A longitudinal view of factors that influence the emotional well-being of family caregivers to individuals with heart failure

Grigorovich, Alisa; Lee, Adrienne; Ross, Heather J.; Woodend, A. Kirsten; Forde, Samantha; Cameron, Jill I.

doi:10.1080/13607863.2016.1168361

Cited by 37 publications

(35 citation statements)

References 53 publications

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“…Other qualitative research has identified caregivers experience a reduction in social participation (Bulley, Shiels, Wilkie, & Salisbury, 2010) and loss of spontaneity and freedom (Bäckström & Sundin, 2009). Further, quantitative research suggests caregivers experiencing restrictions in working towards roles and goals of importance and value experience increased levels of depression (Grigorovich et al, 2016;Hwang, Rivas, Fremming, Rivas, & Crane, 2009;Mausbach et al, 2011;Rochette et al, 2007). Whilst some caregivers are able to re-engage with activities over time, those with higher levels of depression and caring for stroke survivors with greater illness severity are less likely to (Grigorovich et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…Further, quantitative research suggests caregivers experiencing restrictions in working towards roles and goals of importance and value experience increased levels of depression (Grigorovich et al, 2016;Hwang, Rivas, Fremming, Rivas, & Crane, 2009;Mausbach et al, 2011;Rochette et al, 2007). Whilst some caregivers are able to re-engage with activities over time, those with higher levels of depression and caring for stroke survivors with greater illness severity are less likely to (Grigorovich et al, 2016). As such, an important finding emerging from this study is caregivers with elevated depressive and anxious symptoms may experience long-term difficulties in re-engaging with goals and roles of importance.…”

Section: Discussionmentioning

confidence: 99%

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”I Don’t Believe in Leading a Life of My Own, I Lead His Life”: A Qualitative Investigation of Difficulties Experienced by Informal Caregivers of Stroke Survivors Experiencing Depressive and Anxious Symptoms

Woodford

Farrand

Watkins

et al. 2017

Clinical Gerontologist

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Objectives: Health and social care services are increasingly reliant on informal caregivers to provide long-term support to stroke survivors. However, caregiving is associated with elevated levels of depression and anxiety in the caregiver that may also negatively impact stroke survivor recovery. This qualitative study aims to understand the specific difficulties experienced by caregivers experiencing elevated symptoms of anxiety and depression. Methods: Nineteen semi-structured interviews were conducted with caregivers experiencing elevated levels of depression and anxiety, with a thematic analysis approach adopted for analysis. Results: Analysis revealed three main themes: Difficulties adapting to the caring role; Uncertainty; and Lack of support. Conclusions: Caregivers experienced significant difficulties adapting to changes and losses associated with becoming a caregiver, such as giving up roles and goals of importance and value. Such difficulties persisted into the long-term and were coupled with feelings of hopelessness and worry. Difficulties were further exacerbated by social isolation, lack of information and poor long-term health and social care support. Clinical Implications: A greater understanding of difficulties experienced by depressed and anxious caregivers may inform the development of psychological support targeting difficulties unique to the caring role. Improving caregiver mental health may also result in health benefits for stroke survivors themselves.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

”I Don’t Believe in Leading a Life of My Own, I Lead His Life”: A Qualitative Investigation of Difficulties Experienced by Informal Caregivers of Stroke Survivors Experiencing Depressive and Anxious Symptoms

Woodford

Farrand

Watkins

et al. 2017

Clinical Gerontologist

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“…Low health perception, care burden, distress, income state of the caregiver, providing care for 5 years and more, quality of life and sex of the caregiver, may affect the well‐being of the caregiver. Again, sex and age of the caretaker, cormorbidity, cognitive dysfunction, behavioural problems, depressive symptoms, chronic disease of older adults and symptoms associated with his/her disease may affect well‐being of the caregiver . For that reason, factors affecting health and well‐being of caregiving family members need to be determined and they need help and support for meeting their needs in order to maintain caregiving …”

Section: Introductionmentioning

confidence: 99%

Influence of caregiver burden on well‐being of family member caregivers of older adults

Kartal

2019

Psychogeriatrics

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Background Caregiving to older adults is one of the most important social issues associated with aging. While caregiving provides a suitable care and supportive environment for older adults, changes in the lives of caregiving family members also affect their health. The aim of this study was to examine the effect of care burden on the well‐being of family members providing care for older adults. Methods The study used a cross‐sectional design. The study sample included 363 family caregivers of older adults. Socio‐demographic questionnaire form, Burden Interview and Caregiver Well‐Being Scale were used as data collection tools. Multiple linear regression analysis was performed to explore the predictors of well‐being in the family caregivers of older adults. Results The caregiver burden mean score was 32.63 ± 15.72 and Caregiver Well‐Being Mean score was 159.38 ± 24.55. Caregiver burden, perceived health status of the older adults, marital status, perceived health status of caregiver and social support of caregiver were found to be statistically significant predictors of well‐being in family member caregivers of older adults. Caregiver burden level was found to be the strongest predictor of well‐being in the family caregivers of older adults. Conclusion Results showed that caregiver burden had an important effect on well‐being of the caregiver. For this reason caregiver burden should be considered during interventions for improving well‐being in family caregivers of older adults. Findings of our study revealed the necessity of showing special attention to caregivers by healthcare professionals and the importance of conducting interventional studies that aim to reduce caregiver burden in order to promote well‐being.

