Adaptação à cultura brasileira dos questionários The O'Leary-Sant e PUF, usados para cistite intersticial

Victal, Marcella Lima; Lopes, Maria Helena Baena de Moraes; D’Ancona, Carlos Arturo Levi

doi:10.1590/s0080-62342013000200006

Cited by 3 publications

(2 citation statements)

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“…The Interstitial Cystitis Symptom Index and Problem Index [20], and The Pelvic Pain and Urgency/Frequency (PUF) Patient Symptom Scale were adapted to Portuguese-language speakers and applied to measure the symptom severity. The validated Brazilian version (Br-MPQ)- (CASTRO, 1999) of the McGill chronic pain questionnaire (MELZACK, 1975) and Visual Analog Scale (VAS) were applied as the method to evaluate pain severity [20–23].…”

Section: Methodsmentioning

confidence: 99%

Single nucleotide polymorphism analysis in interstitial cystitis/painful bladder syndrome

Cassão¹,

Reis²,

Pimenta

et al. 2019

PLoS ONE

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Introduction Interstitial Cystitis (IC) is a chronic condition diagnosed based on the presence of symptoms, such as suprapubic/ pelvic pain, pressure or discomfort in association with urgency and increased urinary frequency. Confusable diseases must be excluded. However, there is no objective test or marker to establish the presence of the disease. Diagnosis and patient management is often difficult, given the poor understanding of IC pathogenesis and its unknown etiology and genetics. As an attempt to find biomarkers related to IC, we assessed the association between 20 selected single nucleotide polymorphism (SNPs) with IC and pain severity. Objectives To assess the presence of SNPs in IC patients’ blood samples and correlate them with the disease and chronic pain condition. Methods A case-control study was conducted. We selected 34 female patients with IC diagnosed according to NIDDK criteria and 23 patients in the control group (previously healthy women with only stress urinary incontinence). IC patients were allocated into two groups according to reported chronic pain severity. We selected the following SNPs for analysis: rs1800871, rs1800872, rs1800896, rs1800471, rs1800629, rs361525, rs1800497, rs6311, rs6277, rs6276, rs6313, rs2835859, rs11127292, rs2243248, rs6887695, rs3212227, rs1799971, rs12579350, rs3813034, and rs6746030. Genotyping was performed by real-time PCR (q-PCR). Results The polymorphic allele of SNP rs11127292 exhibited a higher frequency in subjects with IC than in controls (p:0.01). The polymorphic allele of SNP rs6311 was more frequent in patients with severe pain (p:0.03). The frequency of the wild-type allele of SNP rs1799971 was higher in patients with mild to moderate pain (p:0.04). Conclusion The results indicated differences in SNP frequency among subjects, suggesting that SNPs could serve either as a marker of IC or as a marker of pain severity in IC patients. The study showed promising results regarding IC and polymorphism associations. These associations have not been previously reported.

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Section: Methodsmentioning

confidence: 99%

Single nucleotide polymorphism analysis in interstitial cystitis/painful bladder syndrome

Cassão¹,

Reis²,

Pimenta

et al. 2019

PLoS ONE

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“…aplicado o Questionário O'Leary-Sant (The Interstitial Cystitis Symptom Index and Problem Index)(O'Leary et al, 1997;Victal et al, 2013) composto por dois índices: sintomas (ICSI) e incômodo (ICPI), com quatro questões para cada índice. O índice que avalia os sintomas investiga a frequência e urgência miccional, noctúria e dor pélvica e o índice que avalia o incômodo quantifica o impacto causado pelos sintomas.…”

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Os efeitos das intervenções fisioterapêuticas na dor e nos sintomas urinários em mulheres com síndrome da dor vesical: estudo randomizado controlado

