A Qualitative Study on the Experiences of Mothers Caring for Their Children With Thalassemia in Athens, Greece

Dimensions of informal care in Greece: the family's contribution to the care of patients hospitalized in an oncology hospital

“…The majority of the subjects acknowledge the nursing staff shortage in the ward. It has to be stressed that in earlier studies patients and family members’ made similar comments (Raftopoulos 2005, Sapountzi‐Krepia et al. 2006a,b).…”

“…2006a). In the Greek nursing literature, this phenomenon is highly correlated with the nursing staff shortage and specific cultural influences on care provision patterns (Sapountzi‐Krepia et al. 2001b, 2006a,b, Bellou‐Milona et al.…”

A family empowerment program for families having children with thalassemia, Thailand

“…The health of family members is affected by caring for children with thalassemia and reciprocally influences the illness of the affected children (Wright & Bell, 2009;Wright & Leahey, 2013). The mothers taking care of children with thalassemia experience emotional distress, fear of death, difficulties in managing personal feelings, and inadequate availability of supportive nursing services (Sapountzi-Krepia et al, 2006). Family caregivers also experience stress and anxiety, low self-esteem, and financial burdens (Wacharasin et al, 2006).…”

The Burden of Care: Experiences of Parents of Children with Thalassemia

“…Sapountzi et al in Greece conducted a qualitative study on the experiences of mothers caring for their children with thalassemia and interviewed with 19 mothers that had children with thalassemia. Emotional distress, fear of death and difficulties in dealing with feelings were some of the mothers' concerns [14].…”