A discussion paper on stigmatizing features of diabetes

Abdoli, Samereh; Irani, Mehri Doosti; Hardy, Lynda R.; Funnell, Martha M.

doi:10.1002/nop2.112

Cited by 33 publications

(33 citation statements)

References 46 publications

(90 reference statements)

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“…This phenomenon was reported in young women with diabetes and thalassemia in Iran, India and Jordan, who had difficulties finding a marriage partner due to sociocultural norms (Abdoli, Abazari, & Mardanian, 2013;Abdoli, Doosti Irani, Hardy, & Funnell, 2018;Al-Awamreh, 2014). Women with diabetes in Iran and India are thought to be unsuitable candidates for marriage because of the assumed risk of infertility, high-risk pregnancies, passing diabetes on to their children, or bearing children with a congenital abnormality (Abdoli et al, 2018;Abdoli, Doosti Irani, et al, 2013). Such societal misunderstanding could have negative consequences that greatly impact the female adolescent, as well as her parents in the short and long term.…”

Section: Findings From the Viewpoint Of The Ecological Modelmentioning

confidence: 90%

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

et al. 2018

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Section: Findings From the Viewpoint Of The Ecological Modelmentioning

confidence: 90%

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

et al. 2018

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“…Grady (1973) designated hope as an affirmation by a person that life as a value [40]. Abdoli (2017) showed that young adults with T1D hope for a better tomorrow, including a cure for diabetes and more advanced technology [15].…”

Section: Discussionmentioning

confidence: 99%

“…Marshall et al (2009) showed that parents of children with T1D needed to accept, trust, and support their children's ability to make their own decisions related to the T1D [14]. Furthermore, Abdoli et al (2017) stated that young adults with T1D exhibited daily struggles living with their illness, attempting to grow and move into adult roles while taking complete responsibility of their diabetes management [15].…”

Section: Introductionmentioning

confidence: 99%

Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives

Carlsund¹

2018

AJNS

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The aim of this study was to enhance a deeper understanding of daily life as experienced by young adults with Type 1 Diabetes and their close relatives. Young adulthood is commonly considered as an amendment to adult roles. Increased responsibility, such as a long-term illness in young adulthood, might lead to increased stress and anxiety. Type 1 Diabetes involves large obligations related to self-care, and close relatives might play an important role in managing daily life. A hermeneutic study involving interviews with a narrative approach with couples. The hermeneutic analysis revealed that T1D is always unconditionally present in daily life for young adults and their close relatives. Close relatives are important supporters, they have an understanding based on sharing daily life with the young adults with T1D. Young adults and their close relatives highlighted the experiences of being questioned, which in turn threatens the young adults' integrity.

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“…In a large US survey, 76% and 52% of participants with type 1 and type 2 diabetes, respectively, report experiencing stigma . Stigma or discrimination, sometimes used interchangeably, can take severe forms; a review of 17 studies summarizes themes under ‘rejected for marriage’, diabetes being seen as ‘self‐inflicted’ or ‘contagious’, and the person with diabetes being labelled ‘drunk’ or a ‘drug abuser’ .…”

Section: Stigma and Resilience In The Social Contextmentioning

confidence: 99%

State of the art: understanding and integration of the social context in diabetes care

2020

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We review the past 25 years of research addressing challenges people living with diabetes experience in their daily lives related to social contexts, i.e. in their family, at work and in society at large, and identify research gaps. We found that young people with diabetes, as they develop through to adulthood, are exposed to considerable risks to their physical and mental health. Family‐system interventions have had mixed outcomes. Research in this area would benefit from attention to ethnic/cultural diversity, and involving fathers and other family members. In adults with diabetes, social support relates to better diabetes outcomes. While family member involvement in care is likely to affect health and psychosocial outcomes of the person with diabetes, key elements and mediators of effective family interventions need to be identified. The challenges of diabetes management at work are under‐researched; distress and intentional hyperglycaemia are common. When depression is comorbid with diabetes, there are increased work‐related risks, e.g. unemployment, sickness absence and reduced income. Research to support people with diabetes at work should involve colleagues and employers to raise awareness and create supportive environments. Stigma and discrimination have been found to be more common than previously acknowledged, affecting self‐care, well‐being and access to health services. Guidance on stigma‐reducing choice of language has been published recently. Resilience, defined as successful adaptation to adversity such as stigma and discrimination, requires studies relevant to the specific challenges of diabetes, whether at diagnosis or subsequently. The importance of the social context for living well with diabetes is now fully recognized, but understanding of many of the challenges, whether at home or work, is still limited, with much work needed to develop successful interventions.

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A discussion paper on stigmatizing features of diabetes

Cited by 33 publications

References 46 publications

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives

State of the art: understanding and integration of the social context in diabetes care

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