A meta-analytic review of the influence of pediatric cancer on parent and family functioning.

Pai, Ahna L. H.; Greenley, Rachel Neff; Lewandowski, Amy S.; Drotar, Dennis; Youngstrom, Eric A.; Peterson, Catherine

doi:10.1037/0893-3200.21.3.407

Cited by 326 publications

(334 citation statements)

References 60 publications

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“…Such symptoms decline over the first 18 months (Boman et al, 2003;Pai et al, 2007;Sawyer et al, 2000;Wijnberg-Williams, Kamps, Klip, & Hoekstra-Weebers, 2006). Variations in the duration and persistence of psychological disturbances have been reported in the literature and such levels are higher among mothers (Sahler et al, 2005;Svavarsdottir, 2005b).…”

Section: Psychosocial Distressmentioning

confidence: 94%

“…Some couples do not report changes in their marital relationships (Dahlquist et al, 1996) while others report more positive attitudes toward the spouse, that their relationships were strengthened, they became more cohesive, and trust improved (Beltrão, Vasconcelos, Pontes, & Albuquerque, 2007;Kylmä & Juvakka, 2007;Lavee & Mey-Dan, 2003;Sloper, 2006). Reports that the parents' relationship weakened and marital satisfaction decreased were also observed (Lavee & Mey-Dan, 2003;Pai et al, 2007).…”

Section: Psychosocial Distressmentioning

confidence: 99%

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Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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A diagnosis of childhood cancer represents challenges for patients, family members, and health workers. The parents of a child or adolescent have to play an expanded role because they need to reconcile parental tasks and treatment demands. This study presents an integrative literature review concerning difficulties experienced by pediatric caregivers during onco-hematological treatment. The CAPES periodicals portal and the Scientific Library Online (SciELO) were searched for papers published between 1999 and 2009. Relevant themes are highlighted in Brazilian and international studies published in the field, such as psychological disorders experienced by caregivers, the professional and financial impact associated with treatment, changes in educative practices and family dynamics, and the influence of cultural practices on the experience of treatment. Suggestions for further research are presented to support efficient psychosocial interventions and minimize the psychosocial costs experienced by pediatric caregivers over the course of onco-hematological treatments.Keywords: Childhood Cancer, Caregivers, Children, Psycho-oncology. Impacto Psicossocial do Câncer Pediátrico para Pais: Revisão da LiteraturaResumo: O diagnóstico de câncer infantil representa desafios para pacientes, familiares e profissionais de saúde. Os pais de uma criança ou adolescente em tratamento têm seu papel estendido, pois precisam administrar práticas parentais e exigências do tratamento. Este artigo objetiva realizar revisão integrativa da literatura relacionada a dificuldades vivenciadas pelos cuidadores pediátricos durante tratamento onco-hematológico. Foi realizada revisão da literatura publicada entre 1999 e 2009, a partir da busca em bases de dados Portal de Periódicos CAPES e Scientific Library Online (SciELO). Com base na literatura nacional e internacional recentemente publicada na área destacam-se temas importantes, como perturbações psicológicas vivenciadas pelos cuidadores, impacto profissional e financeiro associado ao tratamento, mudanças em práticas educativas, alterações na dinâmica familiar e influência de práticas culturais na vivência do tratamento. São apresentadas sugestões para pesquisas que possam subsidiar intervenções psicossociais eficientes para diminuir custos psicossociais vivenciados por cuidadores pediátricos ao longo do tratamento onco-hematológico. Palavras-chave:Câncer em Crianças, Cuidadores, Crianças, Psico-oncologia. Impacto Psicosocial del Cáncer en la Infancia para Padres: Revisión de la LiteraturaResumen: El diagnóstico del cáncer en la infancia es desafío para enfermos, familia y profesionales Hoekstra de salud. Los padres del niño o adolescente en tratamiento tienen su papel extendido y necesitan asociar prácticas de paternidad a exigencias del tratamiento. Constituí objetivo de este artículo realizar revisión integrativa de literatura, con atención para dificultades vivenciadas por cuidadores pediátricos en tratamiento onco-hematológico. Fue realizada busca en la literatura publicada entre...

