A qualitative longitudinal case study of a daughter's adaptation process to her father's aphasia and stroke

Dorze, Guylaine Le; Tremblay, Véronique; Croteau, Claire

doi:10.1080/02687030801890909

Cited by 14 publications

(16 citation statements)

References 40 publications

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“…Anxiety has been less commonly explored in family members of people with stroke, even though anxiety may be more prevalent than depression in this population (Greenwood & Mackenzie, 2010) and burden, anxiety, and depression are related (Visser-Meily et al, 2009). A comprehensive investigation of anxiety in family members of people with aphasia has not been conducted, though anxiety in family members has been identified in other studies (Hemsley & Code, 1996;Le Dorze et al, 2009;Michallet et al, 2003;Nätterlund, 2010;Pound, Parr, & Duchan, 2001;Rice, Paull, & Muller, 1987). Given the incidence of depression and anxiety in family members and the association between the two, clinicians should be alert to these conditions (Visser-Meily et al, 2009).…”

Section: Discussionmentioning

confidence: 96%

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

et al. 2013

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the term "third-party disability" and identifies the need for further investigation into family members' Functioning and Disability in relation to a significant other's health condition. Aims: This qualitative investigation represents the first phase of a mixed methods study to develop a tool for measuring third-party functioning and third-party disability in aphasia. The aims of this phase of the study were to explore: (1) the positive aphasia-related changes associated with third-party functioning, and; (2) the negative aphasia-related changes associated with third-party disability, as experienced by family members of adults with aphasia post-stroke. Methods & Procedures:This study used an inductive design with a qualitative descriptive research strategy to explore the lived experience of having a relative with aphasia. Twenty family members (e.g., spouses, parents, children, siblings, etc.) of individuals with aphasia participated in individual in-depth semi-structured interviews. The interviews were analysed using qualitative content analysis. Outcomes & Results: Analysis revealed five categories of positive aphasia-related changes associated with third-party functioning: (1) emotions; (2) communication; (3) relationships; (4) recreational activities and social life; and (5) paid/volunteer work or education. In addition, seven categories of negative aphasia-related changes associated with thirdparty disability were revealed: (1) physical, mental, and emotional health; (2) communication; (3) relationships; (4) recreational activities and social life; (5) paid/volunteer work or education; (6) domestic and caregiving responsibilities; and (7) finances. Conclusions: Interpreted within the framework of the ICF, this study showed how the pervasive effects of aphasia are associated with changes in Functioning and Disability in family members, providing a holistic description of family members' experience using

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Section: Discussionmentioning

confidence: 96%

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

et al. 2013

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“…Also of interest is the influence of the environmental factor of support and relationships on the third-party disability of family members. For instance, an existing social support network and a flexible employer may be facilitators to health [67], while lack of support from other family members may be a barrier [42]. Future intervention studies may provide more information about how support groups and counselling may lessen the effect of aphasia on family members [65,68].…”

Section: Identifying Factors That Affect the Development Of Thirdpartmentioning

confidence: 93%

“…While studies have included the adult children of people with aphasia [46,67], very little attention has been paid to the effect of aphasia on non-adult children. This review includes only one article that acknowledges the effect of aphasia on a child.…”

Section: Third-party Disability In Children Of People With Aphasiamentioning

confidence: 99%

Third-party disability in family members of people with aphasia: a systematic review

Grawburg

Howe

Worrall

et al. 2013

Disability and Rehabilitation

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“…The information needs of stroke PCF experiencing SLD are substantial and change with time, according to the time period following the stroke [36][37][38][39][40]. Despite well-documented benefits of providing written health information, stroke patients with SLD do not necessarily receive the information they require from health professionals, and information may be too complex [32,34,36,41,42], particularly among stroke patients with aphasia [43].…”

Section: The Information Needs Of Patients With Speech and Language Dmentioning

confidence: 99%

“…The SLD-related information needs, however, range from general information on the condition to practical help in communicating, and information on further speech and language therapy [26,37,40,46,48,52,53]. PCFs have information needs as regards alternative therapies, independent living, such as job retraining and volunteer opportunities [48].…”

Section: The Information Needs Of Patients With Speech and Language Dmentioning

confidence: 99%

An assessment of the quality of information on stroke and speech and language difficulty web sites

Surman

Bath

2013

Journal of Information Science

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Online healthcare information is used by patients, their carers and families (PCF) experiencing speech and language difficulties (SLD) after a stroke. This information may be of variable quality. Tools have been designed to assess the risk of poor information quality, evaluating both generic and specific concepts, yet none focus on stroke. The readability of information is also an issue when communication disorders are in consideration. The study investigated the quality and readability of information on 51 web sites pertaining to SLD following a stroke. These were assessed using two generic evaluation tools (DISCERN and the HON Code), readability tests (Flesch Reading Ease and Flesch-Kincaid Grade Level), and a specifically designed Stroke Tool based on the reported information needs of stroke PCF experiencing SLD. The tools themselves were then evaluated for their feasibility, reliability and validity. In common with previous studies, the information quality of the selected web sites was found to be extremely variable with only 59% achieving a score of 50% or more using HON, only 37% using DISCERN, and 49% using the Stroke Tool. Readability is generally very poor with only 6% of web sites scoring below the recommended grade 7. The tools did not correlate well, suggesting that they measure different domains of quality. The Internet may be a valuable resource for stroke PCF however the variable quality of information means that cautious use is recommended. The readability of information is a more serious issue that needs addressing by web site developers.

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A qualitative longitudinal case study of a daughter's adaptation process to her father's aphasia and stroke

Cited by 14 publications

References 40 publications

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

Third-party disability in family members of people with aphasia: a systematic review

An assessment of the quality of information on stroke and speech and language difficulty web sites

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