A review of the literature: interventions to maximize capacity to consent and reduce anxiety of women with learning disabilities preparing for a cervical smear test

Broughton, Sallyanne

doi:10.1258/095148402320176756

Cited by 9 publications

(14 citation statements)

References 25 publications

(48 reference statements)

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“…Interventions tailored to the communication skills of women with IDD are required in order to increase their knowledge of the procedure and its benefits, decrease their anxiety, and thus allow them to give informed consent (e.g. Broughton ; Lunsky et al . ; Biswas et al .…”

Section: Discussionmentioning

confidence: 99%

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Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Cobigo

Ouellette‐Kuntz

Balogh

et al. 2013

J intellect Disabil Res

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Background Effective cancer screening must be available for all eligible individuals without discrimination. Lower rates of cervical and breast cancer screening have been reported in certain groups compared with women from the general population, such as women with intellectual and developmental disabilities (IDD). Research on the factors explaining those observed differences is crucial to determine whether practices are unfair and could be improved. The aim of this population‐based study was to describe cancer screening utilisation by women with IDD in Ontario, Canada compared with other women in Ontario. The specific objectives were (1) to estimate the rates of cervical and breast cancer screening among eligible women with IDD in Ontario; (2) to compare the rates of cervical and breast cancer screening between eligible women with and without IDD; and (3) to examine if any observed differences between women with and without IDD persist after factors such as age, socio‐economic status, rurality and healthcare utilisation are accounted for. Method This study draws women with IDD from an entire population, and draws a randomly selected comparison group from the same population. It controls for important confounders in cancer screening within the limitations of the data sources. The study was conducted using health administrative databases and registries in Ontario, Canada. Two cohorts were created: a cohort of all women identified as having an IDD and a cohort consisting of a random sample of 20% of the women without IDD. Results The proportion of women with IDD who are not screened for cervical cancer is nearly twice what it is in the women without IDD, and 1.5 times what it is for mammography. Conclusions Findings suggest that women with IDD experience inequities in their access to cancer screening. Public health interventions targeting this population should be implemented.

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Section: Discussionmentioning

confidence: 99%

“…). In addition, health professionals tend to report insufficient training and negative attitudes towards patients with IDD (Broughton ; Willis et al . ).…”

Section: Introductionmentioning

confidence: 99%

Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Cobigo

Ouellette‐Kuntz

Balogh

et al. 2013

J intellect Disabil Res

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“…Broughton (2002), in a literature review looking at capacity to consent to cervical screening in women with LD, also found that the way information was presented to women was crucial, and influenced their ability to understand the procedure and therefore give informed consent. Language appropriate to the level of disability, short clear text, and use of alternate media such as video or audio‐tapes or preparatory visits to the department were also suggested.…”

Section: Resultsmentioning

confidence: 99%

Informed consent to healthcare interventions in people with learning disabilities – an integrative review

Goldsmith¹,

Skirton²,

Webb³

2008

Journal of Advanced Nursing

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“…Literature reviews and empirical studies that have examined reasons for non-participation in cervical screening programmes by women with intellectual disabilities have identified a number of specific barriers, including communication difficulties; perceived difficulties obtaining consent; attitudes of carers and staff; lack of accessible information; physical difficulties; limited liaison with specialist teams; and assumptions made by healthcare professionals (Stein and Allen, 1999;Broughton and Thomson, 2000;Broughton, 2002;Alborz et al, 2005;Wood and Douglas, 2007;Watts, 2008;Gribben and Bell, 2010).…”

Section: Introductionmentioning

confidence: 99%

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd¹,

Coulson

2014

J Intellect Disabil

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Access from the University of Nottingham repository:http://eprints.nottingham.ac.uk/41591/1/The%20role%20of%20learning%20disability %20nurses%20in%20promoting%20cervical%20screening%20uptake%20in%20women %20with%20intellectual%20disabilities-%20a%20qualitative%20study%20AAM.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the University of Nottingham End User licence and may be reused according to the conditions of the licence. For more details see: http://eprints.nottingham.ac.uk/end_user_agreement.pdf A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.ukCitation : J Intellect Disabil. 2014 Jun;18(2):129-145. Epub 2014 Apr 3.The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: A qualitative study. Original Article AbstractResearch suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual disabilities. The present study explored learning disability nurses' experiences of supporting women with intellectual disabilities to access cervical screening in order to examine their role in promoting attendance and elucidate potential barriers and facilitators to uptake. Ten participants recruited from a specialist learning disability service completed a semi-structured interview and data were analysed using experiential thematic analysis. Identified individual barriers included limited health literacy, negative attitudes and beliefs, and competing demands; barriers attributed to primary care professionals included time pressures, limited exposure to people with intellectual disabilities, and lack of appropriate knowledge, attitudes and skills. Attendance at cervical screening was facilitated by prolonged preparation work undertaken by learning disability nurses, helpful clinical behaviours in the primary care context, and effective joint-working.

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A review of the literature: interventions to maximize capacity to consent and reduce anxiety of women with learning disabilities preparing for a cervical smear test

Cited by 9 publications

References 25 publications

Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Are cervical and breast cancer screening programmes equitable? The case of women with intellectual and developmental disabilities

Informed consent to healthcare interventions in people with learning disabilities – an integrative review

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

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