A family empowerment program for families having children with thalassemia, <scp>T</scp>hailand

Wacharasin, Chintana; Phaktoop, Maneerat; Sananreangsak, Siriyupa

doi:10.1111/nhs.12201

Cited by 11 publications

(22 citation statements)

References 24 publications

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“…As such, the findings from the studies were presented as a narrative summary under five core themes: illness belief, health literacy, social interaction and communication, social and family support, and spirituality. Full-text articles assessed for eligibility (n= 57) Wacharasin et al 2015 4 Anum & Dasti 2016 14 Efe et al 2012 15 Nabors et al 2013 16 Kermansaravi et al 2018 17 Chusri et al 2019 18 Maheen et al 2015 19 Zaheer et al 2015 20 Habibzadeh et al 2012 21 Gold…”

Section: Search Resultsmentioning

confidence: 99%

“…The study by Wacharasin et al 4 found that illness belief was a cognitive map guiding the decision when families confront a chronic situation. Illness belief was, therefore, the dominant factor that influenced family functioning and is a crucial factor to understand how families cope with illness and suffering.…”

Section: Illness Beliefmentioning

confidence: 99%

“…Astudy by Zaheer et al 20 found that the family caregiver is worried about the illness presenting in their other children. Congruence with the study by Wacharasin et al 4 showed that the family empowerment program (FEP) had provided a process of health education and genetic counseling by the hematologist to enhance knowledge competency. This leads to the critical judgment about the reproductive behavior of the family caregiver.…”

Section: Health Literacymentioning

confidence: 99%

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Punaglom

Mangkarakeree²

2020

bkkmedj

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia F amily is a crucial support system for all family members, especially when faced with chronic illnesses including thalassemia. 1 Thalassemia is an inherited disease that requires continuous care. The standard treatments for children living with thalassemia are folic acid supplements, blood transfusion, iron chelation therapy, and splenectomy or stem cell transplantation in selected cases. Children living with thalassemia inevitably encounter the immense impacts of this inherited disease and its treatment, as well as needing to continue receiving care from their parents throughout their life. This situation seems likely to be the challenge event that triggers the adaptation of the entire family to meet the increased demand and the complex need of children living with thalassemia. 2 The goal for caring for children living with thalassemia focuses on the children adapting well to their illness, and to be fulfilled with the feeling of responsiveness from their family to allow them to meet their developmental needs as much as possible. However, this depends upon the limitations of thalassemia. This reflects the necessity of family functioning at a high level as an important mechanism to drive family tasks to reach those goals. Family functioning refers to the capability of the whole family to maintain the function of the entire family, consisting of problem-solving, communication, role, affective involvement, affective responsiveness, and behavior control in order to provide a setting for the social, psychological, and biological development and maintenance of family members. 3 In other words, family functioning shows the adaptive ability of the whole family in terms of how the family manages the care of children living with thalassemia and the extent to which they are able to incorporate thalassemia into their daily lifes. 3,4 By achieving a high level of family functioning, this will result in the family providing the best care for children living with thalassemia resulting in a healthy well-being for children. 5 However, there is widespread recognition that caring for

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Section: Search Resultsmentioning

confidence: 99%

Section: Illness Beliefmentioning

confidence: 99%

Section: Health Literacymentioning

confidence: 99%

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Punaglom

Mangkarakeree²

2020

bkkmedj

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“…Failure to fulfil needs results in an imbalance in one's condition that will affect mental and physical health (Asmadi, 2008;Winstanley, Simpson, Tate, & Myles, 2006). The health problems occurred in parents will affect the care of their children with thalassemia and lead an impact on children's health (Mediani et al, 2017;Wacharasin, Phaktoop & Sananreangsak, 2015), besides that, children also spend more time at home with parents compared to hospitals so parents can provide care better for their children (Wilder, 2010).…”

Section: Introductionmentioning

confidence: 99%

Factors Related to the Needs of Parents Having School Age Thalassemic Children

2019

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Thalassemia is a major genetic blood disorder that has negative impacts on thalassemic children and their family. The needs of parents while caring for thalassemia children are important matters because the failure of meeting needs of parents may affect their mental and physical health. Yet, litle is known about factors that meeting the needs of thalasemic child parents. The study aim was to identify factors that correlate with the needs of parents having a school age thalassemic child in west jave province. This research used correlational analytic with cross sectional approach. The population in this study were parents of school-age children with thalassemia major totaling 136 people using the total sampling method. Data were analyzed with bivariate using chi square and biserial points. Then a multivariate analysis used logistic regression. The results showed the age of parents related to information (p = 0.005) and professional (p = 0.004), parent gender related to information (p = 0.000), professional (p = 0.017), social (p = 0.035), financial (p = 0.023) and spiritual (p = 0.009). Parental education is related to information (p = 0.000), social (p = 0.005), emotional (p = 0.000), financial (p = 0.016) and spiritual (p = 0.001). Parent income is related to information (0.000), social (p = 0.006), emotional (p = 0.000), financial (p = 0.003) and spiritual (p = 0.004). The number of thalassemia major children is related to emotional (p = 0.015) and financial (p = 0.013). Parental needs are related to several factors. The importance of increasing the role of nurses as educators and consultants and helping parents find sources of spiritual, emotional and financial support for parents of school-age children with thalassemia.

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“…It also helped bring a balance in the family needs and the way they used to meet their needs. 30 The participants in this study were the mothers of children with autistic disorder. Obviously, our findings cannot be generalized to all members of the family.…”

mentioning

confidence: 99%

The effect of group therapy using the cognitive approach on the empowerment of mothers raising a child with autistic disorder:A randomized-controlled clinical trial

Ebrahimi

Vahidi

Malek

et al. 2019

J Anal Res Clin Med

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Introduction: The diagnosis of autistic disorder may impose stress on the child’s parents especially the mother of the baby. Raising a child with autistic disorder reduces parents' quality of life. This study examined the effect of group therapy using a cognitive approach on empowerment in the mothers of children with autistic disorder. Methods: This randomized clinical trial was carried out with 80 mothers of children with the autistic disorder. They referred to Autism Society Rehabilitation Center in Tabriz, Iran. The mothers were randomly allocated into intervention and control groups. The intervention group was divided into 4 groups of 10, and each group participated in 10 sessions of group therapy using the cognitive approach. The control group received the routine care. Data were collected using the Family Empowerment Scale (FES) before the intervention and two months after the intervention. Data were analysed using descriptive and inferential statistics [t-test, χ2, and analysis of covariance (ANCOVA)] via the SPSS software. Results: The independent t-test showed that the means of total empowerment and its dimensions had no statistically significant differences before the intervention. However, after the intervention, such differences between the groups were statistically significant (P < 0.001); so that the mothers in the intervention group achieved higher scores on empowerment and its dimensions compared with the control group. Conclusion: Group therapy using the cognitive approach can be used by healthcare professionals in rehabilitation centers for empowering the mothers of children with autistic disorder.

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A family empowerment program for families having children with thalassemia, Thailand

Cited by 11 publications

References 24 publications

Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Factors Related to the Needs of Parents Having School Age Thalassemic Children

The effect of group therapy using the cognitive approach on the empowerment of mothers raising a child with autistic disorder:A randomized-controlled clinical trial

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