“…17,18 Recent psychometric research utilizing factor analysis revealed three main areas of concern for HD carers: individualized care for their relative, availability of community resources and HD knowledge in healthcare professionals. 10,19 As the first point of contact inthe Canadian healthcare system, primary care plays a central role for families affected by genetic illness, including HD. Information about genetic tests is increasingly available to patients via the internet, popular media and direct-toconsumer marketing, and patients are likely to turn to their primary care providers (PCPs) for advice in making informed decisions about genetic services.…”