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Section: Psychosocial Distressmentioning

confidence: 94%

Section: Psychosocial Distressmentioning

confidence: 99%

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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“…1,2 A cancer diagnosis in a child may thus affect the family' s general functioning and the quality of the parents' relationship, as seen in higher levels of family conflicts and marital distress. 3,4 Consequently, it would be of great importance to both parents and health professionals to clarify if parents are at an increased risk of separation and, if so, if supportive interventions should be initiated.…”

mentioning

confidence: 99%

Parental Separation and Pediatric Cancer: A Danish Cohort Study

et al. 2012

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WHAT'S KNOWN ON THIS SUBJECT: Cancer in a child may affect the quality of the parents' relationship, but few studies have examined a potential effect on parental divorce, and no studies have accounted for the proportion of couples that live outside formal marriages. WHAT THIS STUDY ADDS:In this nationwide registry-based study with up to 20 years of follow-up, we included both married and cohabiting couples, reflecting modern family structures. We found that experiencing cancer in a child is not a risk factor for the parents separating.abstract OBJECTIVE: The purpose of this study was to determine the risk for separation (ending cohabitation) of the parents of a child with a diagnosis of cancer. METHODS:In a nationwide cohort, we compared the risk for ending cohabitation of the parents of 2450 children (aged 0-20 years) given a diagnosis of cancer with the risk of parents of 44 853 randomly selected, gender-and age-matched cancer-free children. We adjusted for socioeconomic position and demographic factors. Rate ratios and 95% confidence intervals for separation were estimated in a Cox proportional hazards model. RESULTS:The parents of children with cancer did not have a higher risk for separation than the general population (rate ratio: 1.00 [95% confidence interval: 0.91-1.10]). Separate analyses according to type of cancer and survival of the child similarly yielded null results.CONCLUSIONS: Experiencing cancer in a child does not seem to be a risk factor for separation. Our study will allow clinicians to reassure parents and to support them in facing the trauma of cancer in their child.

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“…[2,37,38] Whilst mothers of children with cancer had higher distress related to taking care of children; household, financial and transport problems; and intimacy, mothers of children without cancer reported higher distress related to their relationships with their children and relatives. This may be due to the cancer experience resulting in greater support, or perceived support from relative, or potentially families dealing with cancer reluctant to report, or have difficulty acknowledging any strain in parent-child relationships.…”

Section: Discussionmentioning

confidence: 99%

Relationships between Russian mothers and their children with, and without, cancer: A controlled study

Aralova

Robertson

Putrya

et al. 2016

IJH

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Using a traditional Russian framework to understand parent-child relationships, we investigated the development of the motherchild relationship in consideration of mothers' distress and their children with cancer. Mothers of children with (n = 26) and without cancer (n = 26) completed the "Family Relationship Analysis" (FRA) and "Distress Thermometer" questionnaires. Children of participating parents (ages 6-12) (26 with cancer, 26 without cancer) completed the graphic discussion "My Social Circle" to determine the child's close relationships. All mothers and children participated in the "The Cooperation Test (CT)" to assess parent-child interactions.Distress was higher in mothers of children with cancer, with groups of mothers differing in methods for reducing distress. High distress was associated with ignoring their child's needs and excessiveness of demands/duties. Mothers of children with cancer indulged their children's demands and were more overprotective than mothers of healthy children. Children with cancer also placed their mothers further away in their social circle than children without. Overall, a clear interconnection between mother's distress and the characteristics of the mother-child relationship were found. These findings will contribute to interventions aimed at decreasing maternal distress and improving mother-child relationships in pediatric oncology.

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A meta-analytic review of the influence of pediatric cancer on parent and family functioning.

Cited by 326 publications

References 60 publications

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Parental Separation and Pediatric Cancer: A Danish Cohort Study

Relationships between Russian mothers and their children with, and without, cancer: A controlled study

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