Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Brimblecombe, Nicola

doi:10.1332/175982721x16605972092524

Cited by 2 publications

(1 citation statement)

References 25 publications

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“…Systems theory has been used to understand and examine complex interventions, and how to evaluate them, and has been applied to service environments such as those we are discussing here, where multiple services (for example social work, education, mental health and voluntary sector organisations) and multiple individuals may be involved and affected. Brimblecombe and colleagues have emphasised the importance of taking a carer-inclusive approach when thinking about the unmet needs of individuals [55], while also considering the broader contexts which place constraints on the actions of all members of what has been termed the 'care triad' of care recipient, unpaid carer and practitioner: a contextual triadic approach [38]. These contexts include front-line practitioners in contact with families, local authorities, and national government; provision of care is 'rationed', despite policy support for meeting needs, at all these different contextual levels, as Arksey has argued [56].…”

Section: Plos Onementioning

confidence: 99%

Young carers’ experiences of services and support: What is helpful and how can support be improved?

Stevens,

Brimblecombe,

Gowen

et al. 2024

PLoS ONE

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Globally, many children and young people provide support to family members who have poor physical or mental health, are disabled, or misuse drugs and alcohol. These young carers are at higher risk of poorer education, employment, health, and social participation outcomes compared to their peers without caring responsibilities. In the UK, awareness of the challenges faced by young carers, and a framework of their legal rights, are relatively well-developed. However, it is unclear how support can most effectively be provided. Taking a qualitative approach we explored experiences and views of young carers (aged 9–25), conducting focus groups or interviews with 133 young carers and 17 parent care recipients. We explored what aspects of services and support are seen as helpful, valued, and acceptable to young people, and what could be improved. A reflexive, thematic analysis was conducted. Valued support came from: young carers groups (including peer support), school-based and mental health support, and support for the care recipient. Helpful aspects of support included someone who listens and understands, and can be trusted not to break confidentiality; involving the young person in information, decision-making and planning (sometimes including regarding the care recipient); and finding and linking to other services. There was a difficult balance for practitioners between being perceived as proactive, persistent or intrusive when offering support to a young carer, but it was important to allow opportunities for young carers, and those they care for, to change their minds about when and whether to access support. Many interactions were perceived as unhelpful or threatening to the family, and there was often not enough of the type of support that was valued. Sharing of positive experiences can be beneficial for both people seeking support and those delivering it; key messages on what is helpful from the perspective of young carers can help support and shape practice approaches.

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Section: Plos Onementioning

confidence: 99%

Young carers’ experiences of services and support: What is helpful and how can support be improved?

Stevens,

Brimblecombe,

Gowen

et al. 2024

PLoS ONE

Self Cite

View full text Add to dashboard Cite

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Understanding the unmet support needs of young and young adult carers and their families

Brimblecombe,

Stevens,

Gowen

et al. 2024

PLoS ONE

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Support for children and young people who provide unpaid care is important to help prevent negative impacts of caregiving on their education, employment, mental health, and social relationships. We aimed to address an evidence gap about what services and support are needed from young carers’ perspectives. We carried out focus groups or in-depth interviews with 133 carers aged 9–25 in England. Expressed unmet need for services and support could be grouped in three categories: support that would reduce or remove young people’s need to provide care, help improve the lives of the people they care for, mitigate against impacts of providing care on their mental health, wellbeing, education, social participation and leisure activities, and, whilst they are still providing care, assist them in their caring role. Action is needed to address these currently unmet needs and implement young carers’ and their families’ rights to support.

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Inequalities in receipt of long-term care services by disabled or older people and co-resident carer dyads in England

Cited by 2 publications

References 25 publications

Young carers’ experiences of services and support: What is helpful and how can support be improved?

Young carers’ experiences of services and support: What is helpful and how can support be improved?

Understanding the unmet support needs of young and young adult carers and their families

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