Activity engagement and health quality of life in people with Parkinson’s disease

Sabari, Joyce S.; Ortíz, Diego; Pallatto, Katie; Yagerman, Joanna; Glazman, Sofya; Bódis-Wollner, Iván

doi:10.3109/09638288.2014.972588

Cited by 13 publications

(14 citation statements)

References 28 publications

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“…Quality of life (QOL) also plays an important role in independent living. For instance, happier people are more active in their daily lives and maintain better physical health 9 ) . Therefore, maintaining high QOL could be a key factor during the rehabilitation of people with PD.…”

Section: Introductionmentioning

confidence: 99%

Quality of life in people with Parkinson’s disease: the relevance of social relationships and communication

2016

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[Purpose] Maintaining high quality of life is crucial for the rehabilitation of patients with Parkinson’s disease. The quality of life scales currently in use do not assess all quality of life domains or their importance for each individual. Therefore, a new quality of life measure, the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting, was used to investigate quality of life in people with Parkinson’s disease. [Subjects and Methods] Fifteen people with idiopathic Parkinson’s disaese (average age = 80.0 years, standard deviation = 10.3 years, Hoehn & Yahr stages 1–4) were interviewed using the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting. Its quality of life constructs were tested by comparing them against disease-specific quality of life (39-items Parkinson’s Disease Questionnaire), motor functioning (Unified Parkinson’s Disease Rating Scale Part III), and activities of daily living (Barthel Index). [Results] Social connections such as “family” and “friends” were revealed as important constructs of life satisfaction. The Schedule for the Evaluation of Individual Quality of Life-Direct Weighting was not significantly correlated with the 39-items Parkinson’s Disease Questionnaire, Unified Parkinson’s Disease Rating Scale Part III, or Barthel Index but was significantly correlated with the “communication” dimension of the 39-items Parkinson’s Disease Questionnaire. [Conclusion] The Schedule for the Evaluation of Individual Quality of Life-Direct Weighting detected various domains of quality of life, especially social relationships with family and friends. “Being heard” was also revealed as an essential component of life satisfaction, as it provides patients with a feeling of acceptance and assurance, possibly resulting in better quality of life.

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Section: Introductionmentioning

confidence: 99%

Quality of life in people with Parkinson’s disease: the relevance of social relationships and communication

2016

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“…The frequency of participation in activities (mainly domestic) improved among a single (noncontrolled) group of people 50 years and over attending a creative dance program once a week for 6 weeks (O'Toole et al, 2015). Sabari et al (2015) reported people with Parkinson's disease participating in a community-based dance group for at least 6 months (at least once a week) being significantly more engaged in social activities compared to a nonparticipating group. In a randomized control trial, Foster et al (2013) demonstrated that an intervention of 1 h, 2 times a week for 12 months of tango dance significantly improved participation in complex activities of daily living, in the recovery of activities lost since diagnosis and engagement in new activities compared to a control group.…”

Section: Discussionmentioning

confidence: 99%

“…For example, a qualitative study found that some participants among a group of elderly women reported that since they had been part of the dance group, they were no longer afraid of what others thought of them (Nadasen, 2008). Other participants expressed their great satisfaction with their dance group/intervention, reporting, for example, that they feel inspired and focused on what they can do doing their dance group (Sabari et al, 2015). These comments are consistent with the significant improvement demonstrated in our study in the dimensions of "sense of control" and "loss of selfconsciousness."…”

Section: Discussionmentioning

confidence: 99%

The Effectiveness of Dance Therapy as an Adjunct to Rehabilitation of Adults With a Physical Disability

et al. 2020

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Background/Objective: To determine the added benefit on participants' mobility and participation of a 12-week dance therapy (DT) intervention combined with usual physical rehabilitation for adults with varied physical disabilities. Their appreciation of DT was also explored. Methods: We conducted a quasi-experimental study pre-post test with a nonequivalent control group and repeated measurements pre, post, and at a 3-month follow-up. Results: Although participants in both groups significantly improved over time (at 12 weeks and at follow-up) compared to baseline on mobility (timed up and go, TUG) and participation (e.g., Life-H scores and number of leisure activities), treatment effect analysis using propensity score matching showed no significant treatment effect of DT. The TUG scores showed the best promise of a treatment effect. DT participants' Flow State Scale scores significantly improved (p < 0.01) for 5/9 dimensions of flow (being in control, loss of self-consciousness), and they all recommended DT. Conclusion: This study failed to demonstrate an added benefit of the DT intervention in improving participants' mobility and participation. Overwhelmingly, favorable participants' opinions about the intervention support its potential impact.

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“…As far as the researchers are aware, this has not been previously identified as a component of wellbeing for people with PD. Most of the literature related to wellbeing and PD has focused on maintaining function, receiving appropriate support and maintaining social relationships (see, for example, Behari et al., 2005; Duncan and Earhart, 2011; Forsaa et al., 2008; Müller et al., 2013; Sabari et al., 2015), and none of the standardised measures used in these studies explicitly listed being able to contribute as an item that was measured.…”

Section: Discussionmentioning

confidence: 99%

Wellbeing and engagement in occupation for people with Parkinson’s disease

Kennedy‐Behr

Hatchett

2017

British Journal of Occupational Therapy

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Introduction: Wellbeing is an important goal and outcome measure for people living with Parkinson's disease. Previous wellbeing studies have used standardised measures and not explored the individual understandings of wellbeing and how it is affected by engagement in meaningful occupations. The aim of this study was to explore individual definitions of wellbeing and perceived associations between engagement in daily occupations and wellbeing for people living at home with Parkinson's disease. Method: A qualitative descriptive design was used. Participants completed 24-hour time diaries prior to completing semistructured interviews which explored participants' individual definitions of wellbeing and perceptions of associations between wellbeing and engagement in occupation. Transcribed interviews were analysed using thematic analysis. Results: Seventeen participants were recruited and 11 completed interviews. Participants defined wellbeing in terms of independence and satisfaction in being able to contribute to others' lives. Participants identified engagement in meaningful occupation as supporting their wellbeing and maintaining relationships and identity. Conclusion: This study expands what is known about wellbeing for people living with Parkinson's disease. Understanding the individual meaning of wellbeing and facilitating engagement in the occupations individuals with Parkinson's disease identify as meaningful may assist them to maintain wellbeing despite the presence of disease.

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Activity engagement and health quality of life in people with Parkinson’s disease

Cited by 13 publications

References 28 publications

Quality of life in people with Parkinson’s disease: the relevance of social relationships and communication

Quality of life in people with Parkinson’s disease: the relevance of social relationships and communication

The Effectiveness of Dance Therapy as an Adjunct to Rehabilitation of Adults With a Physical Disability

Wellbeing and engagement in occupation for people with Parkinson’s disease

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