Acceptance of the German e-mental health portal www.psychenet.de: an online survey

Tlach, Lisa; Thiel, Juliane; Härter, Martin; Liebherz, Sarah; Dirmaier, Jörg

doi:10.7717/peerj.2093

Cited by 16 publications

(16 citation statements)

References 34 publications

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“…Participant DA feedback was assessed using an adapted measure from previous acceptability studies of mental health decision-support [ 43 ]. Participants indicated their agreement on the DA’s perceived ease of use (8 items), perceived usefulness (9 items), attitudes towards using (3 items), and perceived trustworthiness/bias (4 items).…”

Section: Methodsmentioning

confidence: 99%

Development and pilot of a decision-aid for patients with bipolar II disorder and their families making decisions about treatment options to prevent relapse

et al. 2018

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IntroductionTreatment decisions in bipolar II disorder (BPII) are finely-balanced and sensitive to patient preferences. This pilot study evaluated a decision-aid booklet (DA) for patients with BPII (and their family) to obtain evidence on its acceptability, feasibility, safety, and usefulness in potential end-users.MethodsThe DA booklet was developed according to International Patient Decision-Aid Standards. Thirty-one patients diagnosed with BPII and their families (n = 11), who were currently making or had previously made treatment decisions, participated. Participants read the DA and completed validated and purpose-designed questionnaires. A follow-up semi-structured telephone interview elicited more in-depth DA feedback (n = 40).ResultsPatients and family endorsed the DA booklet as: easy-to-use (100% agree), useful in treatment decision-making (100%), presenting balanced (patients = 96.8%, family = 100%), up-to-date (93.5%, 100%) and trustworthy information (93.5%, 100%) that did not provoke anxiety (93.5%, 90.9%). All participants stated that they would recommend the DA to others. Following DA use, all except one participant (97.6%) demonstrated adequate treatment knowledge (> 50% score). Patients reported low decisional conflict (M = 18.90/100) following DA use and felt well-prepared to make treatment decisions (M = 4.28/5). Most patients (90.3%) indicated uptake of treatments consistent with the best available clinical evidence. Additionally, a large proportion of patients made an informed choice about medication (65.5%) with adjunctive psychological treatment (50.0%), based on adequate knowledge and their treatment values. Interview findings further supported the DA’s acceptability among participants.DiscussionPilot findings indicate that patients with BPII and their family consider this DA booklet highly acceptable and useful in making evidence-based treatment decisions that align with their treatment preferences.

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Section: Methodsmentioning

confidence: 99%

Development and pilot of a decision-aid for patients with bipolar II disorder and their families making decisions about treatment options to prevent relapse

et al. 2018

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“…Further, given that majority of participants were self-referred rather than clinic-referred, we were unable to verify the accuracy of all patients’ BPII diagnosis and had to rely on self-report. Online self-referral methods are not unusual when assessing patient decision-support needs and/or evaluating online decision-support tools [ 25 , 58 , 59 ], and participant characteristics in the current sample mirror those of clinic-recruited participants with bipolar disorder [ 20 , 60 , 61 ]. Even though the opportunistic use of a multimodal recruitment strategy within this RCT increased sample heterogeneity, and fact the e-DA was copy-edited for low health literacy levels, the generalisability of current findings are unknown [ 62 ].…”

Section: Discussionmentioning

confidence: 99%

“…Participants’ perceptions of e-DA’s acceptability and utility was collected at T1, with 24 questions adapted from a previous e-mental health site evaluation [ 25 ]. Participants indicated their level of agreement on each item, which related to the e-DA’s perceived ease of use/usability, usefulness, information trustworthiness/balance versus bias, as well as attitudes towards use and likelihood of recommending to others.…”

Section: Methodsmentioning

confidence: 99%

“…In light of changes to recruitment methods, and addition of a self-referral pathway online (see Study setting and participants and Procedure ), the sample size was increased. The increased sample size was to account for expected lower retention rates at follow-up as a function study design/setting in DA trials in mental health (up to ~ 60–100% for clinic referrals [ 15 , 37 ] versus 38% for self-referrals at post-DA use [ 25 ]). Assuming a conservative completion rate of 38% at T1, and the required minimum of 20 participants at T2, we calculated a sample size of N = 278 (i.e., n = 139 per group at T0, n = 52 at T1, n = 20 at T2).…”

