A loss of social eating: the experience of individuals living with gastroparesis

Abstract

A better understanding of these patients' sense of loss of normal eating behaviour and the associated psychological distress needs to inform gastroparesis service provision with a view to developing a more holistic service for this patient group.

Exploration of the psychosocial issues associated with gastroparesis: a qualitative investigation

“…Some predominant concerns for gastroparesis patients that were reiterated by the present study included frustration regarding medical experiences, and feelings of being burdened by the condition, including loss of well‐being, loss of relationships and difficulty attending social occasions. Consistent with Bennell and Taylor (), the present study also found that gastroparesis had an impact on an individual's identity, significantly influencing how some individuals perceived themselves. Additionally, several participants reported that the intrapersonal and interpersonal burdens associated with gastroparesis led to psychological distress, which is generally consistent with previous research identifying an association between psychological factors and gastroparesis (e.g.…”

“…Bielefeldt et al . , Bennell & Taylor ), the results of the present study found that the impact of gastroparesis was not limited to physical well‐being, but was instead pervasive throughout the individual's life. Some predominant concerns for gastroparesis patients that were reiterated by the present study included frustration regarding medical experiences, and feelings of being burdened by the condition, including loss of well‐being, loss of relationships and difficulty attending social occasions.…”

“…Patients also described feeling accused of fabricating their illness, significant difficulty in managing social settings, as well as changes to sense of identity and security. Consistent with Bennell and Taylor (2013), based upon 55 interviews with gastroparesis patients, Bielefeldt et al (2009) also found that primary concerns were related to attending social events and eating out, as well as frustration with healthcare providers. Other issues raised included fatigue, strain placed on relationships by the illness, and the influence that the condition had on professional activity.…”

Meanings of eating deficiencies for people admitted to palliative home care

“…Reid et al, 2009a) and also other contexts, for example, chronic gastric (Bennell &Taylor, 2013) andheadand-neck (McQuestion et al, 2011) illness. This corresponds with previous studies about eating difficulties and progressive life-limiting conditions (cf.…”

Prevalência de sinais e sintomas digestórios em trabalhadoras rurais e fatores associados

“…One study that reported the experience of patients with gastroparesis indicated that the main symptoms of the disease were nausea, vomiting, and depression and that the behaviors of patients with this diagnosis were associated with feelings of loss, isolation, and rejection. (14) Therefore, nursing has sought to define cases of gastric infection and/or disease by identifying epigastric disorders. This diagnosis assists in primary and secondary care by focusing on living conditions and particularly on working condi-tions.…”