A pilot randomised controlled trial of a multimodal supportive care (ThriverCare) intervention for managing unmet supportive care needs in men with metastatic prostate cancer on hormonal treatment and their partner/caregivers

Paterson, Catherine; Primeau, Charlotte; Nabi, Ghulam

doi:10.1016/j.ejon.2018.10.007

Cited by 27 publications

(77 citation statements)

References 36 publications

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“…Of the 13 studies included in our review, nine are RCTs and four are quasi‐experimental studies 35 . Six studies were conducted in the United States, 36–40 while the remaining studies were conducted in Sweden, 41 Northern Ireland, 42 the Netherlands, 43 United Kingdom, 44 Malaysia, 45 Iran 46 and Norway 47 . All studies included were published between 2007 and 2019.…”

Section: Resultsmentioning

confidence: 99%

“…The sample size of the studies ranged considerably, with the RCTs ranging from 16 37 to 179 47 participants, and the quasi‐experimental studies ranging from 38 40 to 105 46 . Eleven studies focused specifically on older adults, 36,39–48 whereas two studies conducted a subgroup analysis 37,38 . A summary of the characteristics of each study included in this systematic review can be found in Tables 1 and 2.…”

Section: Resultsmentioning

confidence: 99%

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Systematic review of self‐management interventions for older adults with cancer

et al. 2021

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Aim The purpose of this systematic review was to determine the effectiveness of self‐management interventions for older adults with cancer and to determine the effective components of said interventions. Methods We conducted a systematic review of self‐management interventions for older adults (65+) with cancer guided by the Preferred Reporting Items for Systematic Reviews and Meta‐Analysis statement. We conducted an exhaustive search of the following databases: Ageline, AMED, ASSIA, CINAHL, Cochrane, Embase, Medline, PsychINFO, and Sociological Abstracts. We assessed for quality using the Cochrane Risk of Bias tool and Down & Black for quasi‐experimental studies, with data synthesized in a narrative and tabular format. Results Sixteen thousand nine hundred and eight‐five titles and abstracts were screened, subsequently 452 full‐text papers were reviewed by two independent reviewers, of which 13 full‐text papers were included in the final review. All self‐management interventions included in this review measured Quality of Life; other outcomes included mood, self‐care activity, supportive care needs, self‐advocacy, pain intensity, and analgesic intake; only one intervention measured frailty. Effective interventions were delivered by a multidisciplinary teams (n = 4), nurses (n = 3), and mental health professionals (n = 1). Self‐management core skills most commonly targeted included: problem solving; behavioural self‐monitoring and tailoring; and settings goals and action planning. Conclusions Global calls to action argue for increased emphasize on self‐management but presently, few interventions exist that explicitly target the self‐management needs of older adults with cancer. Future work should focus on explicit pathways to support older adults and their caregivers to prepare for and engage in cancer self‐management processes and behaviours.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Systematic review of self‐management interventions for older adults with cancer

et al. 2021

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“…Ruesch et al 4 emphasized the need for a sensitive, individual, and needs‐oriented approach to informing patients and partners. Paterson et al 32 and McCabe et al 17 noted that a one size fits all care approach is not applicable, and care should be customized to the unique needs of an individual. Our findings underscore the conclusions of the authors by indicating that the provision of information must be responsive to individual needs and should be adapted accordingly.…”

Section: Discussionmentioning

confidence: 99%

Patients' and partners' experiences with prostate cancer and advanced practice nurse counselling

Geese

Willener

Spichiger

2021

Int J of Uro Nursing

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Patients with prostate cancer (PCa) often experience physical and psychological challenges after diagnosis and therapeutic side effects after radical prostatectomy. To meet the needs of these patients and their partners, an advanced practice nurse (APN) support programme was initiated at a Swiss university hospital. The APN served as a constant contact person and offered psycho‐oncological counselling from the first day after radical prostatectomy to follow‐up care in the outpatient clinic, every third month over the first year and twice in the second year. Counselling was provided in‐person and through the phone. It focused on coping skills regarding cancer‐related distress, hospital stay, treatment and therapeutic side effects, post‐discharge life, and physical activity. This study aimed to explore the experiences of patients and partners with the disease, including diagnosis, radical prostatectomy, and follow‐up care. Additionally, their experience with the APN support programme was evaluated. A qualitative content analysis, according to Mayring, was used. Interviews were conducted with 10 patients and 8 partners who participated in the APN counselling programme. Interviews were performed individually in‐person or by telephone. Patients reported a variety of experiences with respect to the diagnostic process and the final decision for radical prostatectomy. Patients and spouses also described some unmet information needs during the PCa care continuum. They wished they received more information about PSA testing, treatment options, and management of surgically induced side effects such as incontinence and erectile dysfunction. While most couples mastered the situation together, some patients did not involve their spouses. During the hospital stay, patients felt well cared for; the spouses agreed. Urinary incontinence was the primary challenge after discharge. Later, erectile dysfunction was a challenge for most participants. While counselling was experienced differently, patients and spouses valued the trustworthy APN as a constant contact person. In clinical practice, needs‐tailored information should be provided by all involved healthcare professionals. In addition, a support programme for patients and partners that includes an APN as a constant contact person over the PCa continuum is recommended.

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“…Studies indicate that caregivers play an important role in the rehabilitation process of patients (Kemp et al., 2018). Moreover, many interventions for patient–caregiver dyads have attempted to improve both caregivers’ and patients’ health (Paterson, Primeau, & Nabi, 2018; Stockwell‐Smith, Moyle, & Kellett, 2018).…”

Section: Introductionmentioning

confidence: 99%

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

Dong

Wei

Wang

et al. 2020

Journal of Advanced Nursing

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Aims: To explore the intellectual landscape of care-giving studies and identify research trends and hotspots in this field. Design: A bibliometric and scientometric analysis of care-giving literature was undertaken from January-February 2020. Methods: CiteSpace was used to analyse research published between 1900-2019. A references-based co-citation analysis was used to identify the intellectual landscape of care-giving research. A keywords-based co-occurrence analysis with citation bursts was used to explore research hotspots and frontiers. Lastly, a co-authorship network analysis was used to identify cooperation among authors, countries, and institutions. Results: There has been an increasing trend in the number of publications on caregiving research with light fluctuations. Relevant literature mainly focused on the fields of oncology and psychiatry. The keywords-based analysis indicated that the main research targets had previously been informal caregivers of patients with stroke, Alzheimer's disease, and schizophrenia. In recent years, focus has shifted onto informal caregivers of patients with cancer, heart failure, and those at end-of-life. Conclusion: This bibliometric and scientometric analysis helps us understand the current state of caregiver research and its recent developments. Impact: • Caregivers' mental health and care experience have become research hotspots. Where and on whom will the research have an impact?: • This research allows the development of future research on care-giving. • Future researchers should explore effective interventions for the health of patient-caregiver dyads.

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A pilot randomised controlled trial of a multimodal supportive care (ThriverCare) intervention for managing unmet supportive care needs in men with metastatic prostate cancer on hormonal treatment and their partner/caregivers

Abstract: A pilot randomised controlled trial of a multimodal supportive care (ThriverCare) intervention for managing unmet supportive care needs in men with metastatic prostate cancer on hormonal treatment and their partner/caregivers.

Cited by 27 publications

References 36 publications

Systematic review of self‐management interventions for older adults with cancer

Systematic review of self‐management interventions for older adults with cancer

Patients' and partners' experiences with prostate cancer and advanced practice nurse counselling

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

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