Adapting to domiciliary non-invasive ventilation in chronic obstructive pulmonary disease: A qualitative interview study

Gale, Nicola; Jawad, Maryam; Dave, Chirag; Turner, Alice

doi:10.1177/0269216314558327

Cited by 18 publications

(38 citation statements)

References 24 publications

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“…The findings of this study support those of Gale et al (2015) whose study describes the process of COPD patients’ adaptation to non-invasive ventilation and calls for changes in education and practical support to better facilitate adaptation to that particular therapy. The implications in relation to LTOT are that patient and partner education that not only focuses on the practicalities and positives of device use but also adequately addresses psychological and social issues associated with using oxygen concentrators may better prepare couples to manage their expectations and facilitate accepting the device into their lives.…”

Section: Discussionsupporting

confidence: 79%

The experience of couples being given an oxygen concentrator to use at home: A longitudinal interpretative phenomenological analysis

2015

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This longitudinal study explores the lived experience of four couples where one person from each couple is prescribed an oxygen concentrator to use at home. Transcripts were analysed using interpretative phenomenological analysis. The findings reported here focus on two super-ordinate themes: ‘the journey of acceptance’ and ‘negotiating changing relationships’. Participants described a gradual process of accepting the device into their lives, the impact on couple’s relationships and the role that expectations have in mediating that process. These themes suggest that patient education that considers the psychological and social issues may prove useful in facilitating the acceptance process.

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Section: Discussionsupporting

confidence: 79%

The experience of couples being given an oxygen concentrator to use at home: A longitudinal interpretative phenomenological analysis

2015

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“…In most cases, children on LTV, both via tracheostomy and mask interfaces, report the burden of care as mild or moderate 19. While adult qualitative studies suggest acceptance among patients in whom LTV offers symptomatic relief or is essential for survival,20 some patients with neuromuscular disease have expressed hopelessness, related to their diagnosis rather than to the burden of LTV 21…”

Section: Patient and Family Considerationsmentioning

confidence: 99%

“…Despite this, the discomfort caused may still be preferable to having their life limited. Adult patients who had negative views of LTV accepted it once they realised the consequence of refusal 20. It is also important to remember physicians4 21 22 and even caregivers19 tend to underestimate quality of life scores in patients on LTV.…”

Section: Patient and Family Considerationsmentioning

confidence: 99%

Towards developing an ethical framework for decision making in long-term ventilation in children

et al. 2018

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The use of long-term ventilation (LTV) in children is growing in the UK and worldwide. This reflects the improvement in technology to provide LTV, the growing number of indications in which it can be successfully delivered and the acceptability of LTV to families and children. In this article, we discuss the various considerations to be made when deciding to initiate or continue LTV, describe the process that be followed, as decided by a consensus of experienced physicians, and outline the options available for resolution of conflict around LTV decision making. We recognise the uncertainty and hope provided by novel and evolving therapies for potential disease modification. This raises the question of whether LTV should be offered to allow time for a therapy to be trialled, or whether the therapy is unlikely to be effective, LTV would simply prolong suffering. We put this consensus view forward as an ethical framework for decision making in children requiring LTV.

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“…Fear Fear in people undergoing NIV treatment was a recurrent theme. In all but four studies [38,40,42,51], participants expressed a fear of being on NIV. From the studies, it appears there are a number of factors, which triggers fear in people with HRF undergoing NIV, which may lead to NIV rejection.…”

Section: Benefits Of Nivmentioning

confidence: 99%

Experiences of noninvasive ventilation in adults with hypercapnic respiratory failure: a review of evidence

2016

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Noninvasive ventilation (NIV) has been shown to be beneficial for patients with respiratory failure; however, many patients fail to tolerate it and require other interventions. The objective of this thematic synthesis was to describe the nature of NIV experiences in adults with hypercapnic respiratory failure. A systematic, computerised literature search of English-language databases was undertaken with no restriction on date of publication. A total of 99 papers was identified and screened for eligibility from databases including CINAHL, Medline and PsycINFO, and some were hand searched. 45 papers were critically appraised and 32 met our inclusion criteria. Thematic analysis identified six key themes: benefits of NIV; fear (of various categories, namely, fear of technology/mask, fear of death and dying, and fear of pain and suffering); adaptation to NIV machine; decision making; need for information; and relationship with healthcare professionals. For people using NIV treatment, the experience of being on the NIV machine is unexpected and can be stressful. Findings from this review offer healthcare professionals insights and understanding into the patient experience of NIV. Healthcare professionals may use these findings to implement new strategies in NIV provision and the exploration of the applicability of age-specific supportive care NIV guidelines.

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Adapting to domiciliary non-invasive ventilation in chronic obstructive pulmonary disease: A qualitative interview study

Cited by 18 publications

References 24 publications

The experience of couples being given an oxygen concentrator to use at home: A longitudinal interpretative phenomenological analysis

The experience of couples being given an oxygen concentrator to use at home: A longitudinal interpretative phenomenological analysis

Towards developing an ethical framework for decision making in long-term ventilation in children

Experiences of noninvasive ventilation in adults with hypercapnic respiratory failure: a review of evidence

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