A Race Equality Foundation Briefing Paper

Moriarty, Jo

doi:10.1108/17570980200900008

Cited by 6 publications

(5 citation statements)

References 17 publications

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“…Research on unmet need for LTC in England has found similarly that meanstested public entitlements may 'ameliorate but do not remove the increased risk among people in low-income households' (Burchardt et al, 2018: 1). The finding that ethnic minority care-recipient carer dyads were less likely to receive services for non-eligible needs, and less likely to receive services appropriate to their needs, is consistent with previous research on barriers to access of LTC (Moriarty, 2008;Greenwood et al, 2014). Lower material resources among some ethnic minorities in England, may mean that enabling and impeding factors such as availability and affordability are more pertinent for ethnic minority care-recipient-carer dyads.…”

Section: Discussionsupporting

confidence: 86%

Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Brimblecombe

2022

Journal of Poverty and Social Justice

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Internationally, many care-recipients and unpaid carers are not receiving the services they need to live full and independent lives, representing substantial social injustice. We explored unmet need and inequalities in receipt of long-term care services in England. Methods comprised in-depth interviews and secondary analysis of UK Household Longitudinal Study dyad data from 2017/2019. We found widespread unmet need for services overall and inequalities by sex, ethnicity, income, and area deprivation. Aspects of long-term care policy, service delivery, people’s material resources, and constrained and unconstrained choice all played a role.

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Section: Discussionsupporting

confidence: 86%

Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Brimblecombe

2022

Journal of Poverty and Social Justice

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“…Long-term conditions (also known as chronic conditions) are health conditions that are currently uncurable and consequently are managed with medication and other therapies (e.g., cardiovascular disease, diabetes and depression) [ 1 , 2 ]. In the UK, it is estimated that between 23% and 27% of the population live with two or more long-term conditions, and this number is expected to rise in the coming decades [ 2 , 3 , 4 ].…”

Section: Introductionmentioning

confidence: 99%

Ethnic Inequalities in Healthcare Use and Care Quality among People with Multiple Long-Term Health Conditions Living in the United Kingdom: A Systematic Review and Narrative Synthesis

Hayanga

Bécares

2021

IJERPH

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Indicative evidence suggests that the prevalence of multiple long-term conditions (i.e., conditions that cannot be cured but can be managed with medication and other treatments) may be higher in people from minoritised ethnic groups when compared to people from the White majority population. Some studies also suggest that there are ethnic inequalities in healthcare use and care quality among people with multiple long-term conditions (MLTCs). The aims of this review are to (1) identify and describe the literature that reports on ethnicity and healthcare use and care quality among people with MLTCs in the UK and (2) examine how healthcare use and/or care quality for people with MLTCs compares across ethnic groups. We registered the protocol on PROSPERO (CRD42020220702). We searched the following databases up to December 2020: ASSIA, Cochrane Library, EMBASE, MEDLINE, PsycINFO, PubMed, ScienceDirect, Scopus, and Web of Science core collection. Reference lists of key articles were also hand-searched for relevant studies. The outcomes of interest were patterns of healthcare use and care quality among people with MLTCs for at least one minoritised ethnic group, compared to the White majority population in the UK. Two reviewers, L.B. and B.H., screened and extracted data from a random sample of studies (10%). B.H. independently screened and extracted data from the remaining studies. Of the 718 studies identified, 14 were eligible for inclusion. There was evidence indicating ethnic inequalities in disease management and emergency admissions among people with MLTCs in the five studies that counted more than two long-term conditions. Compared to their White counterparts, Black and Asian children and young people had higher rates of emergency admissions. Black and South Asian people were found to have suboptimal disease management compared to other ethnic groups. The findings suggest that for some minoritised ethnic group people with MLTCs there may be inadequate initiatives for managing health conditions and/or a need for enhanced strategies to reduce ethnic inequalities in healthcare. However, the few studies identified focused on a variety of conditions across different domains of healthcare use, and many of these studies used broad ethnic group categories. As such, further research focusing on MLTCs and using expanded ethnic categories in data collection is needed.

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“…Issues relating to ethnicity were not a focus of the study; however, our participants were predominantly white. This may be because older people and carers from Black and other minority ethnic backgrounds are less likely to access the types of organisations we used for recruitment (Moriarty, 2008; Greenwood, 2018). This lack of access, and other potential differences in the experiences of needing, seeking and getting care (Moriarty, 2008; Greenwood, 2018; Harries et al ., 2019), means that future research on the care chronicles of different minority ethnic groups should be prioritised.…”

Section: Discussionmentioning

confidence: 99%

“…This may be because older people and carers from Black and other minority ethnic backgrounds are less likely to access the types of organisations we used for recruitment (Moriarty, 2008; Greenwood, 2018). This lack of access, and other potential differences in the experiences of needing, seeking and getting care (Moriarty, 2008; Greenwood, 2018; Harries et al ., 2019), means that future research on the care chronicles of different minority ethnic groups should be prioritised. The older people who participated in our study had a variety of care needs, and differing family structures and levels of financial resources, demonstrating the wide applicability of our findings.…”

Section: Discussionmentioning

confidence: 99%

Care chronicles: needing, seeking and getting self-funded social care as biographical disruptions among older people and their families

2022

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Social care to assist with the activities of daily living is a necessity for many older people; while informal care provided by family members can be a first step to meeting care needs, formal care provided by professionals is often needed or preferred by older people and their families. In England, the number of older people paying for formal care is set to rise, driven by an ageing population and the limited resources of local authorities. Little is known about how older people and their families experience the potentially disruptive processes of deciding upon, searching for and implementing such care, including the financial implications. This paper explores accounts of seeking self-funded social care in England, told by older people and their families in 39 qualitative interviews. These accounts, which we call ‘care chronicles’, include stories about the emergence of care needs and informal care-giving, the search for formal care, including interacting with new systems and agencies, and getting formal (paid) care, either as the recipient or an involved family member. Stories are analysed through the lens of biographical disruption, and analysis demonstrates that such disruptions can occur for older people and their families across the entirety of the care chronicle. Needing, seeking and getting care all have the potential to cause practical and symbolic disruptions; moreover, these disruptions can be cumulative and cyclical, as attempts to resolve or minimise one disruption can lead to new ones. While the concept of biographical disruption is a mainstay in medical sociology, it is less frequently applied to issues relating to social care, and most often takes embodiment as a key focus. This study is novel in its application of the concept to experiences of seeking self-funded care, and in its introduction of the concept of ‘care chronicles’, which invite a longer and broader view of biographical disruptions in the lives of older people with care needs and their families.

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A Race Equality Foundation Briefing Paper

Cited by 6 publications

References 17 publications

Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Ethnic Inequalities in Healthcare Use and Care Quality among People with Multiple Long-Term Health Conditions Living in the United Kingdom: A Systematic Review and Narrative Synthesis

Care chronicles: needing, seeking and getting self-funded social care as biographical disruptions among older people and their families

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