Health Insurance Literacy Improvements Among Recently Diagnosed Adolescents and Young Adults With Cancer: Results From a Pilot Randomized Controlled Trial

Kirchhoff, Anne C.; van Thiel Berghuijs, Karely M.; Waters, Austin R.; Kaddas, Heydon K.; Warner, Echo L.; Vaca Lopez, Perla L.; Perez, Giselle K.; Ray, Nicole; Chevrier, Amy; Allen, Karlie; Fair, Douglas B.; Tsukamoto, Tomoko; Lewis, Mark A.; Haaland, Ben; Park, Elyse R.

doi:10.1200/op.23.00171

Cited by 5 publications

(1 citation statement)

References 41 publications

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“…This study also has important implications for using data to inform professional education for financial navigation services in healthcare settings, as there is increasing interest and necessity in increasing the capacity of financial and patient navigation services. As part of these services, nonprofit organizations such as Triage Cancer are commonly used as a referral resource for patients in financial toxicity interventions [33] or in partnering to provide patient and caregiver education [34][35][36][37]). The session objectives represent muchneeded topic areas for financial literacy and demonstrate usefulness across healthcare providers, advocates, caregivers, and cancer survivors.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a Conference on Cancer-Related Financial and Legal Issues: A Potential Resource to Counter Financial Toxicity

Ghazal,

Doran,

Bryant

et al. 2024

Current Oncology

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This study describes the conception, development, and growth of the Triage Cancer Conference hosted by Triage Cancer, a national nonprofit organization providing free legal and financial education to the cancer community. We conducted a retrospective analysis of post-conference participant surveys. Descriptive statistics were calculated for participant demographics, and acceptability, feasibility, and appropriateness were evaluated. From 2016–2021, 1239 participants attended the conference and completed post-conference surveys. Participants included social workers (33%), nurses (30%), and cancer patients/survivors (21%), with representation from over 48 states. Among those who reported race, 16% were Black, and 7% were Hispanic. For acceptability, more than 90% of participants felt that the conference content, instructors, and format were suitable and useful. For feasibility, more than 90% of participants felt that the material was useful, with 93–96% reporting that they were likely to share the information and 98% reporting that they would attend another triage cancer event. Appropriateness was also high, with >80–90% reporting that the sessions met the pre-defined objectives. Triage Cancer fills an important gap in mitigating financial toxicity, and formal evaluation of these programs allows us to build evidence of the role and impact of these existing resources. Future research should focus on adding validated patient-reported outcomes, longer-term follow-up, and ensuring inclusion and evaluation of outcome metrics among vulnerable populations.

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Section: Discussionmentioning

confidence: 99%

Evaluation of a Conference on Cancer-Related Financial and Legal Issues: A Potential Resource to Counter Financial Toxicity

Ghazal,

Doran,

Bryant

et al. 2024

Current Oncology

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Interventions to mitigate cancer‐related medical financial hardship: A systematic review and meta‐analysis

Rashidi,

Jung,

Kao

et al. 2024

Cancer

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BackgroundThis study systematically reviewed interventions mitigating financial hardship in patients with cancer and assessed effectiveness using a meta‐analytic method.MethodsPubMed, Cochrane, Scopus, CINAHL, and Web of Science were searched for articles published in English during January 2000–April 2023. Two independent reviewers selected prospective clinical trials with an intervention targeting and an outcome measuring financial hardship. Quality appraisal and data extraction were performed independently by two reviewers using a quality assessment tool. A random‐effects model meta‐analysis was performed. Reporting followed the preferred reporting items for systematic review and meta‐analyses guidelines.ResultsEleven studies (2211 participants; 55% male; mean age, 59.29 years) testing interventions including financial navigation, financial education, and cost discussion were included. Financial worry improved in only 27.3% of 11 studies. Material hardship and cost‐related care nonadherence remained unchanged in the two studies measuring these outcomes. Four studies (373 participants; 37% male, mean age, 55.88 years) assessed the impact of financial navigation on financial worry using the comprehensive score of financial toxicity (COST) measure (score range, 0–44; higher score = lower financial worry) and were used for meta‐analysis. There was no significant change in the mean of pooled COST score between post‐ and pre‐intervention (1.21; 95% confidence interval, –6.54 to 8.96; p = .65). Adjusting for pre‐intervention COST, mean change of COST significantly decreased by 0.88 with every 1‐unit increase in pre‐intervention COST (p = .02). The intervention significantly changed COST score when pre‐intervention COST was ≤14.5.ConclusionA variety of interventions have been tested to mitigate financial hardship. Financial navigation can mitigate financial worry among high‐risk patients.

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Survivorship after adolescent and young adult cancer: models of care, disparities, and opportunities

Berkman,

Betts,

Beauchemin

et al. 2024

JNCI: Journal of the National Cancer Institute

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Survivors of adolescent and young adult (AYA, age 15-39 years at diagnosis) cancer are a growing population with the potential to live for many decades after treatment completion. Survivors of AYA cancer are at risk for adverse long-term outcomes including chronic conditions, secondary cancers, impaired fertility, poor psychosocial health and health behaviors, and financial toxicity. Further, survivors of AYA cancer from racially minoritized and low socio-economic status populations experience disparities in these outcomes, including lower long-term survival. Despite these known risks, most survivors of AYA cancer do not receive routine survivorship follow-up care, and research on delivering high-quality, evidence-based survivorship care to these patients is lacking. The need for survivorship care was initially advanced in 2006 by the Institute of Medicine. In 2019, the Quality of Cancer Survivorship Care Framework (QCSCF) was developed to provide an evidence-based framework to define key components of optimal survivorship care. In this commentary focused on survivors of AYA cancer, we apply the QCSCF framework to describe models of care that can be adapted for their unique needs, multi-level factors limiting equitable access to care, and opportunities to address these factors to improve short- and long-term outcomes in this vulnerable population.

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Health Insurance Literacy Improvements Among Recently Diagnosed Adolescents and Young Adults With Cancer: Results From a Pilot Randomized Controlled Trial

Cited by 5 publications

References 41 publications

Evaluation of a Conference on Cancer-Related Financial and Legal Issues: A Potential Resource to Counter Financial Toxicity

Evaluation of a Conference on Cancer-Related Financial and Legal Issues: A Potential Resource to Counter Financial Toxicity

Interventions to mitigate cancer‐related medical financial hardship: A systematic review and meta‐analysis

Survivorship after adolescent and young adult cancer: models of care, disparities, and opportunities

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