Abstract:The aim of this study was to develop a culturally adapted and validated Bangla version of Zarit Burden Interview (ZBI-B) questionnaire for use in Bangla speaking caregiver of patient with dementia. This study was conducted on 100 caregivers related to consecutively attending outpatients with a previously established primary diagnosis of dementia, according to DSM-IV criteria. Validity and reliability were evaluated by comparing with the caregiver burden inventory (CBI). An exploratory factor analysis with the … Show more
“…The Zarit-MOR factor analysis extracted seven principal components with an eigenvalue ≥1, which explain 77.838% of the total variance. These results are close to the Bengali version of Zarit scale indicating that six components with an eigenvalue ≥1 represent 69% of the total variance [11].…”
Section: Discussionsupporting
confidence: 78%
“…The alpha coefficient of this study was low because the investigation was conducted in a single medical center in a single geographical area and with caregivers of patients with a different disease. Similarly, in [11], a Bengali version realized with 100 caregivers of patients with dementia. This study found an alpha and ICC coefficient of 0.8 respectively.…”
The management of chronic diseases in general and neurological diseases in particular, given their complex nature, requires an increasing involvement of families. For this reason, several studies have attempted to describe the burden and needs of family dementia caregivers of patients with dementia around the world based on the ZaritAA scale. Because of its relevance, it has been translated and validated in many contexts around the world. However, there does not seem to be a valid Moroccan Arabic dialect version suitable for research in the Moroccan socio-cultural environment according to the scientific literature.
Objective: Adapt and validate a Moroccan dialect version of Zarit (Zarit-MOR).
Method:The Arabic translation of the Zarit scale was obtained. The prefianl version was then revised by a committee of experts, then tested out on a group of 34 participants, befor arriving at the final version. The Reliability was assessed using the intraclass correlation coefficient (ICC). Internal consistency was assessed using Cronbach's alpha.
Results:The adapted version of the Zarit scale was 100% acceptable. The statistical analysis of Cronbach's alpha coefficients shows a high internal correlation of the scale (0.88) among the caregivers, of whom 66.7% were female with a mean age of 47.17 years (SD±14.2 years). The Moroccan version shows a very good reliability with an intraclass correlation coefficient ICC of 0.87 [0.79-0.92].
Conclusion:The adapted version can be used reliably in Morocco, which will make it possible to assess the experiences of Moroccan informal caregivers in the face of dementia, as well as other chronic diseases.
“…The Zarit-MOR factor analysis extracted seven principal components with an eigenvalue ≥1, which explain 77.838% of the total variance. These results are close to the Bengali version of Zarit scale indicating that six components with an eigenvalue ≥1 represent 69% of the total variance [11].…”
Section: Discussionsupporting
confidence: 78%
“…The alpha coefficient of this study was low because the investigation was conducted in a single medical center in a single geographical area and with caregivers of patients with a different disease. Similarly, in [11], a Bengali version realized with 100 caregivers of patients with dementia. This study found an alpha and ICC coefficient of 0.8 respectively.…”
The management of chronic diseases in general and neurological diseases in particular, given their complex nature, requires an increasing involvement of families. For this reason, several studies have attempted to describe the burden and needs of family dementia caregivers of patients with dementia around the world based on the ZaritAA scale. Because of its relevance, it has been translated and validated in many contexts around the world. However, there does not seem to be a valid Moroccan Arabic dialect version suitable for research in the Moroccan socio-cultural environment according to the scientific literature.
Objective: Adapt and validate a Moroccan dialect version of Zarit (Zarit-MOR).
Method:The Arabic translation of the Zarit scale was obtained. The prefianl version was then revised by a committee of experts, then tested out on a group of 34 participants, befor arriving at the final version. The Reliability was assessed using the intraclass correlation coefficient (ICC). Internal consistency was assessed using Cronbach's alpha.
Results:The adapted version of the Zarit scale was 100% acceptable. The statistical analysis of Cronbach's alpha coefficients shows a high internal correlation of the scale (0.88) among the caregivers, of whom 66.7% were female with a mean age of 47.17 years (SD±14.2 years). The Moroccan version shows a very good reliability with an intraclass correlation coefficient ICC of 0.87 [0.79-0.92].
