Adaptation and Development of a Health Insurance Education Program for Adolescent and Young Adult Cancer Patients

Lopez, Perla L. Vaca; Waters, Austin R.; Berghuijs, Karely M van Thiel; Anderson, J.; Ray, Nicole; Tsukamoto, Tomoko; Kaddas, Heydon K.; Fair, Douglas; Lewis, Mark A.; Park, Elyse R.; Perez, Giselle K.; Kirchhoff, Anne C.

doi:10.1089/jayao.2022.0103

Cited by 2 publications

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“…Further information on HIAYA CHAT's development and protocol are reported elsewhere. 23,25 The sessions were delivered by a trained patient navigator who had over 2 years of AYA navigation experience. The navigator completed several trainings in cancer, insurance, and financial navigation from national organizations such as the George Washington Cancer Center, Triage Cancer, and the Association of Community Cancer Centers.…”

Section: Methodsmentioning

confidence: 99%

“…Session content included information on health insurance terminology, learning about insurance structures that can affect costs (eg, in-network v out-of-network coverage), navigating one's insurance plan (eg, reading summary of benefits), insurance-related laws including the ACA, and managing care costs and budgeting. 23,25 Participants also received an insurance booklet based on the session material.…”

Section: Methodsmentioning

confidence: 99%

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Health Insurance Literacy Improvements Among Recently Diagnosed Adolescents and Young Adults With Cancer: Results From a Pilot Randomized Controlled Trial

Kirchhoff,

van Thiel Berghuijs,

Waters

et al. 2024

JCO Oncol Pract

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PURPOSE Adolescents and young adults (AYAs; age 18-39 years) with cancer report needing support with health insurance. We conducted a pilot randomized controlled trial to assess the feasibility and acceptability of a virtual health insurance navigation intervention (HIAYA CHAT) to improve health insurance literacy (HIL), awareness of Affordable Care Act (ACA) protections, financial toxicity, and stress. MATERIALS AND METHODS HIAYA CHAT is a four-session navigator delivered program; it includes psychoeducation on insurance, navigating one's plan, insurance-related laws, and managing costs. Participants were eligible if they could access an internet-capable device, were <1 year from diagnosis, and received treatment from University of Utah Healthcare or Intermountain Health systems. We assessed the feasibility, acceptability, and preliminary efficacy of HIAYA CHAT compared with usual navigation care, including HIL (nine items), insurance knowledge (13 items), ACA protections (eight items), COmprehensive Score for financial Toxicity (COST; 11 items), and Perceived Stress Scale (PSS; four items), using t tests and Cohen's d. RESULTS From November 2020 to December 2021, N = 86 AYAs enrolled (44.6% participation) and 89.3% completed the 5-month follow-up survey; 68.6% were female, 72.1% were White, 23.3% were Hispanic, 65.1% were age 26-39 years, and 87.2% were privately insured. Of intervention participants (n = 45), 67.4% completed all four sessions; among an exit interview subset (n = 10), all endorsed the program (100%). At follow-up, compared with usual navigation care, intervention participants had greater improvements in HIL, insurance and ACA protections knowledge, and PSS; effect sizes ranged from moderate to large (0.42-0.77). COST did not differ. CONCLUSION The results support the feasibility and acceptability of HIAYA CHAT with related improvements in HIL.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%