receipt and interview participation. Findings will be shared via dissemination to general practices, conference presentations and peer-reviewed publications.Trial registration numberNCT05829265.

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Section: Open Accessmentioning

confidence: 99%

Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol

et al. 2023

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“…Research on OHCs in China is still in its infancy [7]. Previous studies mainly focus on knowledge-sharing behavior [8][9][10], social communication [11][12][13][14], and social support behavior in the continuous usage of OHCs [15][16][17]. Less discussion of factors that affect the continuous usage of OHCs caused it difficult for community managers to grasp the critical influencing factor and maintain OHCs' ongoing development.…”

Section: Introductionmentioning

confidence: 99%

Factors Affecting Users’ Continuous Usage in Online Health Communities: An Integrated Framework of SCT and TPB

2023

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Background: Online health communities (OHCs) provide a new channel for users to obtain more health-related information and support, playing an important role in alleviating hospital congestion and uneven medical resource distribution, especially during the COVID-19 pandemic in China. An in-depth study of users’ continuous usage is of great value for the long-term development of OHCs. Objective: The purpose of this study is to explore the factors that influence users’ continuous usage in online health communities based on the theory of planned behavior (TPB) and social cognitive theory (SCT). Methods: Data from 480 users with experience in online health communities were collected through a questionnaire survey, and structural equations were applied to verify the model hypotheses empirically. Results: Self-efficacy and controllability have significant effects on users’ continuous intention; attitude has a significant relationship with continuous intention; social norms have a positive effect on continuous intention. Moreover, the relationship between continuous intention and behavior is positive. Self-efficacy and outcome expectations have significant positive associations with continuous usage. Finally, system quality, information quality, and social interaction ties have significant and positive relationships to continuous usage. Conclusion: To improve the level of user’s continuous usage, online health service providers can improve the quality of the community by organizing the website’s page layout, navigation menus, and site elements to ensure users quickly search and find what they want meanwhile try to change people’s cognition gradually, in addition, decision and policymakers should provide more favorable policies to stimulate and help provider in building and managing strategic plans for sustaining a thriving online community. A supportive climate in society through public service advertisements and others for the sake of OHCs is necessary. Limitations: (1) This study collected data through a cross-sectional survey. Thus, it lacked the process of capturing the changes in participants’ attitudes toward all variables. (2) The environmental factors in SCT theory need to be more comprehensive, containing online factors without offline factors. (3) The dates were obtained from China, which neglects the different cultural content.

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Addendum to the Acknowledgements: How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities

Cited by 2 publications

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Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol

Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol

Factors Affecting Users’ Continuous Usage in Online Health Communities: An Integrated Framework of SCT and TPB

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