Conclusion:The adapted version can be used reliably in Morocco, which will make it possible to assess the experiences of Moroccan informal caregivers in the face of dementia, as well as other chronic diseases.
“…Other named factors include: 'embarrassment/anger', 'patient's dependency', 'captivity', 'loss of control' and 'guilt'/'self-criticism'/'inadequacy' (Cheng et al, 2014;Flynn Longmire & Knight, 2011;Rabin et al, 2016;Torres et al, 2012). Comparatively, in the aforementioned studies, the numbers of factors reported in studies from developing country settings appear to be greater than those from developed countries.…”
Our world is in the throes of a 'longevity revolution'; the planet's population is ageing (United Nations Department of Economic & Social Affairs, 2019). By 2050, 1.1 billion older persons-more than two-thirds of the world's older population-will reside in developing countries. With population ageing, there are substantive shifts in mortality and morbidity risks, health status, activity level and type and socioeconomic profile of older persons; these becoming more evident in recent decades (United Nations Department of Economic & Social Affairs, 2019). In some older persons, morbidity and mortality risks become manifest as impairments/disability and reduced
“…Initially, a baseline study was conducted to assess the caregiving burden among female informal caregivers of cancer patients. Subsequently, in this study, individual caregivers are enrolled based on their experiences with mild-to-moderate, moderate-to-severe, and severe burdens, as determined using the Bangla version of the Zarit Burden Interview (ZBI)-22 [ 22 ]. The inclusion criteria were as follows: females aged 18 years or older and those who have been providing care to a cancer-diagnosed patient for at least six months.…”
Section: Methodsmentioning
confidence: 99%
“…Data on caregivers' sociodemographic characteristics includes age, marital status, education level, employment status, monthly family income, presence of chronic diseases, relationship with the patient, duration of caregiving (months), and daily caregiving time (hours). Moreover, the ZBI-22 [ 22 ], Hospital Anxiety Depression Scale (HADS) [ 24 ], and World Health Organization Quality of Life Instrument (WHOQOL-BREF) [ 25 ] will be used to assess the level of burden, anxiety, depression, and QOL, respectively, all of which were validated and adopted in the local language, Bengali.…”
Background: Chronic and noncommunicable diseases, including cancer, are a significant global public health concern. Family members or friends who serve as caregivers significantly contribute to supporting cancer patients without formal medical training. In most cases in Bangladesh, women perform caregiving activities with household responsibilities and lack adequate support from the family and healthcare systems; consequently, they face a significant burden as caregivers. This study aims to assess the effectiveness of combined mobile health (mHealth) psychoeducation and the Benson relaxation technique (BRT) on the caregiving burden among female informal caregivers of cancer patients in Bangladesh.Methods: We shall conduct a prospective, open-label, two-arm (1:1), randomized controlled trial in a hospital, focusing on the burden of informal female caregivers of cancer patients in Bangladesh. The combined intervention will be delivered to the intervention group through mHealth starting April 2024 and will span six months. Participants' data will be collected through face-to-face interviews using the Zarit Burden Interview (ZBI), the Hospital Anxiety Depression Scale, and the World Health Organization Quality of Life Bangla Short Instrument. Outcomes will be assessed at the baseline, midline, and endline. We shall employ descriptive statistics such as frequencies, percentages, means, and standard deviations. The t-test or Mann-Whitney U test will be used to compare continuous variables. Additionally, a two-way repeatedmeasures analysis of variance will be employed to evaluate the outcomes.Results: Participant enrollment began in January 2024, and recruitment is ongoing. The results of this study will be disseminated through publications and conferences. No external professional writers were involved in writing this manuscript.Conclusion: This study addresses the gap in the assessment of combined interventions for caregiver burden in Bangladesh. These outcomes may provide valuable insights into caregivers' well-being, caregiving responsibilities, and the potential for integrated interventions to reduce the burden, especially among women. If effective, we recommend the national integration of psychoeducation and BRT using mHealth.
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