A Study on the Subjective Well-Being of Adult Patients with Cerebral Palsy.

Abstract

Abstract. In this study, subjective well-being of 81 adult cerebral palsy (CP) patients who had been discharged from our hospital was evaluated using the Philadelphia Geriatric Center Morale Scale. They were questioned about their life and physical condition. The results were as follows: 1) The subjective wellbeing of CP patients in their late 30 years to early 40 years was lower than that of these in their early 30 years.2) The subjective well-being of CP patients whose physical health was deteriorating, due to falling stamina, appearance of pains and gait disturbance, was lower. 3) Subjective well-being was determined by the convenience of social environment and job integration. These results suggest that age and progression of disability are important factors for life satisfaction in middle-aged and elderly out-patients with CP.

Descriptions of functioning and health and relations to a gross motor classification in adults with cerebral palsy

“…28 Although the correlation between GMFCS levels and perceived health were low in our study this result is too uncertain to confirm findings reported in other studies indicating that living with a disability does not correspond to low perceived health or life satisfaction. 29,30 While one study has reported on positive psychosocial aspects, such as believing in yourself and acceptance by others as important factors, 31 other studies of adults with CP showed that decreasing stamina, pain and gait disorders are associated with lower subjective well being 13 and that persons with CP experience life as less manageable, meaningful and comprehensible compared to the general population. 32 Clearly the results are still contradictory and further exploration is necessary regarding health factors in this group of individuals with a life-long disability.…”

A Randomised Controlled Study to Investigate Effects of Bobath Based Trunk Control Training on Motor Function of Children with Spastic Bilateral Cerebral Palsy

“…Trunk control is defined as an early determinant of daily life and related to balance, walking and functional abilities [4]. Because of the lack of movement ability, children with CP spend more energy compared to the same aged healthy children.…”

Health service experiences to address mobility decline in ambulant adults ageing with cerebral palsy

“…We now know that around 25% of adults with CP who are ambulant will experience accelerated age-related changes in mobility (Morgan & McGinley, 2014), with 40-60% experiencing falls (Hsieh, Heller, & Miller, 2001;Morgan & McGinley, 2013;Mosqueda, 2004;Opheim et al, 2012), and most describing at least a moderate fear of falling (Opheim et al, 2012). Adults with CP have expressed concern regarding the increasing impact of limited mobility and falls on participation (Furukawa, Iwatsuki, Nishiyama, Nii, & Uchida, 2001;Goodwin & Compton, 2004), as well as the challenges in seeking appropriate services to meet their health needs (Bent et al, 2002), and seek to become better informed about their health to enhance decision-making (Horsman, Suto, Dudgeon, & Harris, 2010).…”