A qualitative study of the information needs of premenopausal women with breast cancer in terms of contraception, sexuality, early menopause, and fertility

Karaöz, Banu; Aksu, Hilmiye; Küçük, Mert

doi:10.1016/j.ijgo.2009.11.027

Cited by 47 publications

(81 citation statements)

References 13 publications

(13 reference statements)

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“…30,31 For women, fertility concerns are often overlooked during initial diagnosis. 6,23,[31][32][33][34] Utilization rates of fertility preservation services for women cancer patients in the United States are low, ranging from 4% to 20%. 35,36 There is an overwhelming level of frustration among female survivors with the lack of fertility information received.…”

Section: Practice Guidance For Fertility Preservationmentioning

confidence: 99%

“…23 Women have reported feeling uninformed, unsupported, and not encouraged to delay treatment to consider fertility preservation options. 6,32,33 For many survivors the ability to achieve biological parenthood is essential for a satisfying quality of life. 24 Among adult survivors without children at the time of diagnosis, 76% reported a concern about having children after cancer.…”

Section: Practice Guidance For Fertility Preservationmentioning

confidence: 99%

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A Review of the Oncology Patient's Challenges for Utilizing Fertility Preservation Services

Flink

Sheeder

Kondapalli

2017

Journal of Adolescent and Young Adult Oncology

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Purpose: The American Society of Clinical Oncology issued practice guidelines in 2006 to provide critical information about fertility impact to adolescents and young adults (AYA) at the time of cancer diagnosis. Survivors continue to express concerns about their long-term reproductive health after cancer therapy even as treatment options for fertility preservation evolve. An underutilization of fertility preservation methods by cancer patients continues to persist. A review of the literature cites barriers and challenges that limit fertility information and preservation options for AYA cancer patients. Methods: A review of medical literature was conducted to examine current practice for patients receiving fertility information and the barriers to patients receiving fertility preservation services. Results: A total of 69 publications were included in this review. The review summarizes (1) patient experiences with receiving fertility information and (2) patient desires, barriers, and challenges to utilizing fertility preservation services. Conclusions: Despite advances in fertility preservation, there are challenges for patients to utilizing fertility preservation services. Barriers include the following: urgency to initiate treatment, inadequate information, clinic time constraints, and perceptions around patients' gender, age, cost, parity, race, relationship, and sociodemographic status influence whether patients receive fertility preservation consultation. Patients report a lack of adequate information to make informed fertility decisions.

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Section: Practice Guidance For Fertility Preservationmentioning

confidence: 99%

Section: Practice Guidance For Fertility Preservationmentioning

confidence: 99%

A Review of the Oncology Patient's Challenges for Utilizing Fertility Preservation Services

Flink

Sheeder

Kondapalli

2017

Journal of Adolescent and Young Adult Oncology

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“…However, they reported being conscious of their need for contraception and attempted to obtain related information from other sources 43 .…”

Section: Informational Needs and The Health Systemmentioning

confidence: 99%

“…Furthermore, according to Karaöz et al, women worried that having a child would pose an unsustainable financial and psychological burden should they choose to become pregnant after BC treatment 43 . As YW might face employment difficulties during diagnosis, treatment, and survivorship, the deriving economic problems that affect their family finances could force them and their families to engage in new activities 29,49 .…”

Section: Practical Needsmentioning

confidence: 99%

Special Needs of Young Women with Breast Cancer in Limited Resource Settings

Gálvez-Hernández

González-Robledo

Barragán-Carrillo

et al. 2017

RIC

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“…Patients relatives are affected from this state and can be responsible for decision of disease course (5,6). Most patients want detailed prognostic information (7)(8)(9)(10)(11)(12). The first question a medical oncologist does not want to hear from his patient and to respond due to giving emotional stress is ''How long more will I live?''.…”

Section: Introductionmentioning

confidence: 99%

The difficulty of saying cancer diagnosis to the patients with cancer

Mutlu¹,

Akca²,

Cihan³

et al. 2012

Gaziantep Med J

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Cancer is located in the higher ranks of the most feared disease groups. The psychology of patients diagnosed with cancer and their relatives have significantly affected. At this stage, the attitude of doctor and requests of patients may change. A questionnaire about the diagnosis and the period of learning and being told to patients was applied to newly diagnosed cancer patients. A total of 6 questions about the stage of establishing diagnosis and being told to patients was asked to a total of 200 newly diagnosed patients and applied to Medical Oncology Department in Kayseri Education and Research Hospital for the first time in an appropriate environment by the same person. Of patients who have undergone minor or major surgical procedure for the diagnose, 58,5% did not know their disease. Of patients who did not know their disease, 85% wanted to know their diagnosis after the diagnosis was established. The most important reason for diagnostic procedures told to patients was mass with the rate of 34,5%. However, of the patients who did not know their disease, 33% stated that they intuited cancer as to be their diagnosis, although the diagnosis was not told them. The diagnosis of the patients are not told them with attitude of relatives, the patient and the physician although a number of examinations and interventional procedures, and this task is left to the medical oncologists. Although the patients' relatives and even patients' themselves say that they do not know their diagnosis, at least 33% of patients intuit their diagnosis if they are carefully interrogated. Keywords: Cancer; diagnosis; to say diagnosis; willingness learning the diagnosis Özet Kanser en çok korkulan hastalık grupları arasında üst sıralarda yer almaktadır. Kanser teşhisi konulan hastalar ve akrabaları ciddi şekilde etkilenmektedir. Bu noktada, doktorun tutumu ve hastaların istekleri değişebilebir. Yeni kanser teşhisi konan hastalara teşhis, öğrenme ve bilgilendirme süreçleri ile ilgili bir anket yapılmıştır. Kayseri Eğitim ve Araştırma Hastanesi Onkoloji Bölümüne başvurmuş ve yeni kanser teşhisi konmuş 200 hastaya tanı konması ve teşhisin söylenmesi ile ilgili aynı kişi tarafından toplam 6 adet soru sorulmuştur. Tanı amaçlı küçük ya da büyük cerrahi operasyon geçiren hastalardan %58,5'i hasta olduklarından haberdar değildi. Hastalığından haberdar olmayan hastalardan %85'i tanı konulduktan sonra tanıyı bilmek istemiştir. Hastalara söylenen tanısal işlemlerin en önemli sebebi %34,5 ile kitle idi. Ancak, hastalığından haberdar olmayan hastaların %33'ü kanser olduklarını kendilerine söylenmeden sezdiklerini ifade etmişlerdir. Hastaların teşhisleri akrabaların tutumları ile, yapılan tıbbi müdahalelerle kendilerine söylenmemiş, bu görev tıbbi onkologlara bırakılmıştır. Her ne kadar hasta yakınları ve hatta hastaların kendileri de tanıdan haberdar olmadıklarını ifade etseler de hastaların en az %33'ü durumu sezdiklerini dikkatli bir sorgulama ile ifade etmişlerdir.

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A qualitative study of the information needs of premenopausal women with breast cancer in terms of contraception, sexuality, early menopause, and fertility

Abstract: In Turkey, premenopausal women with breast cancer should receive comprehensive information and counseling from oncology staff on the issues studied. The present study may guide future research on this topic.

Cited by 47 publications

References 13 publications

A Review of the Oncology Patient's Challenges for Utilizing Fertility Preservation Services

A Review of the Oncology Patient's Challenges for Utilizing Fertility Preservation Services

Special Needs of Young Women with Breast Cancer in Limited Resource Settings

The difficulty of saying cancer diagnosis to the patients with cancer

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