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Section: Introductionmentioning

confidence: 99%

“…A study showed that family member caregivers present musculoskeletal and sleep disorders, fatigue, increased levels of stress, anxiety and social isolation due to the care (provided) (2) . Worse quality of life (4) , depression (5) and increased burden (6) are other negative aspects found in family members.Negative experiences associated with time spent providing care may lead the caregiver to neglect their own health. A meta-analysis of 168 studies found that different impacts are experienced by spouses, children and stepchildren caregivers.…”

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confidence: 99%

Anxiety, stress and depression in family members of patients with heart failure

Lacerda

Cirelli

Barros

et al. 2017

Rev. esc. enferm. USP

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Objective: Identifying the level of anxiety, stress and depression symptoms in family members of patients with heart failure; identifying the relationship between these feelings with sociodemographic and clinical variables. Method: A cross-sectional study carried out with 100 family members. Depression, anxiety, and stress were evaluated by the Beck Depression and Anxiety Inventories and the Perceived Stress Scale -10. The relationship between feelings and variables was performed through the t-test, Mann-Whitney or Kruskal-Wallis. Results: Mean depression was 8.24, anxiety was 77.95, and stress was 17.43. The correlation coefficient between depression and anxiety and depression and stress was 0.53, and it was 0.66 between anxiety and stress. Females (p=0.002, p=0.031), smoking (p=0.05, p=0.011) and sedentary lifestyle (p=0.023, p=0.001) were related to anxiety and stress, respectively. Family income lower than five minimum wages (p=0.012) was related to depression, and regular/poor self-perceived health status related to the three feelings. Conclusion: Family members did not present high levels of these feelings. The scales were directly correlated with each one another and some variables were related to stress, anxiety and depression. DESCRIPTORS Heart Failure; Family; Anxiety; Stress, Phychological; Depression; Cardiovascular Nursing.Anxiety, stress and depression in family members of patients with heart failure* Ansiedade, estresse e depressão de familiares de pacientes com insuficiência cardíaca Ansiedad, estrés y depresión de familiares de pacientes con insuficiencia cardiaca INTRODUCTIONHeart failure (HF) is the final pathway for various heart diseases representing a major public health problem. According to data from DataSUS, circulatory system diseases were the third leading cause of hospital admission in 2015 (1) . HF is a chronic disease responsible for the greatest number of hospitalizations within the group of circulatory system diseases (1) . An individual affected by a chronic disease such as HF experiences changes in their daily life which are caused by the disease itself (2) , such as changes related to the use of medicines (start taking, changing or increasing number of medications), frequent consultations and recurrent hospitalizations.Such changes to a patient's lifestyle directly influence their family members' living habits, who represent necessary support to the patient for better coping with the disease. It is known that caregivers directly and indirectly contribute to monitoring, maintenance and management of patient self-care (3) . Therefore, understanding psychosocial factors (depression, anxiety and stress) that may be present in family members and understanding the context in which the patient and family are inserted becomes important.It is known that family members may experience negative experiences/situations arising from care which encompass physical and psychological aspects. A study showed that family member caregivers present musculoskeletal and sleep disorders, fatigu...

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A longitudinal view of factors that influence the emotional well-being of family caregivers to individuals with heart failure

Abstract: Interventions should be offered based on caregivers' needs rather than patients' health outcomes, and should focus on fostering caregivers' feelings of personal gain, assisting them with securing social support, and engaging in valued activities.

Cited by 37 publications

References 53 publications

”I Don’t Believe in Leading a Life of My Own, I Lead His Life”: A Qualitative Investigation of Difficulties Experienced by Informal Caregivers of Stroke Survivors Experiencing Depressive and Anxious Symptoms

”I Don’t Believe in Leading a Life of My Own, I Lead His Life”: A Qualitative Investigation of Difficulties Experienced by Informal Caregivers of Stroke Survivors Experiencing Depressive and Anxious Symptoms

Influence of caregiver burden on well‐being of family member caregivers of older adults

Anxiety, stress and depression in family members of patients with heart failure

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