A sociotechnical systems approach toward tailored design for personal health information management

Abstract

We would like to thank all of our participants for their involvement and allowing us in their homes. We would also like to thank Patricia Flatley Brennan, PhD, RN for her input during the data analysis phase of this study. Finally, we would like to thank vizHOME for the data used in this secondary analysis. This article is associated with the Innovation & Technology lens of The Beryl Institute Experience Framework.

Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends

“…Study findings indicate that solutions designed with a patient-centered approach improved UX [38] and demonstrated high patient satisfaction scores [47]. Further, two articles [30,49] describe a framework to inform the patient-oriented design technology solutions for improving PX. Werner et al [30] propose a framework for personal health information management, which includes seven dimensions: privacy, engagement, guidance, documentation, physician distribution, flexibility, and external cues.…”

“…In the reviewed articles, precise definitions or descriptions for the concept of PX are not presented. Instead, PX is often used as a synonym for other related concepts, such as satisfaction [18][19][20][21][22][23][24][25][26][27][28], patient engagement [29][30][31], and patient perceptions [21,22,32]. Satisfaction studies report the use of patient satisfaction questionnaires resulting in patient satisfaction scores [18,21,22,25] whereas "patient engagement" refers to the amount of engagement with eHealth solutions [30] or online patient engagement practices [31].…”

“…Instead, PX is often used as a synonym for other related concepts, such as satisfaction [18][19][20][21][22][23][24][25][26][27][28], patient engagement [29][30][31], and patient perceptions [21,22,32]. Satisfaction studies report the use of patient satisfaction questionnaires resulting in patient satisfaction scores [18,21,22,25] whereas "patient engagement" refers to the amount of engagement with eHealth solutions [30] or online patient engagement practices [31]. PX is also equated with the experiences of patients [20,[32][33][34][35][36], which is described as related to technology (e.g., "virtual experience for patients with COVID-19 symptoms" [33] and "telemedicine experiences of individuals" [34]).…”

“…Further, two articles [30,49] describe a framework to inform the patient-oriented design technology solutions for improving PX. Werner et al [30] propose a framework for personal health information management, which includes seven dimensions: privacy, engagement, guidance, documentation, physician distribution, flexibility, and external cues. Several of these dimensions are supported by a review article [49] on the development of technology used by patients.…”

“…(incl. qualitative and/or quantitative questions) [19,20,[22][23][24][25]28,29,34,40,43,46,[52][53][54][56][57][58]60] Interview [30,32,35,37,42,45,59] Focus group [36,41] Service analysis [31,51] Design methods [44] Reviews [26,39,49] Implementation study [18,21,50,61] Cross-sectional study [27,33] eHealth pilot or trial [38,43,47,48,55] The most frequently used method (i.e., surveys) was applied in 18 papers (see Figure 2). As patient satisfaction was one of the most mentioned aspects affecting PX, patient satisfaction surveys were the most broadly applied.…”