A Systematic Review of Psychosocial Interventions to Cancer Caregivers

Fu, Fang; Zhao, Huaijuan; Feng, Tao; Chi, Iris

doi:10.3389/fpsyg.2017.00834

Cited by 61 publications

(59 citation statements)

References 32 publications

(166 reference statements)

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“…According to previous caregiver research, health services ought to see informal carers as no less important than the patient . Different kinds of caregivers need different kinds of support and interventions based on, that is, types or severity of the relatives' long‐term illness . Support and services to caregivers are indispensable to caregivers' psychological well‐being by preventing burnout .…”

Section: Discussionmentioning

confidence: 99%

“…Long‐term serious illness such as dementia, Parkinson's, multiple sclerosis, and cancer are demanding and often debilitating conditions that affect both the care recipients themselves and their informal caregivers on several levels . As the illness progresses, the need for care and assistance increases for the person living with a long‐term condition.…”

Section: Introductionmentioning

confidence: 99%

“…Supporting and maintaining the supply of family care appears to benefit the care recipient, the caregiver and the public system . Accordingly, the research literature recommends tailored interventions and support services , to caregivers who are struggling to remain motivated .…”

Section: Introductionmentioning

confidence: 99%

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Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Dombestein

Norheim

Husebø

2019

Scandinavian Caring Sciences

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Scand J Caring Sci; 2020; 34: 267-279. Dombestein H, Norheim A, Lunde Husebø AM.Understanding informal caregivers' motivation from the perspective of self-determination theory: an integrative review.Background: A long-term illness is stressful both for the person with the diagnosis and for his or her informal caregivers. Many people willingly assume the caregiving role, so it is important to understand why they stay in this role and how their motivation affects their health. Self-determination theory (SDT) is a theory of human motivation that has been successfully applied in human research domains. To our knowledge, there is no literature review on the application of SDT in a caregiver context. A systematic review of the literature could improve the understanding of motivation in caregiver work and contribute to the utility of SDT. Aim: To describe and explore empirical studies of caregivers' motivation from the perspective of self-determination theory. Methods: An integrative literature review according to Whittemore and Knafl was conducted with systematic repetitive searches in the MEDLINE, Scopus, PsychInfo, PsycNET, Chinal, Cochrane Library and EMBASE databases. The searches were performed from May through December 2018. The PRISMA diagram was used for study selection, and papers were assessed for quality based on the Mixed Methods Appraisal Tool. Data analysis consisted of a four-stage narrative analysis method. Result: Of 159 articles, 10 were eligible for inclusion. All studies considered satisfaction of the three basic psychological needs for competence, autonomy and relatedness as essential in predicting the quality of caregivers' motivation and thereby their well-being. In this review, autonomous motivation was the most important determinant of caregivers' well-being. Conclusions: Findings showed that SDT can be applied to identify, categorise, explain, predict, promote and support motivation among caregivers. This lends interesting support for SDT and promotes further study and application of the theory as a psychological approach to caregivers' health and health promotion.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Dombestein

Norheim

Husebø

2019

Scandinavian Caring Sciences

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“…The physical aspects of discomfort and suffering have been extensively studied in the context of palliative care ( Cherny et al, 2015 ). In this context, it has also been highlighted the importance of the psychological and social aspects of suffering, when aiming to reduce the distress of these patients and that of their families ( Cassell, 1998 ; Callahan, 2000 ; Who, 2005 ; Bennett and Shepherd, 2013 ; Grassi et al, 2015 ; Cipolletta et al, 2016 , 2017 ; Fu et al, 2017 ).…”

Section: Introductionmentioning

confidence: 99%

Emotional Distress of Patients at End-of-Life and Their Caregivers: Interrelation and Predictors

et al. 2018

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Background: Patients at the end of life and their families experience a strong emotional impact. The well-being of these patients and that of their family caregiver are related.Aim: To study the variables related with the emotional well-being of patients with and without cognitive impairment at the end of life and that of their primary family caregivers.Design: Cross- sectional study.Participants: Data was collected from 202 patients at the end of life with different diagnosis (COPD, cancer, and frail elderly) as well as from their respective 202 primary family caregivers.Results: Structural equation models indicated that the emotional state of the patients was best predicted by their functional independence and the burden of their family caregivers. In addition, the emotional state of the primary family caregiver was predicted by their burden and not by the cognitive state or the functional independence of the patient. Nevertheless, the burden of the family caregiver, which is the only variable predicting both the emotional state of the patient and that of the caregiver, was directly related with the functional independence of the patient and indirectly with the patient’s cognitive state.Conclusion: The family caregiver’s burden is an important factor to take into consideration when aiming to reduce the emotional distress of patients at the end of life with different diagnosis -whether or not they present significant cognitive impairment- and that of their family caregivers.

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“…Cancer patients, especially in metastatic stage, suffer from cancer related symptoms. Caregivers of cancer patients are prone to psychosocial trauma while caring them [27]. In our analysis, 17.1% of nurses had a relative with cancer.…”

Section: Discussionmentioning

confidence: 91%

The effects of Nurses' Empathy Skills on Attitudes towards Patients with Cancer

Alkan¹

2017

J Clin Exp Invest

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Objective: The purpose of this study is to evaluate the predictors of empathy skills and attitude towards cancer patients and association between nurses' empathy skills on attitudes towards patients with cancer Patients and Methods: A structured questionnaire was used to evaluate the nurses' empathy skills and their attitudes towards to patients with cancer. Jefferson Scale of Empathy (JSE) and Attitudes towards Cancer Scale (ATCS) were used. The predictors of JSE/ATCS scores and correlation between JSE and ATCS were analyzed. Results: 305 nurses participated in the study (84.2% of all nurses). The median age was 33 (20-52) and most of the nurses were female (82.6%). Most of the participants were married (188, 61.6%) and 40.3% of nurses had a job experience more than 10 years. Female sex, being married, having job experience more than 10 years or caring more cancer patients were associated with higher JSE scores. Nurses caring more cancer patients weekly, experience with cancer patients, participation in educational activities about cancer care or presence of relative with a diagnosis of cancer were found to have more positive attitudes towards cancer patients. Spearman correlation analysis showed a positive, weak correlation between JSE and ATCS (r= 0.017, P= 0.38) Conclusion: Empathy skills are important while caring patients, especially in oncology practice. Although a direct correlation between empathy skills and attitudes towards cancer patients couldn't be demonstrated, health care workers caring cancer patients should be both evaluated for empathy skills and educated.

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A Systematic Review of Psychosocial Interventions to Cancer Caregivers

Cited by 61 publications

References 32 publications

Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Understanding informal caregivers' motivation from the perspective of self‐determination theory: an integrative review

Emotional Distress of Patients at End-of-Life and Their Caregivers: Interrelation and Predictors

The effects of Nurses' Empathy Skills on Attitudes towards Patients with Cancer

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