Adaptation of the Manchester-Minneapolis Quality of Life instrument for use in the UK population

Hutchings, Hayley; Upton, Penney; Cheung, WY; Maddocks, Alison; Eiser, Christine; Williams, John; Russell, Ian; Jackson, Sonia; Jenney, Meriel

doi:10.1136/adc.2006.098947

Cited by 20 publications

(23 citation statements)

References 26 publications

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“…HRQoL of adolescents with cancer has been measured using the instruments used in this study, but none of these reports included measuring HRQoL at the time of cancer diagnosis. In addition, previous studies did not include patients with OS or AML (Meeske, et al, 2004) or their inclusion could not be determined as all reports from pediatric oncology patients (children and adolescents) were presented only in total group scores (Hutchings, et al, 2007; Razzouk, et al, 2006; Varni, 2004; Varni, 2007a). …”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia

Hinds

Billups

Cao

et al. 2009

European Journal of Oncology Nursing

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Although measuring health-related quality of life (HRQoL) in adolescents with cancer helps clinicians to personalize care for their patients, no previous studies have included HRQoL measurement at the time of diagnosis of osteosarcoma (OS) or acute myeloid leukemia (AML). The purpose of this study was to evaluate the feasibility of measuring adolescents' HRQoL at the time of their diagnosis of OS or AML, and to compare their ratings with those of their parents and of similarly diagnosed but younger patients aged 8- to 12- years. Participants included 126 patients (79 adolescents) and 130 parents (78 parents of adolescents); most completed the HRQoL instrument/s within 48 hours of the first chemotherapy cycle. Ninety-three percent of adolescents diagnosed with OS and 93% of those diagnosed with AML completed the HRQoL instruments. Agreement between the adolescents and their parents ranged from 0.29 to 0.71 (OS) and 0.44 to 0.62 (AML). In all domains, OS adolescents had significantly lower PedsQL v.4.0 scores than adolescents with AML. Our findings demonstrates the feasibility of measuring HRQoL in adolescents with OS or AML (and their parents) at the time of diagnosis, and thus their HRQoL ratings can be used to inform their cancer care from diagnosis forward.

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Section: Introductionmentioning

confidence: 99%

Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia

Hinds

Billups

Cao

et al. 2009

European Journal of Oncology Nursing

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“…In addition, one author we emailed provided an additional citation [47] resulting in a total of 28 articles that discussed the development and psychometric evaluation of 16 disease-specific QOL instruments. Eleven instruments [22][23][24][25][26][27][28][29][30][31][32][33][34][35][36][39][40][41][42][43][44][45][46][47] are applicable to measuring QOL in children with any type of cancer, and two [37,38] are specific to children with brain cancer. Four instruments [22][23][24][25]46] can be used to measure QOL in children undergoing cancer treatment (one is specific to stem cell transplantation (SCT) [23], and another is specific to bone marrow transplantation (BMT) [22,46]), six [20, 21, 30-37, 39, 40, 42-45, 47] can be used to measure QOL of children on or off treatment, and three [26-29, 38, 41] are specific to childhood cancer survivors.…”

Section: Resultsmentioning

confidence: 99%

“…Comparisons made between both child-report versions and other measures of similar constructs supported hypothesized relationships [26,27]. The MMQL-UK child form [28] and MMQL-UK parent form [29] have been validated for use in the United Kingdom as generic measures of QOL that can be used with healthy children and those with chronic conditions (i.e., not just children with cancer).…”

Section: Minneapolis-manchester Quality Of Life Instrumentmentioning

confidence: 95%

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Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures

Klassen

Strohm

Maurice‐Stam

et al. 2009

Support Care Cancer

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“…For a number of common gastrointestinal disorders, including gastroesophageal reflux disease, irritable bowel syndrome, and inflammatory bowel disease, validated tools are readily available [1][2][3][4][5][6]. This is not the case for esophageal dysphagia.…”

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confidence: 99%

The Mayo Dysphagia Questionnaire-30: Documentation of Reliability and Validity of a Tool for Interventional Trials in Adults with Esophageal Disease

et al. 2009

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The aim of this study was to develop the Mayo Dysphagia Questionnaire-30 Day (MDQ-30), a tool to measure esophageal dysphagia, by adapting items from validated instruments for use in clinical trials, and assess its feasibility, reproducibility, and concurrent validity. Outpatients referred to endoscopy for dysphagia or seen in a specialty clinic were recruited. Feasibility testing was done to identify problematic items. Reproducibility was measured by test-retest format. Concurrent validity reflects agreement between information gathered in a structured interview versus the patients' written responses. The MDQ-30, a 28-item instrument, took 10 min (range = 5-30 min) to complete. Four hundred thirty-one outpatients [210 (49%) men; mean age = 61 years] participated. Overall, most concurrent validity kappa values for dysphagia were very good to excellent with a median of 0.78 (min 0.28, max 0.95). The majority of reproducibility kappa values for dysphagia were moderate to excellent with a median kappa value of 0.66 (min 0.07, max 1.0). Overall, concurrent validity and reproducibility kappa values for gastroesophageal reflux disease (GERD) symptoms were 0.81 (95% CI = 0.72, 0.91) and 0.66 (95% CI = 0.55, 0.77), respectively. Individual item percent agreement was generally very good to excellent. Internal consistency was excellent. We conclude that the MDQ-30 is an easy-to-complete tool to evaluate reliably dysphagia symptoms over the last 30 days.

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Adaptation of the Manchester-Minneapolis Quality of Life instrument for use in the UK population

Abstract: The anglicised and shortened MMQL was shown to be valid and reliable and could be a valuable new tool for the assessment of HRQL in children.

Cited by 20 publications

References 26 publications

Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia

Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia

Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures

The Mayo Dysphagia Questionnaire-30: Documentation of Reliability and Validity of a Tool for Interventional Trials in Adults with Esophageal Disease

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