A partnership approach to service needs assessment with family caregivers of an aging relative living at home: A qualitative analysis of the experiences of caregivers and practitioners

The needs of informal caregivers of elderly people living at home: an integrative review

“…Informal caregivers with more years of schooling were detected in studies conducted in Europe, United States of America, Australia and Japan . The lower levels of schooling were described in the studies carried out in Brazil, Mexico and Thailand .…”

The relatives’ voice: how do relatives experience participation in reablement? A qualitative study

“…Several researchers11,12,17,31,32 argue that health care providers should focus on developing partnerships with family caregivers that recognize the active and essential role these individuals play in our health care system. This collaborative model recognizes and promotes the ability of caregivers to identify and articulate their needs and problems as they experience them.…”

“…This is confirmed in studies by Wilde and Glendinning,2 Glendinning et al,19 and Rabbie and Glendinning,20 who argue that appreciating others’ knowledge as a resource for the reablement process is essential. Lévesque et al11 advocate for the creation of an action plan following negotiation between the practitioner and the caregiver. The partnership process empowers the caregivers by allowing them to take an active role in the meeting and to realize that the professionals truly want to know their opinions.…”

“…However, tensions between the older adults, the relatives, and the professionals could arise over the goals or the services proposed because the interests of each party do not always coincide. This ethical dilemma has to be resolved in a climate of trust and through the process of dialogue and negotiation between all parties involved in the decision 11. Partnership is an interactive process that fosters symmetry between the person in need of service, the relatives, and the professional team.…”

The frail person and his caregiver: cure, care or simultaneous care? A conceptual article

“…On the other side, the family is becoming a subject of care charged with important physical, psychological, relational and working consequences. A lot of chronic diseases become family diseases because they impact on the balance of the family itself to whom we have to guarantee education and a continuous, adaptive support [6,7].…”