Hacad

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Aos meus pais, Mayer e Augusta, por serem minha referência de vida, pelo amor incondicional, e por me orientarem a nunca desistir dos meus sonhos.Ao meu marido Emil, amor da minha vida, minha fonte de inspiração, companheirismo e boas vibrações, pelo apoio incondicional e por viver intensamente comigo essa linda jornada de nossas vidas.Aos meus filhos Bruno e Gabriela, meus amores, minha razão de viver, pelo carinho, apoio e amor que sempre demonstraram; ao meu genro Theo e a minha nora Nicole, filhos que ganhei, por fazerem parte da minha vida com muito amor e carinho; por meu neto Guilherme, meu mais novo amor, por me escolher para ser sua avó.À toda a minha família pelo exemplo de união, determinação e integridade. Muito obrigada! AGRADECIMENTOSÀ minha orientadora, Profa. Dra. Clarice Tanaka, pela confiança depositada em mim, pelo apoio e acolhimento, pelas oportunidades ao longo dessa jornada e pelo constante aprendizado profissional e pessoal. Aos Prof. Homero Bruschini e Prof. Dr. Cristiano Gomes, pelo apoio e acolhimento na Disciplina de Urologia e pelo constante aprendizado profissional e pessoal. Ao Dr. Marcos Lucon, pelo aconselhamento, incentivo e aprendizado, e pela confiança no meu trabalho. À minha querida colega e amiga Suehellen Anne Rocha Milhomem, pela amizade, pelo trabalho em equipe, pelo profissionalismo, pelo aprendizado mútuo adquirido por meio desta parceria, pelo cuidado oferecido a todos os pacientes, se fazendo presente em todas as etapas deste projeto. À querida colega e amiga Rita Pavione Pereira pela amizade, parceria e pelo profissionalismo. Aos funcionários da Divisão de Fisioterapia do Hospital das Clínicas, pelo imensurável acolhimento e pela ajuda durante todos esses anos. Aos funcionários do Ambulatório de Urologia do Hospital das Clínicas, por apoiarem, contribuírem e acolherem nosso trabalho com carinho. Aos pacientes pela participação, confiança e contribuição à pesquisa. Muito obrigada! O presente trabalho foi realizado com apoio da Coordenação de Aperfeiçoamento de Pessoal de Nível Superior -Brasil (CAPES) -Código de Financiamento 001.Esta tese está de acordo com as seguintes normas, em vigor no momento desta publicação: Referências: adaptado de International Committee of Medical Journals Editors (Vancouver).

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Pediatric Asthma Control and Communication Instrument: translation into Portuguese and cross-cultural adaptation for use in Brazil

et al. 2019

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Objective: To translate the Pediatric Asthma Control and Communication Instrument (PACCI) to Portuguese and adapt it for use in Brazil, ensuring the cultural validity of the content and semantic equivalence of the target version. Methods: The Brazilian Portuguese-language version of the PACCI was developed according to the most commonly used methodology, which included the following steps: translation; synthesis of the translation; review by the author of the original questionnaire; back-translation; synthesis of the back-translation; review by a native external researcher who is a native speaker of English; approval of the author of the original questionnaire; review by a specialist in Portuguese; review by a multidisciplinary committee of experts to determine the agreement of the items, considering the clarity of each and its appropriateness in the cultural context; cognitive debriefing; and development of the final version. The cognitive debriefing involved 31 parents/legal guardians of children 1-21 years of age with a clinical diagnosis of asthma, as defined by the Global Initiative for Asthma, with the objective of determining the comprehensibility and clarity of the items for the target population. Results: The multidisciplinary committee of experts indicated that the items on the questionnaire were clear and comprehensible, with kappa values above 0.61, indicating substantial agreement. In the cognitive debriefing, the parents/legal guardians presented no difficulties in understanding any of the items (agreement > 0.90); therefore, no further changes were needed. Conclusions: The translation and cross-cultural adaptation of the PACCI for use in Brazil were successful.

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Adaptação à cultura brasileira dos questionários The O'Leary-Sant e PUF, usados para cistite intersticial

Cited by 3 publications

References 11 publications

Single nucleotide polymorphism analysis in interstitial cystitis/painful bladder syndrome

Single nucleotide polymorphism analysis in interstitial cystitis/painful bladder syndrome

Os efeitos das intervenções fisioterapêuticas na dor e nos sintomas urinários em mulheres com síndrome da dor vesical: estudo randomizado controlado

Pediatric Asthma Control and Communication Instrument: translation into Portuguese and cross-cultural adaptation for use in Brazil

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