A qualitative exploration of the experiences of living with and being treated for fibromyalgia

Ashe, Simon; Furness, Penny; Taylor, Sophie; Haywood-Small, Sarah; Lawson, Kim

doi:10.1177/2055102917724336

Cited by 48 publications

(70 citation statements)

References 45 publications

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“…Several studies show for instance that patients with fibromyalgia feel left alone in their search for treatment. Furthermore, they often experience not being respected when presenting their health problems in encounters with health professionals (38)(39)(40)(41)(42). A plausible interpretation is that when the presence of objective signs of disease, in medical terms, are not identified, the patients are left in an unclarified and vulnerable situation.…”

Section: Discussionmentioning

confidence: 99%

Patients’ quest for recognition and continuity in health care: time for a new research agenda?

Gjengedal

Sviland

Moi

et al. 2019

Scandinavian Caring Sciences

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User involvement is important in democratization of healthcare and is assumed to contribute to better and more relevant research. Despite increased requirements for user involvement in research, more studies are still needed. This study aimed at exploring what research agenda people with varied health problems consider as important, based on their own experience. The study had a phenomenological approach with a qualitative design. The sample consisted of 23 informants; nine had been critically ill and 14 were suffering from chronic muscle pain. Data were collected in five focus group interviews and one individual interview. A phenomenological approach was used in analyzing the data. Written consent was obtained from all the participants, and ethical considerations were taken throughout the entire research process. Despite various experiences among the participants, a quest to be taken 2 seriously over time by healthcare professionals emerged as a strong meaning structure in both groups. Based on these experiences, continuity across lifetime changes turned out to be an important research topic for future research. User involvement should be appreciated in all parts of the research process. A crucial prerequisite is that the users get the opportunity to bring their own experiences into the process.

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Section: Discussionmentioning

confidence: 99%

Patients’ quest for recognition and continuity in health care: time for a new research agenda?

Gjengedal

Sviland

Moi

et al. 2019

Scandinavian Caring Sciences

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“…Access to community-based aquatic services is challenging in some areas due to the closure of hydrotherapy pools and increased patient cost (Ashe, Furness, Taylor, Haywood-Small, & Lawson, 2017;Martin, Gilbert, & Jeffries, 2018).…”

Section: Discussionmentioning

confidence: 99%

Fibromyalgia Self‐Management: Mapping the behaviour change techniques used in a practice‐based programme

Pearson

Whale

Walsh

et al. 2020

Musculoskeletal Care

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Background Fibromyalgia (FM) is a complex long‐term condition associated with pain, fatigue and concentration difficulties. There is limited robust evidence for the effectiveness of pharmacological treatments for FM, with current guidelines recommending nonpharmacological interventions. The clinically developed Fibromyalgia Self‐Management Programme (FSMP) is a nonpharmacological, multidisciplinary education group intervention. The FSMP aims to provide condition‐specific, patient‐centred education and exercise advice, supporting the development of core self‐management skills. This research aimed to map the FSMP to a recommended behaviour change taxonomy (BCT). Methods Non‐participatory observations of the 4‐ and 6‐week FSMP were conducted. Detailed notes on the content of the course, therapist delivery and any additional content not included in the manual were recorded. Subsequently, semistructured interviews were conducted with both therapists (n = 4) and patients (n = 9). Observation and a review of the FSMP manual data were deductively coded to the BCT. Interview data were added to the framework. Results The review of the FSMP manual and observations of the course showed that the programme coded onto 12 of the 16 BCT domains, encompassing 22 behaviour change techniques. Both patient and therapist interviews indicated that patients made positive changes, including increased activity levels, pacing, better quality sleep and improved communication with family members. Patients reported improvements to symptoms as a result of attending the course. Conclusions The FSMP utilises a range of behaviour change techniques. Patients who attend the course feel supported to make changes to their behaviour, enabling them to manage their symptoms more effectively.

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“…A qualitative interview study (Ashe et al, 2017) informed the development of the online survey. The survey assessed symptom severity, mood, cognitive impairment, and comorbid conditions because these have not previously been assessed across adulthood in people with fibromyalgia using fine-grained age groups.…”

Section: Methodsmentioning

confidence: 99%

Comorbid Conditions, Mental Health and Cognitive Functions in Adults with Fibromyalgia

et al. 2020

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This study examined age group differences across adulthood in comorbid conditions, mental health, and cognitive function in people with fibromyalgia. Participants completed an online survey about how fibromyalgia affects their everyday life. Chi square analyses were conducted to examine associations between age groups and (a) comorbid conditions and (b) severity of anxiety and depression. ANOVA analyses examined age group differences on aspects of self-report cognitive function. The greatest prevalence of comorbid conditions was found in middle adulthood. Early adulthood was associated with more cases of severe anxiety with the lowest number of cases being in the oldest age group. Middle adulthood was associated with worse self-report pain compared to the youngest age group. Older adults showed better self-report cognitive function compared to younger adults. Distinct age profiles based on comorbid conditions, mental health, and symptom severity across adulthood in fibromyalgia have been demonstrated.

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A qualitative exploration of the experiences of living with and being treated for fibromyalgia

Cited by 48 publications

References 45 publications

Patients’ quest for recognition and continuity in health care: time for a new research agenda?

Patients’ quest for recognition and continuity in health care: time for a new research agenda?

Fibromyalgia Self‐Management: Mapping the behaviour change techniques used in a practice‐based programme

Comorbid Conditions, Mental Health and Cognitive Functions in Adults with Fibromyalgia

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