A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

Wakefield, Claire E.; Meiser, Bettina; Homewood, Judi; Taylor, Alan; Gleeson, Margaret; Williams, Rachel; Tucker, Kathy

doi:10.1002/pon.1353

Cited by 47 publications

(87 citation statements)

References 36 publications

(52 reference statements)

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“…Twenty-six of the 61 studies involved a patient decision aid [16,18,20,22,25,32,33,[47][48][49][50][51][52][53]56,[58][59][60][61]64,66,68,[72][73][74][75]. Four additional studies reported using education materials such as educational sessions or pamphlets but did not refer to them as decision aids [17,43,63,70].…”

Section: Summary Of Included Articlesmentioning

confidence: 98%

Measuring patient-centered care: An updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments

Winn

Ozanne

Sepucha

2015

Patient Education and Counseling

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Section: Summary Of Included Articlesmentioning

confidence: 98%

Measuring patient-centered care: An updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments

Winn

Ozanne

Sepucha

2015

Patient Education and Counseling

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“…Scale items are rated on a four point likert-type scale (0-4). This scale has demonstrated internal consistency reliability for GC patients [36][37][38]. Cronbach's alpha for the subscales were: depression subscale (a = .87) and anxiety subscale (a = .89).…”

Section: General Psychological Distressmentioning

confidence: 98%

Patient outcomes associated with group and individual genetic counseling formats

et al. 2011

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Identifying new methods to deliver cancer genetic counseling (GC) are needed to meet the growing interest in BRCA1/2 testing. The goal of this pilot feasibility study was designed to test the initial acceptability of group GC on selected patient outcomes (satisfaction, distress, perceived control) in a breast/ovarian cancer genetics clinic setting. Sixty-five participants at increased risk for hereditary breast/ovarian cancer (HBOC) agreed to participate in self-selected individual or group GC appointments. Forty-nine participants completed all study questionnaires and were included in the analyses. There were significant improvements for participants in both the individual and group GC formats with regard to perceived personal control, general psychological distress and cancer-specific psychological distress scores. Participants in both the individual and group formats reported high satisfaction scores on the Genetic Counseling Satisfaction Scale. Study results suggest that group GC may be feasible and acceptable to high-risk women.

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“…This decision should be supported by a type of counseling that considers the condition of each individual in a specific moment of his/her personal life [7,8].…”

Section: Introductionmentioning

confidence: 99%

Factors associated with an individuals’ decision to withdraw from genetic counseling for BRCA1 and BRCA2 genes mutations: are personality traits involved?

Caruso¹,

Vigna²,

Bigazzi³

et al. 2011

Familial Cancer

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The aim of the study was to evaluate factors associated with early withdrawal from oncogenetic counseling. A comparison of psycho-social and personality characteristics of two samples of subjects, attendees and withdrawers was carried out. Self-report questionnaires were completed by 112 individuals who had completed counseling and to 56 individuals who withdrew from it. Individuals with few children (OR. 1,724; p = 0,017; CI = 1,101-2,700), a lower number of cancer affected relatives (OR. 1,301; p = 0,000; CI = 1,145-1,479), and with a lower hypomanic scale score (OR. 1,070; p = 0,004; CI = 1,022-1,121), were more likely to withdraw from counseling. It is important for the counselees to draw more attention to the fact that their cancer risk management and prevention is as fundamental as that of their children. Also, it is important to highlight the fact that having less cancer affected relatives does not necessarily mean being at lower risk. In conclusion, that subjects with low levels of psychological and emotional energy are those who probably need greater psychological support during the decision making process. We deem necessary that psychologists, involved in genetic counseling, investigate these aspects during their sessions in order to implement suitable interventions of psychological support during the entire counseling process.

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A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

Cited by 47 publications

References 36 publications

Measuring patient-centered care: An updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments

Measuring patient-centered care: An updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments

Patient outcomes associated with group and individual genetic counseling formats

Factors associated with an individuals’ decision to withdraw from genetic counseling for BRCA1 and BRCA2 genes mutations: are personality traits involved?

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