A Feasibility Study to Develop and Test a Cognitive Behavioral Stress Management Mobile Health Application for HIV-Related Fatigue

Barroso, Julie; Madisetti, Mohan; Mueller, Martina

doi:10.1016/j.jpainsymman.2019.09.009

Cited by 11 publications

(21 citation statements)

References 33 publications

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“…In the context of developing a cognitive behavioural mobile app to manage HIV fatigue ( Barroso et al, 2020 ) participants reported that they felt that that the textual content needed interspersing with pictures and diagrams Similarly, participants in the current study reported that there was too much text in early versions of the MS Energise app. Too much content could lead to a sense of feeling overwhelmed and not in control ( Simblett et al, 2019 ; Winberg et al, 2019 ) which itself is fatiguing.…”

Section: Discussionmentioning

confidence: 72%

Design considerations for a multiple sclerosis fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks

Kessel

Babbage

Kersten

et al. 2021

Internet Interventions

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Multiple sclerosis (MS) is a chronic neurological condition affecting around 2.2 million people worldwide. The illness includes a range of symptoms, with fatigue considered to be one of the most disabling. This paper describes how a pragmatic and iterative approach, supported by usability and resonance testing, was used to build a minimum viable product of MS Energize—or MS Energise in UK English regions. MS Energise is a mobile application focused on self-management of fatigue for people with MS. The iterative approach included various stages of testing, during which user feedback including comments about interface, navigation and content, was sought to inform incremental app development and continual improvement. Usability testing was conducted with 11 people with longstanding multiple sclerosis in New Zealand and the United Kingdom, and focused on particular sections of the app as well as the accessibility of the app to users with MS. Two participants contributed to further resonance testing post-release to ensure the app was perceived as relevant and useful to the user. The usability testing and resonance testing phases suggested that user experience of MS Energise was mostly positive. Participants provided a number of suggestions for improvements to aspects of content and design; some of which we implemented during our app development process. Findings will also contribute to future planning and design iteration to enhance the user experience. The next step is further improvement of MS Energise prior to a trial of its clinical and cost effectiveness.

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Section: Discussionmentioning

confidence: 72%

Design considerations for a multiple sclerosis fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks

Kessel

Babbage

Kersten

et al. 2021

Internet Interventions

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“…Evidence in other medical populations suggests that a comprehensive, multicomponent treatment may be most effective. For example, fatigue management in patients recovering from cancer, [39][40][41][42][43] traumatic brain injury, [44][45][46] HIV, 47,48 and multiple sclerosis [49][50][51] include development of an exercise program, proper nutrition/ hydration, mood management, activity pacing, medication review, and sleep hygiene; each represents issues that are frequently disrupted during critical illness recovery.…”

Section: Discussionmentioning

confidence: 99%

Fatigue Symptoms During the First Year Following ARDS

Neufeld

Leoutsakos

Yan

et al. 2020

Chest

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BACKGROUND: Fatigue is commonly reported by ARDS survivors, but empirical data are scarce. RESEARCH QUESTION: This study evaluated fatigue prevalence and associated variables in a prospective study of ARDS survivors. STUDY DESIGN AND METHODS: This analysis is part of the ARDSNet Long-Term Outcomes Study (ALTOS) conducted at 38 US hospitals. Using age-and sex-adjusted, time-averaged random effects regression models, we evaluated associations between the validated Functional Assessment of Chronic Illness Therapy-Fatigue Scale with patient and critical illness variables, and with physical, cognitive, and mental health status at 6 and 12 months following ARDS. RESULTS: Among ARDS survivors, 501 of 711 (70%) and 436 of 659 (66%) reported clinically significant symptoms of fatigue at 6 and 12 months, respectively, with 41% and 28% reporting clinically important improvement and worsening (n ¼ 638). At 6 months, the prevalence of fatigue (70%) was greater than that of impaired physical functioning (50%), anxiety (42%), and depression (36%); 46% reported both impaired physical function and fatigue, and 27% reported co-existing anxiety, depression, and fatigue. Fatigue was less severe in men and in those employed prior to ARDS. Critical illness variables (eg, illness severity, length of stay) had little association with fatigue symptoms. Worse physical, cognitive, and mental health symptoms were associated with greater fatigue at both the 6-and 12-month follow-up. INTERPRETATION: During the first year following ARDS, more than two-thirds of survivors reported clinically significant fatigue symptoms. Due to frequent co-occurrence, clinicians should evaluate and manage survivors' physical, cognitive, and mental health status when fatigue is endorsed.

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“…This study illustrates that although we are still quite far from "capturing life as it is lived" (Bolger et al, 2003), we are equipped with tools to make more a reliable approximation of these real-life processes. Hopefully, it would lead to more effective stress management interventions, which are now increasingly taking the form of mobile applications, tailored to the everyday lives of patients with chronic medical conditions in their natural environment (Barroso et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Affective Well‐Being, Rumination, and Positive Reappraisal among People Living with HIV: A Measurement‐Burst Diary Study

Gruszczyńska

Rzeszutek

2020

Applied Psych Health & Well

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Background: Changes of affective well-being are usually analysed either as longitudinal processes or as daily fluctuations. We used a three-burst diary study to combine these perspectives. Method: The participants were 211 patients with a diagnosis of HIV infection. In three bursts with 6-month intervals, they completed an online diary for five consecutive days, which gives 15 days of measurements. They evaluate affective well-being (positive and negative affect), stress associated with a central hassle, and coping (rumination and positive reappraisal). Results: Higher daily stress coupled with higher rumination was related to lower well-being. For positive reappraisal, the picture was more complex. First, its interaction with daily stress had an effect on negative, but not on positive, affect. Second, this effect was significant only at the first burst. Conclusions: These results suggest a stable debilitating effect of daily rumination, but a limited and diminishing beneficial effect of daily positive reappraisal among people living with HIV. As such, they do not confirm the view that positive reappraisal sustains affective well-being during chronic health conditions. This may inform stress management interventions for PLWH, which are now increasingly taking the form of mobile applications, adapted to the daily lives of patients in their natural environment.

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A Feasibility Study to Develop and Test a Cognitive Behavioral Stress Management Mobile Health Application for HIV-Related Fatigue

Cited by 11 publications

References 33 publications

Design considerations for a multiple sclerosis fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks

Design considerations for a multiple sclerosis fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks

Fatigue Symptoms During the First Year Following ARDS

Affective Well‐Being, Rumination, and Positive Reappraisal among People Living with HIV: A Measurement‐Burst Diary Study

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