A Reconceptualization of the Negative Self-Stereotyping of the Patient-Partner to the Introduction of the Patient Perspective Consultant

Hovey, Richard; Pavate, Veeresh; Vigouroux, Marie; Amja, Kristina

doi:10.7812/tpp/20.006

Cited by 3 publications

(5 citation statements)

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“…The participants in this study discussed from their own perspective the amount of effort needed to live well with their condition, resulting in their "daily grind" being the work of managing their pain. With growing attention to patient experience and perspective, engagement research within both the clinical setting (healthcare) and the community, where lives are lived requires a reconciliation of the scientific explanatory (epistemology of pain) and the philosophical reflective (ontology of pain) together, such that healthcare is always reminded of the person living with a variety of chronic pain (Hovey et al, 2016(Hovey et al, , 2020. Developments in undergraduate and pre-licensure curricula have highlighted the usefulness of narrative medicine to prepare future nurses for more meaningful clinical encounters (Milota et al, 2019).…”

Section: Concluding Thoughtsmentioning

confidence: 99%

“…The experiences presented in this manuscript may serve to help people living with chronic pain validate their experiences, help nurses to relate to how chronic pain can be expressed by those who live with it beyond their time-limited medical appointments. Additionally, to help those working on research teams with “patient consultants” to better understand their perspectives and how their contributions are irreplaceable ( Hovey, 2022 ; Hovey & Paul, 2007 ; Hovey et al., 2020 ).…”

Section: Introductionmentioning

confidence: 99%

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The Daily Grind of Living With Chronic Pain: An Applied Hermeneutic Exploration

Hovey

2023

Global Qualitative Nursing Research

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The purpose of this research is to explore the philosophy regarding understanding the complex experience of living with chronic pain. As well, this article addresses a person’s suffering as an evolving process of learning to not only manage pain but to learn how to live well through exploring their suffering narrative. A hermeneutical interpretive approach was used to engage participants in this research and to offer a philosophical reinterpretation of living with chronic pain from a humanistic and tacit perspective. This work is offered to invite and extend our discussions about the complexity of living with chronic pain. It can also be understood as a process of rewriting oneself from a lived chaotic state of pain into a new affective historical consciousness. This transition from acute to chronic pain explored through a philosophical context can provide insight into the ways in which patients learn to live well with their condition.

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Section: Concluding Thoughtsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Daily Grind of Living With Chronic Pain: An Applied Hermeneutic Exploration

Hovey

2023

Global Qualitative Nursing Research

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“…Despite efforts to incorporate patients’ narratives into the diagnosis and care process, the asymmetrical power structures between physicians and patients allow testimonial injustice to occur and perdure ( 38 , 39 ).…”

Section: Theoretical Frameworkmentioning

confidence: 99%

“…The construct of epistemic oppression identifies how epistemology constitutes a structuring dimension of social injustice beyond actual ideas of racism, sexism and similar ideological system (37). Despite efforts to incorporate patients' narratives into the diagnosis and care process, the asymmetrical power structures between physicians and patients allow testimonial injustice to occur and perdure (38,39).…”

Section: Theoretical Frameworkmentioning

confidence: 99%

“He told me my pain was in my head”: mitigating testimonial injustice through peer support

Vigouroux

Newman²,

Amja

et al. 2023

Front. Pain Res.

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IntroductionWomen with disabilities are exposed to sexism and ableism, earn less income, and work in exceptionally challenging conditions compared to women without disabilities and men with or without disabilities. Adolescent girls living with scoliosis may begin experiencing this compounding bias during their encounters with healthcare from the moment they start noticing differences in their bodies. Being significantly more likely than boys to progress to a curve angle where painful treatment such as bracing or spinal fusion surgery is required, adolescent girls living with scoliosis are therefore more likely to experience chronic pain. The long-term impact of pain and pain-related stigma includes lower educational attainments, decreased vocational functionality, and social impairments in adults after having experienced chronic pain in adolescence.ApproachIn this article, the authors will explore the effects and mechanisms of gender-specific peer support in disrupting this trajectory to adverse outcomes. Through individual interviews consisting of open-ended questions, the researchers gathered narrative data from Curvy Girls members, a community-based peer support group for girls and young women living with scoliosis. The data was analyzed using an applied philosophical hermeneutics approach, with intersectionality and testimonial injustice as their framework.FindingsThey found that the study participants had their pain narratives reinterpreted by the adults in their lives, including their parents and healthcare practitioners, leading them to question and doubt their own experiences.DiscussionThese negative outcomes were mitigated through the peer support they received and offered from Curvy Girls. Participants reported having gained confidence and a sense of belonging after they joined this group, allowing them to better cope with their condition more effectively in different facets of their lives.

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“…As described by Ganadmer: “So powerfully does pain cause us to withdraw from all external experience of the world and turn us back upon ourselves” ( 4 ). We lose our sense of belonging in our own world and suffer in so many ways ( 14 ). It begins with physical pain but stretches perversely into all aspects of life.…”

Section: Enigmatic Relationship With Healthmentioning

confidence: 99%

Lives Penciled in, the Reality of Chronic Health Conditions and Trauma: Reflexivity, Health, and Shadowed Identities

Hovey¹,

Pavate²,

Vigouroux³

2022

Front. Pain Res.

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When living with chronic health conditions or experiences of trauma our lives can become perpetually penciled in. The use of the penciled-in metaphor means to arrange our time tentatively: a date, an appointment, a meeting, seeing a movie, or attending a class. In our technologically-driven world of electronic calendars where everything is entered electronically, the utility of the pencil and hand-written agendas have all but vanished. However, for the purpose of this article, the pencil provides a metaphoric common ground to learn about the totality of the disruption experienced by living with chronic health conditions and their residual trauma. The pencil is touchable, tangible and as a researcher and a person who lives with challenging health concerns, metaphors help me to create an understanding of the chaos of living a life in pain with cancer. This article is a person-centered account of the process of reflexive coping and self-processing of pain by a pain researcher and educator. This article focuses on the metaphor of penciled-in lives to provide a qualitative account of experiences of pain from chronic health issues and the trauma both physical and emotional it causes. This act of reflexivity becomes a personal examination of life. It reveals to me my beliefs, decisions, and practices before and during my hermeneutic journey and how these may have prejudiced my thinking and behaviors.

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A Reconceptualization of the Negative Self-Stereotyping of the Patient-Partner to the Introduction of the Patient Perspective Consultant

Cited by 3 publications

References 0 publications

The Daily Grind of Living With Chronic Pain: An Applied Hermeneutic Exploration

The Daily Grind of Living With Chronic Pain: An Applied Hermeneutic Exploration

“He told me my pain was in my head”: mitigating testimonial injustice through peer support

Lives Penciled in, the Reality of Chronic Health Conditions and Trauma: Reflexivity, Health, and Shadowed Identities

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