Section: Methodsmentioning

confidence: 99%

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Improving treatment decision-making in bipolar II disorder: a phase II randomised controlled trial of an online patient decision-aid

et al. 2020

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Background Many patients with bipolar II disorder (BPII) prefer to be more informed and involved in their treatment decision-making than they currently are. Limited knowledge and involvement in one’s treatment is also likely to compromise optimal BPII management. This Phase II RCT aimed to evaluate the acceptability, feasibility, and safety of a world-first patient decision-aid website (e-DA) to improve treatment decision-making regarding options for relapse prevention in BPII. The e-DA’s potential efficacy in terms of improving quality of the decision-making process and quality of the decision made was also explored. Methods The e-DA was based on International Patient Decision-Aid Standards and developed via an iterative co-design process. Adults with BPII diagnosis (n = 352) were recruited through a specialist outpatient clinical service and the social media of leading mental health organisations. Participants were randomised (1:1) to receive standard information with/without the e-DA (Intervention versus Control). At baseline (T0), post-treatment decision (T1) and at 3 months’ post-decision follow-up (T2), participants completed a series of validated and purpose-designed questionnaires. Self-report and analytics data assessed the acceptability (e.g., perceived ease-of-use, usefulness; completed by Intervention participants only), safety (i.e., self-reported bipolar and/or anxiety symptoms), and feasibility of using the e-DA (% accessed). For all participants, questionnaires assessed constructs related to quality of the decision-making process (e.g., decisional conflict) and quality of the decision made (e.g., knowledge of treatment options and outcomes). Results Intervention participants endorsed the e-DA as acceptable and feasible to use (82.1–94.6% item agreement); most self-reported using the e-DA either selectively (51.8%; relevant sections only) or thoroughly (34%). Exploratory analyses indicated the e-DA’s potential efficacy to improve decision-making quality; most between-group standardised mean differences (SMD) were small-to-moderate. The largest potential effects were detected for objective treatment knowledge (− 0.69, 95% CIs − 1.04, − 0.33 at T1; and − 0.57, 95% CIs − 0.99,-0.14 at T2), decisional regret at T2 (0.42, 95% CIs 0.01, 0.84), preparation for decision-making at T1 (− 0.44, 95% CIs − 0.81, − 0.07), and the Decisional Conflict Scale Uncertainty subscale (0.42, 95% CIs 0.08, 0.08) and Total (0.36, 95% CIs 0.30, 0.69) scores, with all SMDs favouring the Intervention over the Control conditions. Regarding safety, e-DA use was not associated with worse bipolar symptoms or anxiety. Conclusion The e-DA appears to be acceptable, feasible, safe and potentially efficacious at improving patients’ decision-making about BPII treatment. Findings also support the future adoption of the e-DA into patient care for BPII to foster treatment decisions based on the best available evidence and patient preferences. Trial registration Australian New Zealand Clinical Trials Registry ACTRN12617000840381 (prospectively registered 07/06/2017).

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“…People affected by mental disorders and their relatives were involved in the development process. Psychenet.de intends to increase mental health literacy to empower users in managing mental health challenges [37, 38].…”

Section: Methodsmentioning

confidence: 99%

Development and evaluation of e-mental health interventions to reduce stigmatization of suicidality – a study protocol

et al. 2019

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Background Worldwide, approximately 800,000 persons die by suicide every year; with rates of suicide attempts estimated to be much higher. Suicidal persons often suffer from a mental disorder but stigma, lack of available and suitable support, and insufficient information on mental health limit help seeking. The use of internet-based applications can help individuals inform themselves about mental disorders, assess the extent of their own concerns, find local treatment options, and prepare for contact with health care professionals. This project aims to develop and evaluate e-mental health interventions to improve knowledge about suicidality and to reduce stigmatization of those affected. In developing these interventions, a representative telephone survey was conducted to detect knowledge gaps and stigmatizing attitudes in the general population. Methods First, a national representative telephone survey with N = 2000 participants in Germany was conducted. Second, e-mental health interventions are developed to address knowledge gaps and public stigma detected in the survey. These comprise an evidence-based health information package about suicidality, information on regional support services, a self-administered depression test—including suicidality—and an interactive online intervention including personal stories. The development is based on a trialogical exchange of experience between persons affected by suicidality, relatives of affected persons, and clinical experts. Australian researchers who developed an e-mental health intervention for individuals affected by rural suicide were invited to a workshop in order to contribute their knowledge and expertise. Third, the online intervention will be evaluated by a mixed methods design. Discussion From representative telephone survey data, content can be developed to address specific attitudes and knowledge via the e-mental health interventions. These interventions will be easily accessed and provide an opportunity to reach people who tend not to seek professional services, prefer to inform themselves in advance and/or wish to remain anonymous. Evaluation of the online intervention will provide information on any changes in participants’ self-stigma and perceived-stigma of suicidality, and any increase in participants’ knowledge on suicidality or self-efficacy expectations. Trial registration German Clinical Trial Register DRKS00015071 on August 6, 2018.

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Acceptance of the German e-mental health portal www.psychenet.de: an online survey

Cited by 16 publications

References 34 publications

Development and pilot of a decision-aid for patients with bipolar II disorder and their families making decisions about treatment options to prevent relapse

Development and pilot of a decision-aid for patients with bipolar II disorder and their families making decisions about treatment options to prevent relapse

Improving treatment decision-making in bipolar II disorder: a phase II randomised controlled trial of an online patient decision-aid

Development and evaluation of e-mental health interventions to reduce stigmatization of suicidality – a study protocol

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