A Systematic Review of Behavioral Intervention Technologies for Youth With Chronic Health Conditions and Physical and Intellectual Disabilities: Implications for Adolescents and Young Adults With Spina Bifida

Stiles‐Shields, Colleen; Crowe, Autumn N; Driscoll, Colleen F Bechtel; Ohanian, Diana M.; Stern, Alexa; Wartman, Elicia; Winning, Adrien M; Wafford, Q. Eileen; Lattie, Emily G.; Holmbeck, Grayson N.

doi:10.1093/jpepsy/jsy097

Cited by 22 publications

(23 citation statements)

References 46 publications

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“…The evaluated elements of My Diet Coach involved active, text-based data entry. Consistent with the literature on AYAs with similar symptom profiles [16], the AYA-SB participants reported that these elements could be improved for their use by having tutorials, being simpler, and having less logging options. Possibly because of the lack of such features and/or the executive functioning problems associated with SB [23], participants also displayed several errors for a relatively simple data entry path.…”

Section: Discussionsupporting

confidence: 74%

“…Although the current findings suggest that My Diet Coach is learnable for AYA-SBs, it also implicates personalizing existing elements and characteristics for AYA-SBs and related users (eg, youth with physical and/or motor disabilities) [16]. The evaluated elements of My Diet Coach involved active, text-based data entry.…”

Section: Discussionmentioning

confidence: 99%

“…A user needs model for AYA-SBs was recently created for BITs aiming to improve self-management [16]. This user needs model was framed within the BIT model, which includes conceptual ( why the BIT is needed and how it may achieve such aims) and technical ( what is delivered to BIT users and how and when the delivery may occur) aspects for designing and deploying BITs [49].…”

Section: Discussionmentioning

confidence: 99%

“…For example, AYA-SBs are unique in that they have symptoms that overlap with chronic medical conditions and physical and intellectual disabilities. For this reason, a user needs model for BITs that support self-management in SB has been created [16]. The model includes (1) behavioral skills– and evidence-based change strategies that avoid abstract concepts and help to categorize behavior, (2) elements that are multisensory (eg, text and audio) and use multiple methods (eg, visualizations and passive data collection), (3) being capable of being used across multiple platforms, (4) linear and user-driven workflows, and (5) expert and/or peer support.…”

Section: Introductionmentioning

confidence: 99%

“…We hypothesized that, in evaluating an app rated as having high quality for typically developing populations [18], the majority of users would be able to complete tasks and do so in 5 min or less by their second attempt of a task [19,20]. However, given the variable symptom and functioning profile of AYA-SBs [16], it was anticipated that high variability across the sample would be observed for all evaluated usability metrics.…”

Section: Introductionmentioning

confidence: 99%

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Exploring an Existing Weight Management App for Use With Adolescents and Young Adults With Spina Bifida: Usability Study

Stiles‐Shields¹,

Garcia²,

Villota³

et al. 2019

JMIR Pediatr Parent

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BackgroundAdolescents and young adults with spina bifida (AYA-SBs) have unique user needs, given their variable and complex symptom profile. Owing to multiple barriers to prevention and intervention treatments for secondary conditions (eg, obesity), AYA-SBs may benefit from the use of behavioral intervention technologies (BITs). However, as BITs are often designed and tested with typically developing individuals, it is unclear if existing BITs may be usable for AYA-SBs.ObjectiveThis study aimed to evaluate the usability of a high-quality, publicly available, weight management–focused mobile BIT (smartphone app) for AYA-SBs.MethodsOverall, 28 AYA-SBs attending a Young Men’s Christian Association–based summer camp completed 4 structured usability tasks using a weight management app designed for the general public called My Diet Coach (Bending Spoons). Learnability was measured by (1) time to complete task, (2) number of user errors, and (3) correct entry of data when requested by the app. Satisfaction and general usability were measured via self-reported questionnaires and qualitative feedback following interactions with the app.ResultsThe majority of the sample were able to complete the tasks, with increased completion rates and improved times on second attempts of the tasks (Ps<.05). Errors were common, and discrepancies emerged between quantitative and qualitative feedback such that self-reported measures indicated dissatisfaction but qualitative feedback was generally positive. Suggested improvements to the app included (1) tutorials, (2) simplifying the design, (3) more activity options for those who ambulate by wheelchair, and (4) notifications to prompt use.ConclusionsAYA-SBs were able to learn how to complete specific tasks independently on a weight management app, but design changes consistent with previously proposed user needs were recommended. Rather than designing entirely new BITs, it may be possible to adapt existing technologies to personalize BITs for specific populations such as AYA-SBs.

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Section: Discussionsupporting

confidence: 74%

Section: Discussionmentioning

confidence: 99%